Guest guest Posted June 22, 2009 Report Share Posted June 22, 2009 Beth No crackles...oh my. Glad you've continued stability. The PFT's are certainly not fun, but coming home knowing everything is as you felt and nothing to alarm you sure is. I'm sure you'll enjoy the round of pulmonary rehab. After the flu situation and just the passage of time and interruptions, I'm sure the program will get you to where you want to be exercise wise. > > That's the news we all hope for. PFT essentially unchanged. Echo well within normal limits and no crackles to be heard this time around. So I am proclaimed stable and sent on my way. I'm tired and happy. I asked for and was given a prescription for another round of pulmonary rehab. I haven't been in nearly 3 years. I know how much it helped me last time and I'm confident it will help me this time around also. > I go back again in September. I have an upper GI scheduled in early September and then another visit to Dr. on, PFT and this time an HRCT just cause I haven't had one in awhile. > These visits aren't alot of fun but it's good to find out I'm still stable and can continue to live my life the way I like to. > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2009 Report Share Posted June 22, 2009 AWESOME Nice way to start the summer Walt on Whidbey IPF,Nsip.Uip. 06 Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.†Subject: Still stableTo: Breathe-Support Date: Monday, June 22, 2009, 12:48 PM That's the news we all hope for. PFT essentially unchanged. Echo well within normal limits and no crackles to be heard this time around. So I am proclaimed stable and sent on my way. I'm tired and happy. I asked for and was given a prescription for another round of pulmonary rehab. I haven't been in nearly 3 years. I know how much it helped me last time and I'm confident it will help me this time around also. I go back again in September. I have an upper GI scheduled in early September and then another visit to Dr. on, PFT and this time an HRCT just cause I haven't had one in awhile. These visits aren't alot of fun but it's good to find out I'm still stable and can continue to live my life the way I like to. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2009 Report Share Posted June 22, 2009 MB, Well just make my day.. I am so thankful, made me cry. I am just overjoyed for you and all of us that we'll have you with no BIG problem... I Love You and am such a proud, MAMA CHICK.. Rest honey.Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. That's the news we all hope for. PFT essentially unchanged. Echo well within normal limits and no crackles to be heard this time around. So I am proclaimed stable and sent on my way. I'm tired and happy. I asked for and was given a prescription for another round of pulmonary rehab. I haven't been in nearly 3 years. I know how much it helped me last time and I'm confident it will help me this time around also. I go back again in September. I have an upper GI scheduled in early September and then another visit to Dr. on, PFT and this time an HRCT just cause I haven't had one in awhile. These visits aren't alot of fun but it's good to find out I'm still stable and can continue to live my life the way I like to. BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2009 Report Share Posted June 22, 2009 absolutely good news! ken o. To: Breathe-Support Sent: Monday, June 22, 2009 12:48:16 PMSubject: Still stable That's the news we all hope for. PFT essentially unchanged. Echo well within normal limits and no crackles to be heard this time around. So I am proclaimed stable and sent on my way. I'm tired and happy. I asked for and was given a prescription for another round of pulmonary rehab. I haven't been in nearly 3 years. I know how much it helped me last time and I'm confident it will help me this time around also. I go back again in September. I have an upper GI scheduled in early September and then another visit to Dr. on, PFT and this time an HRCT just cause I haven't had one in awhile. These visits aren't alot of fun but it's good to find out I'm still stable and can continue to live my life the way I like to. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2009 Report Share Posted June 23, 2009 Thanks Beth, When I see my doc next month I will ask him about the ECHO. . From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Still stableTo: Breathe-Support@ yahoogroups. comDate: Monday, June 22, 2009, 7:48 PM That's the news we all hope for. PFT essentially unchanged. Echo well within normal limits and no crackles to be heard this time around.. So I am proclaimed stable and sent on my way. I'm tired and happy. I asked for and was given a prescription for another round of pulmonary rehab. I haven't been in nearly 3 years. I know how much it helped me last time and I'm confident it will help me this time around also. I go back again in September. I have an upper GI scheduled in early September and then another visit to Dr. on, PFT and this time an HRCT just cause I haven't had one in awhile. These visits aren't alot of fun but it's good to find out I'm still stable and can continue to live my life the way I like to. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2009 Report Share Posted June 23, 2009 Adrienne I would say no one with PF should go more than a year between echocardiograms and at anything but the early stages we should have them closer, like every six months. We have PFT's and some have CT's repeated but they don't lead to action like an echo might-action that may prolong our lives and keep them better. One thing I use in my thoughts sometimes is an understanding that my remaining life is limited and therefore some time frames need to be compressed. If I was healthy and had twenty years to go, I'd not rush to echocardiograms. But I don't want PH cutting the enjoyment of life I have left short. > > > From: Beth mbmurtha (AT) yahoo (DOT) com> > Subject: Still stable > To: Breathe-Support@ yahoogroups. com > Date: Monday, June 22, 2009, 7:48 PM > > > > > > > > That's the news we all hope for. PFT essentially unchanged. Echo well within normal limits and no crackles to be heard this time around.. So I am proclaimed stable and sent on my way. I'm tired and happy. I asked for and was given a prescription for another round of pulmonary rehab. I haven't been in nearly 3 years. I know how much it helped me last time and I'm confident it will help me this time around also. > I go back again in September. I have an upper GI scheduled in early September and then another visit to Dr. on, PFT and this time an HRCT just cause I haven't had one in awhile. > These visits aren't alot of fun but it's good to find out I'm still stable and can continue to live my life the way I like to. > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2009 Report Share Posted June 25, 2009 Hi Joyce, Yes I did pulmo rehab but unfortunately insurance doesn't cover another round. If I knew the cost then I may be able to see the expense. Thanks, AB From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Still stableTo: Breathe-Support@ yahoogroups. comDate: Monday, June 22, 2009, 7:48 PM That's the news we all hope for. PFT essentially unchanged. Echo well within normal limits and no crackles to be heard this time around... So I am proclaimed stable and sent on my way. I'm tired and happy. I asked for and was given a prescription for another round of pulmonary rehab. I haven't been in nearly 3 years. I know how much it helped me last time and I'm confident it will help me this time around also. I go back again in September. I have an upper GI scheduled in early September and then another visit to Dr. on, PFT and this time an HRCT just cause I haven't had one in awhile. These visits aren't alot of fun but it's good to find out I'm still stable and can continue to live my life the way I like to. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2009 Report Share Posted June 25, 2009 Adrienne where i went -- St mary in Langhorne, after rehab there is maintenance -- about $7 or $8 per session then i joined the wellness center at St -- more like a full size gym, $40.-- per month some people have insurance that covers it i try to go there 2-3 times a week Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Still stableTo: Breathe-Support Date: Thursday, June 25, 2009, 4:56 PM Hi Joyce, Yes I did pulmo rehab but unfortunately insurance doesn't cover another round. If I knew the cost then I may be able to see the expense. Thanks, AB From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Still stableTo: Breathe-Support@ yahoogroups. comDate: Monday, June 22, 2009, 7:48 PM That's the news we all hope for. PFT essentially unchanged. Echo well within normal limits and no crackles to be heard this time around... So I am proclaimed stable and sent on my way. I'm tired and happy. I asked for and was given a prescription for another round of pulmonary rehab. I haven't been in nearly 3 years. I know how much it helped me last time and I'm confident it will help me this time around also. I go back again in September. I have an upper GI scheduled in early September and then another visit to Dr. on, PFT and this time an HRCT just cause I haven't had one in awhile. These visits aren't alot of fun but it's good to find out I'm still stable and can continue to live my life the way I like to. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2009 Report Share Posted June 25, 2009 Adrienne, How long has it been since you did pulmonary rehab? Most insurance will pay for more than one round of rehab as long as a certain amount of time has passed or if your condition has changed significantly. My old insurance required a year to pass before they would pay for rehab again. Medicare will also pay for rehab more than once as long as enough time has passed or it is medically indicated. If your insurance won't pay for another round now it might pay for a session or two with a physical therapist to help you figure out what exercise is currently safe for you. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Thursday, June 25, 2009 4:56:39 PMSubject: Re: Still stable Hi Joyce, Yes I did pulmo rehab but unfortunately insurance doesn't cover another round. If I knew the cost then I may be able to see the expense. Thanks, AB From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Still stableTo: Breathe-Support@ yahoogroups. comDate: Monday, June 22, 2009, 7:48 PM That's the news we all hope for. PFT essentially unchanged. Echo well within normal limits and no crackles to be heard this time around... So I am proclaimed stable and sent on my way. I'm tired and happy. I asked for and was given a prescription for another round of pulmonary rehab. I haven't been in nearly 3 years. I know how much it helped me last time and I'm confident it will help me this time around also. I go back again in September. I have an upper GI scheduled in early September and then another visit to Dr. on, PFT and this time an HRCT just cause I haven't had one in awhile. These visits aren't alot of fun but it's good to find out I'm still stable and can continue to live my life the way I like to. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2009 Report Share Posted June 25, 2009 Adrienne, The place I go to said that if you're hospitalized or enough time has gone by, ins. will cover again. Also, after rehab there's a maintenance program that's $25 per month. You go 3X per week. You never know. Your place might have something similar. It's worth checking into. Nan 49, MASS list started '82 PF '08 Asthma '09 > > > From: Beth <mbmurtha (AT) yahoo (DOT) com> > Subject: Still stable > To: Breathe-Support@ yahoogroups. com > Date: Monday, June 22, 2009, 7:48 PM > > > > > > > > That's the news we all hope for. PFT essentially unchanged. Echo well within normal limits and no crackles to be heard this time around... So I am proclaimed stable and sent on my way. I'm tired and happy. I asked for and was given a prescription for another round of pulmonary rehab. I haven't been in nearly 3 years. I know how much it helped me last time and I'm confident it will help me this time around also. > I go back again in September. I have an upper GI scheduled in early September and then another visit to Dr. on, PFT and this time an HRCT just cause I haven't had one in awhile. > These visits aren't alot of fun but it's good to find out I'm still stable and can continue to live my life the way I like to. > > Beth > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > Quote Link to comment Share on other sites More sharing options...
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