Re: Fw: Colorectal Cancer Broadcast-to Priscilla

[Guest guest]

Thanks . You are so right. So often we say that we are tired of

hearing only of breast and prostate cancer. When an opportunity is created for

us we must seize it and be heard. And when it is not we must demand the

opportunity to be heard. Breast cancer is talked about because breast cancer

advocates demanded it. Loudly. In the face of a great deal of meaness towards

them. And without an obvious hope of being heard. But they were relentless.

And now, they are reaping the rewards of what they sowed. Don't think for a

minute that they didn't work hard and suffer greatly to get to this point. I

have met many of them and have heard the sorrow in their hearts from the hateful

things that were done to them and said to them as they fought for the lives of

so many woman dying of breast cancer. To stand up for something is to become a

target. Always has been. There is something that causes people - as a group -

to act horribly when someone stands up for something.

But if we want change, we must stand up.

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or save

thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

Re: Fw: Colorectal Cancer Broadcast-to

Priscilla

Priscilla:

Thank you SOOO MUCH for this information. You bet, I will call in or at

least listen. I live here in Southern California and the group who put this

together is in my area. I had not heard of them before so I am happy to know

about this.

In addition, for those of you who may not know, Dr. Heinz Lenz (who will be

speaking and taking questions) is one of a handful of stage 4 colon cancer

gurus in the entire country. He is a genius. He works out of Norris

Cancer

Center here at U.S.C.. I did a lot of research on him and had an appointment

to see him but had to get into surgery before my appointment time. I have

met many people who travel from other states to see him.

In the meantime, I learned that his equivalent guru on the westside of the

L.A. area is Lee Rosen, the PI on the Avastin trials. He was at UCLA and has

now opened his own group, Premier Oncology, in Santa . I went with Lee

because it is so much easier to get to Santa from my house. With

traffic in LA, it can take forever to drive the freeways to U.S.C. which is

downtown. (I graduated from USC). Also, since I am in my initial or first

phase

chemo, Dr. Lenz would be giving me the same chemo as I receive from Dr.

Rosen.

Anyway, I think this is something we should all participate in.

in California

In a message dated 10/16/2005 11:00:09 PM Pacific Standard Time,

psavary@... writes:

THIS IS VERY IMPORTANT! We have an opportunity to be heard nationwide. I

will be calling in and talking about ProjectMARCH and why we are gathering

to demand screening for all adults starting at age 18 and regardless of

insurance or not.

Please call in. Let your voice be heard. The only way colon cancer issues

will ever rise to the top is if we seize opportunity when it arrives. Do

you want to continue to just hear about other cancers most of the time? Do

you want to stand up for those here who were diagnosed under the age of 60?

(Because if you were diagnosed in your 50s it was too late - you needed to be

screened before age 50 to NOT get this cancer.)

Will you make the call?

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or

save thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

______________________________________________________________________________

_______

Dear Colorectal Cancer Advocates,

On Sunday, October 23rd, The Group Room radio program will be devoted to a

discussion of colorectal cancer. Joining us in-studio will be Dr. Heinz-f

Lenz, Associate Professor of Medicine, Director, GI Oncology Program,

Scientific Director, Cancer Genetics, USC Keck School of Medicine, USC/Norris

Comprehensive Cancer Center. Calling into the show from Massachusetts

General

Hospital will be P. MD, Clinical Director, Tucker Gosnell Center

for

Gastrointestinal Cancers Massachusetts General Hospital Cancer Center,

Assistant in Medicine, Massachusetts General Hospital and Assistant Professor

of

Medicine, Harvard Medical School.

I am writing to let you know that we have highlighted your organization on

our web page (www.vitaloptions.org) in the Advocacy In Action section for

this

program. We gladly promote your organizations and your events on both our

radio show and our website because you have your fingers on the pulse of the

issues colorectal cancer patients. I am urging you to promote this show to

your

members. We hope you will consider a reciprocal link on your web site as

well. By linking to our web site, those visiting your web site will find the

radio stations in your area with which to listen to the Colorectal Cancer

Awareness show. We are also broadcast live on XM Satellite Radio on the ASK

channel, as well as streaming live via internet. In addition, we also archive

all

shows on the website fro future reference.

More important, this is really an opportunity for you and your constituents

to call in and be sure that we are addressing those issues that really matter

to colorectal and other cancer patients and survivors. We want to involve

you and your members to the fullest degree in this nationwide dialogue; this

is

a valuable forum that we hope you will take advantage of.

Your cooperation will be truly appreciated!

Thank you,

Felice

_____________________________________________

_____________________________________________

Felice Bachrach

Vital Options International and The Group Room

To Facilitate a Global Cancer Dialogue

Advocacy Relations Manager

4419 Coldwater Canyon Ave.

Studio City, Ca 91604

U.S.A.

Ph: 1-

Email: fbachrach@...

Website: www.vitaloptions.org

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