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RE: Am I the only one?

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Thanks. I don't feel discouraged about this though. I accept it as the way it

is. I love Alec and whether he loves me in any sort of way I understand love to

be does not matter to me. It would be great if I thought he did but I just don't

think he does. But thank you for your thoughts and ideas. :)

Jacquie H

Re: Re: Am I the only one?

> > Am I the only one who has a child like this? >

Jacquie, I'm sorry you are feeling discouraged. I'm sure you are not the

only one (fat chance on this list). That said, almost every family I know

has at least one very stoic, seemingly emotionless (albeit NT) member. For

whatever reason, some people do not emote well. This does not mean that

deep love and caring does not exist. Take your son's autistic limitations

into account here, and tell yourself over and over again that he loves you

immensely and thinks that you are the best mommy in the *whole* world - -

and would tell you or show you if he could.

(SAHM in GA)

MSN elizabethloht@...

n 33, mo, no formal dx

Phoebe, 11 wks

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Wow, Raena. You certainly know so much and explain so well. Thank you.

And it wasn't even my question!

Maggie

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Jacquie,

Argh....I already wrote this once and it blew me out!

Notice how it never does it with one liners???? Oh no!

Liesel wouldn't give a damn if we gave her a new set of parents

tomorrow, providing they were meeting her needs.

Raena :) Beautifully put!

It is so painful but we are blessed because we know why this is,

other are not so fortunate.

I would hate to think my child didn't love me. It's far easier to

know they do in the only way they know how.

Louisa

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Great explanation Reana. And Jacquie for sure you are not the only one.

Alec loves you in his own special way.

Cecilia from Perú, mom to Dessirée (05/07/99)

Lovely husband

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-----Mensaje original-----

De: rgr4us

Enviado el: Jueves, 01 de Mayo de 2003 11:40 a.m.

Para: parenting_autism

Asunto: Re: Am I the only one?

> Am I the only one who has a child like this? >

Jacquie,

I think that there are all levels of attachment/detachment in kids

with autism...and that it has not so much to do with caring--a lot to

do with which coping strategies a child " chooses " to deal with

information overload.

Some kids appear totally detached because they are in shutdown...not

letting information register above the most basic level---what is

needed to survive (food on the table means I can eat; dark means I

need to sit/lie down because I can't tell where I am). And this

happens at probably as many different levels as there are kids doing

it--some shutting down only here and there, or in selected sensory

systems, others shutting down pretty much everything--those are often

very compliant kids who sit quietly in the corner...the ones who " are

no trouble at all " (because they've checked out). It takes intense,

careful SI therapy to get these kids connected again--we did it with

auditory therapy and crash/bump OT (in her clinic...I almost died

watching it, but it worked).

Donna talks about a second reason for this in " Exposure

Anxiety " ...says that the more she felt herself drawn toward someone

(including family), the more she felt the need to draw a curtain

between them and her--because exposing her feelings makes her feel

unsafe. So, the people she cared most for were the ones she could

show the least affection for...because feeling ANYTHING means

connecting with self, and she had no real sense of self.

Don't know if any of that applies, but thought I'd toss it out.

Bottom line? Autism is characterized by sensory and information

processing overloads that the brain has to deal with in one way or

another for the child to survive, and each child's CNS opts for the

strategy that is deemed necessary at that point in time...even when

it means those strategies are emotionally damaging (which they often

are)....autism is also thought to involve limbic system

structures...and that means emotions are impacted.

Raena

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Nope. Empathy is a trait that I do not really see in my daughter. She will

say the learned response but without eye contact it really doesn't mean much.

:(

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> Thanks. I dont think those 2 reasons apply to Alec though. >

Oh. Well, never mind then...

;-)

May I ask, how do you see what is happening? Just curious about what

you feel goes on in Alec's mind...not trying to pry. Feel free to

ignore if you don't want to pursue this further....I just always like

to understand more about kids like ours, and how they think.

Raena

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No.

's not like Alec, but I guarantee you're not the only one!

is quite physically affectionate but he is also my little sensory

seeker and I feel like most of his " affection " is actually looking for some

OT, if you take my meaning. " True " affection is pretty rare and pretty

recent.

He definitely knows us from Adam, as you put it, but he's perfectly content

to walk away or be left with a complete stranger, or jump into someone's lap

and press up against them, or rub his hands in a strange man's beard, or...

Yesterday when I took him in to school he did not want to go sit at the

table for breakfast; he wanted to play with the toys. His teacher could not

get him up off the floor and asked if I could help. I held my arms out to

him and he reached up and I pulled him up. Then he wanted picked up so I

did. (Holy cow! says the teacher, I could not pick up my 3 year old when I

was that pregnant!) We made it to the table and I squatted down next to him

as he was clearly not ready for me to go yet. The teacher and I talked for

a few minutes and then I stood up. He reached out for me, and I held my

hand out for him to hold, feeling loved and needed. He pushed my hand away,

leaned over, and shoved my thigh. *sigh* Teacher laughed and said, " You're

dismissed. "

So while is not exactly like Alec I do have some of those same

feelings, I think.

{{{{{Jacquie}}}}}

-Sara.

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Outward empathetic behaviors can be learned and that is what I hope to teach

Putter. Sometimes the outward action can lead to the inward feeling

actually arising. This is why it is always worth it to teach outward

empathetic behaviors.

They are definitely not worth it to Putter. He hates people to cry, but

not, I think, because the other person is unhappy. I think he has observed

that crying leads to scary behaviors sometimes.

Actually there is an empathetic piece to this. Putter hates to have his

eyes wet from crying and he is very anxious to wipe other people's eyes if

they are crying. Maybe he thinks that they will hate to be wet too? Maybe?

More likely he fears that their tears will get on him and he will have to

strip off all his clothes.

Salli

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