Re: Lung Transplant Evaluation BMI Question

[Guest guest]

Ellen

Only...I repeat only....person to tell you is the transplant center

doctor himself. Every center varies a little and every patient is

different. Current stage, other health. These figure in. I doubt 20-30

lbs would exclude you but I see too many people told they don't qualify

by doctors outside the facility or lay persons. Don't take no for an

answer from anyone but the one who decides. Even then you might double

check with another center.

>

> Does anyone know if a transplant is possible if someone is 20 to 30

lbs overweight - or I should say BMI needs lowered 4 points. Especially

if lungs are considered in criticle stage??

>

> Thanks

> ellen

>

[Guest guest]

Thank you so much for your answer. Do all lung transplant hospitals go with the same criteria?

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

Yes and No

There are guidelines and there is a scoring system that is nationwide.

However, each hospital does do things differently. They have different

practices on age and on other conditions. They ever vary as to how they

match donors and recipients and the determination of acceptable matches

and decisions of whether donor parts are usable. On top of that they all

have different numbers of persons waiting and rates of turnover of their

waiting lists, the characteristics of the donor population differs (for

instance motorcycle helmet laws has some impact by state) and different

demographics of donors and recipients. As an example, Shands would have

an older group waiting than would UCLA.

These are hospitals with different philosophies and doctors with

different medical and human perspectives.

>

>

> Thank you so much for your answer. Do all lung transplant hospitals go

with the same criteria?

>

[Guest guest]

Thank you all so much, boy do I feel better......ellen Hot Deals at Dell on Popular Laptops perfect for Back to School

[Guest guest]

Hi Bruce and everyone, my uncle just passed away. his docs said it was from his pf but i do not understand that! he had a infection and went into the hospital and was transfered to u of c here in chicago. they could not figure it out. so then came another hospital and we were told he was coughinfgup brown stuff. he was only diagnosed a year ago and was just put on o2 in feb. sometimes i think when pf is involved the docs over look things. i could be wrong but i feel bitter. i thought u of c was a pf hospital.while waiting i found out a few things 1) do not get dehydrated. i could felt really tight breathing and a nurse said to drink some water because i had'nt all day. 2) we lose water as we sleep so drink before bed. 3) even skipping a couple of days of using my pflex made a difference. 4) dehydration even effects your spirometer reading. i'am sure you

all probably know all this but i needed to talk to other pfers because i'am mad right now . he was 74 years young and full of life and its so unfair to go one month from traveling to death. sorry for this email

sharon p asthma ph 2008

Subject: Re: Lung Transplant Evaluation BMI QuestionTo: Breathe-Support Date: Tuesday, July 28, 2009, 10:54 PM

Yes and NoThere are guidelines and there is a scoring system that is nationwide.However, each hospital does do things differently. They have differentpractices on age and on other conditions. They ever vary as to how theymatch donors and recipients and the determination of acceptable matchesand decisions of whether donor parts are usable. On top of that they allhave different numbers of persons waiting and rates of turnover of theirwaiting lists, the characteristics of the donor population differs (forinstance motorcycle helmet laws has some impact by state) and differentdemographics of donors and recipients. As an example, Shands would havean older group waiting than would UCLA.These are hospitals with different philosophies and doctors withdifferent medical and human perspectives.>>> Thank you so much for your answer. Do all lung transplant hospitals gowith the same criteria?>

[Guest guest]

I am so sorry for your loss, Sharon.

B

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Wednesday, July 29, 2009 9:32:05 AMSubject: Re: Re: Lung Transplant Evaluation BMI Question

Hi Bruce and everyone, my uncle just passed away. his docs said it was from his pf but i do not understand that! he had a infection and went into the hospital and was transfered to u of c here in chicago. they could not figure it out. so then came another hospital and we were told he was coughinfgup brown stuff. he was only diagnosed a year ago and was just put on o2 in feb. sometimes i think when pf is involved the docs over look things. i could be wrong but i feel bitter. i thought u of c was a pf hospital.while waiting i found out a few things 1) do not get dehydrated. i could felt really tight breathing and a nurse said to drink some water because i had'nt all day. 2) we lose water as we sleep so drink before bed. 3) even skipping a couple of days of using my pflex made a difference. 4) dehydration even effects your spirometer reading. i'am sure you all probably know all this but i needed to talk to other pfers because i'am mad right now . he

was 74 years young and full of life and its so unfair to go one month from traveling to death. sorry for this email

sharon p asthma ph 2008

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Lung Transplant Evaluation BMI QuestionTo: Breathe-Support@ yahoogroups. comDate: Tuesday, July 28, 2009, 10:54 PM

Yes and NoThere are guidelines and there is a scoring system that is nationwide.However, each hospital does do things differently. They have differentpractices on age and on other conditions. They ever vary as to how theymatch donors and recipients and the determination of acceptable matchesand decisions of whether donor parts are usable. On top of that they allhave different numbers of persons waiting and rates of turnover of theirwaiting lists, the characteristics of the donor population differs (forinstance motorcycle helmet laws has some impact by state) and differentdemographics of donors and recipients. As an example, Shands would havean older group waiting than would UCLA.These are hospitals with different philosophies and doctors withdifferent medical and human perspectives.>>> Thank you so much for your answer. Do all lung transplant hospitals gowith the same criteria?>

[Guest guest]

Sharon,

First of all I want to tell you that I'm sorry for the loss of your uncle to pulmonary fibrosis. Please accept my condolances. This is a horrible disease and that's what I get angry at.

University of Chicago is indeed a hospital with tremendous knowledge of pulmonary fibrosis. I know it's hard to understand how someone could go from diagnosis to death in only a year but the reality is it happens. Some forms of interstitial lung disease are aggressive and move very rapidly. Some folks decline very quickly. If your uncle indeed had an infection of some sort, possibly pneumonia this undoubtedly contributed to the speed of his decline.

Again Sharon I'm sorry for your loss. You and your family are in my thoughts and prayers.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Wednesday, July 29, 2009 9:32:05 AMSubject: Re: Re: Lung Transplant Evaluation BMI Question

Hi Bruce and everyone, my uncle just passed away. his docs said it was from his pf but i do not understand that! he had a infection and went into the hospital and was transfered to u of c here in chicago. they could not figure it out. so then came another hospital and we were told he was coughinfgup brown stuff. he was only diagnosed a year ago and was just put on o2 in feb. sometimes i think when pf is involved the docs over look things. i could be wrong but i feel bitter. i thought u of c was a pf hospital.while waiting i found out a few things 1) do not get dehydrated. i could felt really tight breathing and a nurse said to drink some water because i had'nt all day. 2) we lose water as we sleep so drink before bed. 3) even skipping a couple of days of using my pflex made a difference. 4) dehydration even effects your spirometer reading. i'am sure you all probably know all this but i needed to talk to other pfers because i'am mad right now . he

was 74 years young and full of life and its so unfair to go one month from traveling to death. sorry for this email

sharon p asthma ph 2008

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Lung Transplant Evaluation BMI QuestionTo: Breathe-Support@ yahoogroups. comDate: Tuesday, July 28, 2009, 10:54 PM

Yes and NoThere are guidelines and there is a scoring system that is nationwide.However, each hospital does do things differently. They have differentpractices on age and on other conditions. They ever vary as to how theymatch donors and recipients and the determination of acceptable matchesand decisions of whether donor parts are usable. On top of that they allhave different numbers of persons waiting and rates of turnover of theirwaiting lists, the characteristics of the donor population differs (forinstance motorcycle helmet laws has some impact by state) and differentdemographics of donors and recipients. As an example, Shands would havean older group waiting than would UCLA.These are hospitals with different philosophies and doctors withdifferent medical and human perspectives.>>> Thank you so much for your answer. Do all lung transplant hospitals gowith the same criteria?>

[Guest guest]

Sharon

I know you feel like it didn't have to be as I would from what you

relate. I don't know the specifics of your father's situation. What I

feel though is that something wasn't hit quickly enough, either in him

getting to the hospital or in what was done at the first hospital. Yes,

he may have died from complications with PF, but doesn't to me sound

like the PF itself killed him just on its own. I think of a PF death as

your sats dropping, needing more oxygen, and ultimately you just can't

get enough. While all the others are appropriately attributable to PF,

they are caused by complications. We can do nothing about most of the PF

deaths. We can about the complication deaths through quick strong

reaction to anything out of whack.

There is no common cold, no sniffles, no slight infection with PF. They

are all serious. Get treatment fast. Strong antibiotics, strong

antiviral. Often in the hospital they'll hit you with their strongest

even while still figuring it out. This is when IV's of prednisone are

often used too.

Now, what you're feeling and my first reaction may all be wrong Sharon.

Maybe the reaction was all quick enough and the treatment right but this

was just one that couldn't be fixed. Which brings me to radical

acceptance of his death. We do the best we can. We try to protect, we

try to treat. Sometimes its just not enough. We feel helpless, even

guilty. We feel angry thinking someone should have done more, even he

should have somehow. I mention the things above to just warn others but

then I turn around and think that we can second guess all we want but it

doesn't change anything. I don't know. None of us do. I hope to run my

PF all the way to its end and die at home on morphine with hospice. But

I can't completely prevent a possible infection or pneumonia and try as

I might something may send me to ER and I may never get home. So, all I

do is my best and live the best as I can as well. If we start second

guessing we go back to every experience in life that might have gotten

us here. But none of that changes where we are. I'm sorry for your loss

but hope you can just accept, do the best you can for yourself, learn

any lessons, but understand as a daughter that we can't always have

answers.

> >

> >

> > Thank you so much for your answer. Do all lung transplant hospitals

go

> with the same criteria?

> >

>

[Guest guest]

sharon

so sorry for your loss

my condolences to both you and your family

this is the place to vent your anger

thank you for your recommendations about staying hydrating and keeping water by your bed

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Lung Transplant Evaluation BMI QuestionTo: Breathe-Support Date: Wednesday, July 29, 2009, 9:32 AM

Hi Bruce and everyone, my uncle just passed away. his docs said it was from his pf but i do not understand that! he had a infection and went into the hospital and was transfered to u of c here in chicago. they could not figure it out. so then came another hospital and we were told he was coughinfgup brown stuff. he was only diagnosed a year ago and was just put on o2 in feb. sometimes i think when pf is involved the docs over look things. i could be wrong but i feel bitter. i thought u of c was a pf hospital.while waiting i found out a few things 1) do not get dehydrated. i could felt really tight breathing and a nurse said to drink some water because i had'nt all day. 2) we lose water as we sleep so drink before bed. 3) even skipping a couple of days of using my pflex made a difference. 4) dehydration even effects your spirometer reading. i'am sure you all probably know all this but i needed to talk to other pfers because i'am mad right now . he

was 74 years young and full of life and its so unfair to go one month from traveling to death. sorry for this email

sharon p asthma ph 2008

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Lung Transplant Evaluation BMI QuestionTo: Breathe-Support@ yahoogroups. comDate: Tuesday, July 28, 2009, 10:54 PM

Yes and NoThere are guidelines and there is a scoring system that is nationwide.However, each hospital does do things differently. They have differentpractices on age and on other conditions. They ever vary as to how theymatch donors and recipients and the determination of acceptable matchesand decisions of whether donor parts are usable. On top of that they allhave different numbers of persons waiting and rates of turnover of theirwaiting lists, the characteristics of the donor population differs (forinstance motorcycle helmet laws has some impact by state) and differentdemographics of donors and recipients. As an example, Shands would havean older group waiting than would UCLA.These are hospitals with different philosophies and doctors withdifferent medical and human perspectives.>>> Thank you so much for your answer. Do all lung transplant hospitals gowith the same criteria?>

[Guest guest]

Sharon, I am so sorry for your loss. Death is a really hard thing to except. It sounds like he had a long full life. This diseaseis such a monster. You and your family are in my prayers. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Hi Bruce and everyone, my uncle just passed away. his docs said it was from his pf but i do not understand that! he had a infection and went into the hospital and was transfered to u of c here in chicago. they could not figure it out. so then came another hospital and we were told he was coughinfgup brown stuff. he was only diagnosed a year ago and was just put on o2 in feb. sometimes i think when pf is involved the docs over look things. i could be wrong but i feel bitter. i thought u of c was a pf hospital.while waiting i found out a few things 1) do not get dehydrated. i could felt really tight breathing and a nurse said to drink some water because i had'nt all day. 2) we lose water as we sleep so drink before bed. 3) even skipping a couple of days of using my pflex made a difference. 4) dehydration even effects your spirometer reading. i'am sure you all probably know all this but i needed to talk to other pfers because i'am mad right now . he was 74 years young and full of life and its so unfair to go one month from traveling to death. sorry for this email sharon p asthma ph 2008 From: Bruce Moreland <brucemoreland (AT) gmail (DOT) com>Subject: Re: Lung Transplant Evaluation BMI QuestionTo: Breathe-Support Date: Tuesday, July 28, 2009, 10:54 PM Yes and NoThere are guidelines and there is a scoring system that is nationwide.However, each hospital does do things differently. They have differentpractices on age and on other conditions. They ever vary as to how theymatch donors and recipients and the determination of acceptable matchesand decisions of whether donor parts are usable. On top of that they allhave different numbers of persons waiting and rates of turnover of theirwaiting lists, the characteristics of the donor population differs (forinstance motorcycle helmet laws has some impact by state) and differentdemographics of donors and recipients. As an example, Shands would havean older group waiting than would UCLA.These are hospitals with different philosophies and doctors withdifferent medical and human perspectives.>>> Thank you so much for your answer. Do all lung transplant hospitals gowith the same criteria?>

[Guest guest]

HEY BRUCE, WHATS with the OLD and Shands together ???????? LOL Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Yes and No There are guidelines and there is a scoring system that is nationwide. However, each hospital does do things differently. They have different practices on age and on other conditions. They ever vary as to how they match donors and recipients and the determination of acceptable matches and decisions of whether donor parts are usable. On top of that they all have different numbers of persons waiting and rates of turnover of their waiting lists, the characteristics of the donor population differs (for instance motorcycle helmet laws has some impact by state) and different demographics of donors and recipients. As an example, Shands would have an older group waiting than would UCLA. These are hospitals with different philosophies and doctors with different medical and human perspectives. > > > Thank you so much for your answer. Do all lung transplant hospitals go with the same criteria? >

[Guest guest]

Peggy

Well, you're one of their young patients.

> >

> >

> > Thank you so much for your answer. Do all lung transplant

> hospitals go

> with the same criteria?

> >

>