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In a message dated 11/28/2005 7:12:43 PM Eastern Standard Time,

luvmydane3@... writes:

Hi All,

Am just wondering how you all stay so positive? I go for my CT scan on

December 12 and this will be four months from the liver surgery for the

mets. I am having quite a time staying positive about this whole

cancer experience. I have even made my mind up that if the cancer

returns I will not do any more chemo. Not sure if this is a common

reaction but it helps me cope to think that I won't have to go through

that again. Any advice on how to redirct my negative thoughts into

positive ones?

Many thanks,

Sue

Sue.... just take one day at a time, pray, try not to dwell on it (stay busy

doing other " stuff " )...pray...we can't stay positive all the time...it's

impossible, but when you find yourself thinking bad thoughts, actively try to

get busy doing something else...think about something happy....a reason you'd

like to stay among us... a loved one who needs you... Try not to think about

" IFs " until it's time to make a decision.... and I'm sending tons of

positive thoughts your way... and lots of hugs!!!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

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It is so difficult sometimes to stay positive. I also had surgery then

chemo and then mets and a second cancer was found. I had chemo again

that worked pretty well but not completely. I started my third batch

of chemo and it has kicked my butt. The first session of cpt-11 was

not bad but the second was horrible. I am still sick 2 weeks from

treatment. The diarrhea and vomiting have been awful. I had to go

twice for fluids then went for a head ct because the dr thought I had

brain mets I was so sick. I lost 12 lbs so far. I am able to eat a

bit now but still have the diar. and occassional vomiting. I am due

for another treatment next week and do not know if I will do it. I

want to move near my family but can't get packed if I am so sick. My

15yo just moved out to be with her father. That was a hard thing to do

but it is for the best. I want to liquidate my household but need to

be stronger to do that. I am positive, I do not think I am ready to go

yet but when you get so sick it is hard to keep thinking that way.

Prayer and faith help tremendously. So does hearing how gracious

others on the list are like Narice and Donnell. They give me

tremendous strength. Thank you all.

Jane

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Jane, My heart goes to you with the hard decisions you are trying to

make. Have you discussed this with your onc to see if he/she feels

that this new chemo is worth all the stress it is putting on you?

I am sending up extra Prayers for you. Love, Ingrid

>

> It is so difficult sometimes to stay positive. I also had surgery

then

> chemo and then mets and a second cancer was found. I had chemo

again

> that worked pretty well but not completely. I started my third

batch

> of chemo and it has kicked my butt. The first session of cpt-11

was

> not bad but the second was horrible. I am still sick 2 weeks from

> treatment. The diarrhea and vomiting have been awful. I had to go

> twice for fluids then went for a head ct because the dr thought I

had

> brain mets I was so sick. I lost 12 lbs so far. I am able to eat

a

> bit now but still have the diar. and occassional vomiting. I am

due

> for another treatment next week and do not know if I will do it. I

> want to move near my family but can't get packed if I am so sick.

My

> 15yo just moved out to be with her father. That was a hard thing

to do

> but it is for the best. I want to liquidate my household but need

to

> be stronger to do that. I am positive, I do not think I am ready

to go

> yet but when you get so sick it is hard to keep thinking that way.

> Prayer and faith help tremendously. So does hearing how gracious

> others on the list are like Narice and Donnell. They give me

> tremendous strength. Thank you all.

>

> Jane

>

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In a message dated 11/29/2005 9:50:32 AM Eastern Standard Time,

milyandtheworld@... writes:

Hi Jane,

Why did your doctor think you may had brain mets? What are the signs of

having brain mets, from colon cancer ? Does any one know?

Jane, I am so glad you did not have any brain mets. And I am so sorry you

have been having such a hard time. Can you get any social assistance? I am

praying for you to get better.

love,

lydia

Many patients have no or minimal symptoms related to the tumor, and their

metastases are found during a routine medical evaluation. If there are

symptoms, they depend on the site involved. Brain metastases may cause

headaches,

dizziness, blurred vision, nausea or other symptoms related to the nervous

system.

Diagnosis of Brain Metastases

Studies may include head MRI (magnetic resonance imaging) and head CT

(computed tomography) scanning.

Treatment of Brain Metastases

The treatment of brain metastases depends on factors such as the tumor of

origin, the number and location of lesions within the brain and the extent of

cancer in places other than the brain.

Radiotherapy is the primary treatment for brain metastases. Cranial

irradiation provides palliation to the large majority of patients. Higher doses

may

be considered for patients whose systemic metastases are controlled.

Steroids are usually administered with radiotherapy in patients with

symptoms due to brain metastases; steroids are sometimes administered with

radiotherapy in asymptomatic patients.

Surgical treatment of brain metastases is limited to a few situations, such

as diagnosis in patients with obvious primary tumor. Emergency craniotomy to

relieve increased intracranial pressure is sometimes life-saving. In most

cases, however, treatment with high-dose corticosteroids (dexamethasone in

particular) may eliminate the need for such surgery.

In the rare patient with presentation of a resectable tumor and single brain

metastasis, surgical resection of the solitary brain lesion is indicated

with appropriate postoperative chemotherapy and/or irradiation of the primary

tumor site, and postoperative whole-brain irradiation.

Chemotherapy has a limited role in treating brain metastases. Many

chemotherapy drugs do not cross the blood-brain barrier but can reach malignant

tumors

in the brain, presumably through a local breakdown in the blood-brain

barrier. In some chemotherapy-sensitive tumors like lymphoma, testicular

carcinoma,

small cell lung cancer, and breast carcinoma, chemotherapy can produce

complete radiographic remissions, but its eventual place as a solitary therapy

is

still under evaluation.

Questions To Ask Your Doctor About Brain Metastases

Do any tests need to be done to determine what kind of cancer is involved

and/or its origin?

What treatment do you recommend?

How soon will you start treatment and how long will it last?

What are the side effects of them treatments?

What is the success rate of the treatment?

Will you be prescribing any medications?

What are the side effects?

Will surgery be considered?

If so, what can be expected from surgery?

What is the prognosis?

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Hi All,

Thanks for the replies and suggestions and encouragement. I feel

guilty about complaining about my upcoming CT scan after reading all

the stories and what all of you are going through or have been

through. I want to stay here and am hoping that I will get myself in

an attitude that is more positive than it is now so that maybe I can

help someone else that is faced with this dreaded disease.

I do have a family that has been there for me every step of the way

and I am so thankful for that. I have been in counseling and am on

medication so I am trying my best to learn how to live with the ups

and downs of a cancer diagnosis.

Thanks for listening and am keeping all of you in my prayers.

Sue

>

> It is so difficult sometimes to stay positive. I also had surgery

then

> chemo and then mets and a second cancer was found. I had chemo

again

> that worked pretty well but not completely. I started my third

batch

> of chemo and it has kicked my butt. The first session of cpt-11

was

> not bad but the second was horrible. I am still sick 2 weeks from

> treatment. The diarrhea and vomiting have been awful. I had to go

> twice for fluids then went for a head ct because the dr thought I

had

> brain mets I was so sick. I lost 12 lbs so far. I am able to eat

a

> bit now but still have the diar. and occassional vomiting. I am

due

> for another treatment next week and do not know if I will do it. I

> want to move near my family but can't get packed if I am so sick.

My

> 15yo just moved out to be with her father. That was a hard thing

to do

> but it is for the best. I want to liquidate my household but need

to

> be stronger to do that. I am positive, I do not think I am ready

to go

> yet but when you get so sick it is hard to keep thinking that way.

> Prayer and faith help tremendously. So does hearing how gracious

> others on the list are like Narice and Donnell. They give me

> tremendous strength. Thank you all.

>

> Jane

>

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