Re: Re: Just made a photo album

[Guest guest]

I've been on Prednisone 4-5 weeks and I've lost 8lbs! It keeps me wired all the time, I have increased anxiety and worry. I feel like I do everything in a rush, like I'm under some kind of pressure and I get spun-up about stuff or irritated. I talk faster and more and I can't sleep without taking a sleeping pill. I like the weight loss but don't like the crazy mania I feel. Sometimes in the afternoon I'll start to feel calm and sleepy only to get all spun-up again an hour or two later. It's crazy! C_53_IPF_5/09Washington-the-Evergreen-stateTo: Breathe-Support Sent: Wednesday, August 12, 2009 7:46:15 PMSubject: Re: Re: Just made a photo album

I've gained 35 pounds since January and I now have diabetes. I hate prednisone.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia IdahoFrom: Drisana Merry <drisanamerry@ yahoo.com>Subject: Re: Just made a photo albumTo: Breathe-Support@ yahoogroups. comDate: Wednesday, August 12, 2009, 12:38 PM

Thank you. They are my life savers. Brittany the mama has saved my live at least three times and they all know when I stop breathing to go get dad...now to teach them how to dial 911.

She knows sign language well did when she was growing up (she is 18 or 19 years old now) I taught her sign language but she only rmembers sit down and out and NO..

I was ravanious on the predisone did any of the rest of you do that? I ate almost an entire ten inch chicken pot pie I had made that usually lasts us for several meals (freeze portions and eat small fresh) my poor husband only got a very very small piece of it...

hugs and blessings and thank you all for making me feel welcome and sharing all that you have learned.

merry

[Guest guest]

How much prednisone are u taking? What other meds?I am taking 10 mg prednisone 3000 mg Cellcept/day instead of jumpy wired I am very tired all the time could sleep anytimeStrange how every med effects each of us so differentlyDorothy - fayetteville, GA7/05 Vats7/05 UIPSent via BlackBerry by AT&TFrom: worth Date: Thu, 13 Aug 2009 19:22:46 -0700 (PDT)To: <Breathe-Support >Subject: Re: Re: Just made a photo album I've been on Prednisone 4-5 weeks and I've lost 8lbs! It keeps me wired all the time, I have increased anxiety and worry. I feel like I do everything in a rush, like I'm under some kind of pressure and I get spun-up about stuff or irritated. I talk faster and more and I can't sleep without taking a sleeping pill. I like the weight loss but don't like the crazy mania I feel. Sometimes in the afternoon I'll start to feel calm and sleepy only to get all spun-up again an hour or two later. It's crazy! C_53_IPF_5/09Washington-the-Evergreen-stateFrom: Beverley Joy <sparrow_98367 (AT) yahoo (DOT) com>To: Breathe-Support Sent: Wednesday, August 12, 2009 7:46:15 PMSubject: Re: Re: Just made a photo album I've gained 35 pounds since January and I now have diabetes. I hate prednisone.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia IdahoFrom: Drisana Merry <drisanamerry@ yahoo.com>Subject: Re: Just made a photo albumTo: Breathe-Support@ yahoogroups. comDate: Wednesday, August 12, 2009, 12:38 PM Thank you. They are my life savers. Brittany the mama has saved my live at least three times and they all know when I stop breathing to go get dad...now to teach them how to dial 911. She knows sign language well did when she was growing up (she is 18 or 19 years old now) I taught her sign language but she only rmembers sit down and out and NO.. I was ravanious on the predisone did any of the rest of you do that? I ate almost an entire ten inch chicken pot pie I had made that usually lasts us for several meals (freeze portions and eat small fresh) my poor husband only got a very very small piece of it... hugs and blessings and thank you all for making me feel welcome and sharing all that you have learned. merry

[Guest guest]

Hi Dorothy!I am on 40mg! The other two are Acetylcysteine (Nac) and Azathioprine (generic would be Imuran). Maybe its the combination of all the drugs. My kids said, "mom its like you're high all the time." They are falling asleep while I'm chatting on and on and on....talking faster than a speeding bullet. My doc is on vacation until the 24th and I have my appt. on the 28th. I hope he gets me off this stuff! C_53_IPF_5/09Washington-the-Evergreen-stateTo: Breathe-Support Sent: Thursday, August 13, 2009 7:57:46 PMSubject: Re: Re: Just made a photo album

How much prednisone are u taking? What other meds?I am taking 10 mg prednisone 3000 mg Cellcept/day instead of jumpy wired I am very tired all the time could sleep anytimeStrange how every med effects each of us so differentlyDorothy - fayetteville, GA7/05 Vats7/05 UIPSent via BlackBerry by AT & TFrom: worth Date: Thu, 13 Aug 2009 19:22:46 -0700 (PDT)To: <Breathe-Support@ yahoogroups. com>Subject: Re: Re: Just made a photo album I've been on Prednisone 4-5 weeks and I've lost 8lbs! It keeps me wired all the time, I have increased anxiety and worry. I feel like I do everything in a rush, like I'm

under some kind of pressure and I get spun-up about stuff or irritated. I talk faster and more and I can't sleep without taking a sleeping pill. I like the weight loss but don't like the crazy mania I feel. Sometimes in the afternoon I'll start to feel calm and sleepy only to get all spun-up again an hour or two later. It's crazy! C_53_IPF_5/09Washington-the- Evergreen- stateFrom: Beverley Joy <sparrow_98367@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, August 12, 2009 7:46:15 PMSubject: Re: Re: Just made a photo album I've gained 35 pounds since January and I now have diabetes. I hate prednisone.Beverley Joy,71,

UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia IdahoFrom: Drisana Merry <drisanamerry@ yahoo.com>Subject: Re: Just made a photo albumTo: Breathe-Support@ yahoogroups. comDate: Wednesday, August 12, 2009, 12:38 PM Thank you. They are my life savers. Brittany the mama has saved my live at least three times and they all know when I stop breathing to go get dad...now to teach them how to dial 911. She knows sign language well did when she was growing up (she is 18 or 19 years old now) I taught her sign language but she only rmembers sit down and out and NO.. I was

ravanious on the predisone did any of the rest of you do that? I ate almost an entire ten inch chicken pot pie I had made that usually lasts us for several meals (freeze portions and eat small fresh) my poor husband only got a very very small piece of it... hugs and blessings and thank you all for making me feel welcome and sharing all that you have learned. merry

[Guest guest]

I've been on 40 mg of prednisone since Sunday. Feeling "better", more energetic--but edgy, slightly nauseous and have a slight headache much of the time.

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Thursday, August 13, 2009 10:22:46 PMSubject: Re: Re: Just made a photo album

I've been on Prednisone 4-5 weeks and I've lost 8lbs! It keeps me wired all the time, I have increased anxiety and worry. I feel like I do everything in a rush, like I'm under some kind of pressure and I get spun-up about stuff or irritated. I talk faster and more and I can't sleep without taking a sleeping pill. I like the weight loss but don't like the crazy mania I feel. Sometimes in the afternoon I'll start to feel calm and sleepy only to get all spun-up again an hour or two later. It's crazy!

C_53_IPF_5/09Washington-the- Evergreen- state

From: Beverley Joy <sparrow_98367@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, August 12, 2009 7:46:15 PMSubject: Re: Re: Just made a photo album

I've gained 35 pounds since January and I now have diabetes. I hate prednisone.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho

From: Drisana Merry <drisanamerry@ yahoo.com>Subject: Re: Just made a photo albumTo: Breathe-Support@ yahoogroups. comDate: Wednesday, August 12, 2009, 12:38 PM

Thank you. They are my life savers. Brittany the mama has saved my live at least three times and they all know when I stop breathing to go get dad...now to teach them how to dial 911.She knows sign language well did when she was growing up (she is 18 or 19 years old now) I taught her sign language but she only rmembers sit down and out and NO..I was ravanious on the predisone did any of the rest of you do that? I ate almost an entire ten inch chicken pot pie I had made that usually lasts us for several meals (freeze portions and eat small fresh) my poor husband only got a very very small piece of it...hugs and blessings and thank you all for making me feel welcome and sharing all that you have learned.merry

[Guest guest]

Hi Barbara,My first couple of weeks on prednisone gave me an increased sense of well-being, like, hey, I'm gonna be okay and I do feel like I breath better and cough less. But now as the weeks pile up, I feel like a manic-depressive person and I've also noticed a bruise or cut takes a long time to heal. No stomach problems. I also started having foot, leg, hip and finger cramping, but I started taking my multi-vitamins and extra calcium and that has improved.What's really scary is what is it doing internally that we don't know about yet? I have weekly blood tests too, to check for kidney failure, do you? C_53_IPF_5/09Washington-the-Evergreen-stateTo: Breathe-Support Sent: Thursday, August 13, 2009 8:19:44 PMSubject: Re: Re: Just made a photo

album

I've been on 40 mg of prednisone since Sunday. Feeling "better", more energetic--but edgy, slightly nauseous and have a slight headache much of the time.

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

From: worth <hope2thend (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, August 13, 2009 10:22:46 PMSubject: Re: Re: Just made a photo album

I've been on Prednisone 4-5 weeks and I've lost 8lbs! It keeps me wired all the time, I have increased anxiety and worry. I feel like I do everything in a rush, like I'm under some kind of pressure and I get spun-up about stuff or irritated. I talk faster and more and I can't sleep without taking a sleeping pill. I like the weight loss but don't like the crazy mania I feel. Sometimes in the afternoon I'll start to feel calm and sleepy only to get all spun-up again an hour or two later. It's crazy!

C_53_IPF_5/09Washington-the- Evergreen- state

From: Beverley Joy <sparrow_98367@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, August 12, 2009 7:46:15 PMSubject: Re: Re: Just made a photo album

I've gained 35 pounds since January and I now have diabetes. I hate prednisone.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho

From: Drisana Merry <drisanamerry@ yahoo.com>Subject: Re: Just made a photo albumTo: Breathe-Support@ yahoogroups. comDate: Wednesday, August 12, 2009, 12:38 PM

Thank you. They are my life savers. Brittany the mama has saved my live at least three times and they all know when I stop breathing to go get dad...now to teach them how to dial 911.She knows sign language well did when she was growing up (she is 18 or 19 years old now) I taught her sign language but she only rmembers sit down and out and NO..I was ravanious on the predisone did any of the rest of you do that? I ate almost an entire ten inch chicken pot pie I had made that usually lasts us for several meals (freeze portions and eat small fresh) my poor husband only got a very very small piece of it...hugs and blessings and thank you all for making me feel welcome and sharing all that you have learned.merry

[Guest guest]

- just started taking this stuff on Sunday. My first follow-up appt is on Aug 18th, which will be two weeks and a day taking it. I don't know yet what tests they will do. I have been very resistant to the idea of taking prednisone, but got ganged up on by the local rheumey, the pulmodude (at Emory/Atl), my husband, and another doctor training with the pulmodude. We shall see how it goes - I really don't want to be taking it.

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Thursday, August 13, 2009 11:31:18 PMSubject: Re: Re: Just made a photo album

Hi Barbara,My first couple of weeks on prednisone gave me an increased sense of well-being, like, hey, I'm gonna be okay and I do feel like I breath better and cough less. But now as the weeks pile up, I feel like a manic-depressive person and I've also noticed a bruise or cut takes a long time to heal. No stomach problems. I also started having foot, leg, hip and finger cramping, but I started taking my multi-vitamins and extra calcium and that has improved.What's really scary is what is it doing internally that we don't know about yet? I have weekly blood tests too, to check for kidney failure, do you?

C_53_IPF_5/09Washington-the- Evergreen- state

From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, August 13, 2009 8:19:44 PMSubject: Re: Re: Just made a photo album

I've been on 40 mg of prednisone since Sunday. Feeling "better", more energetic--but edgy, slightly nauseous and have a slight headache much of the time.

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

From: worth <hope2thend (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, August 13, 2009 10:22:46 PMSubject: Re: Re: Just made a photo album

I've been on Prednisone 4-5 weeks and I've lost 8lbs! It keeps me wired all the time, I have increased anxiety and worry. I feel like I do everything in a rush, like I'm under some kind of pressure and I get spun-up about stuff or irritated. I talk faster and more and I can't sleep without taking a sleeping pill. I like the weight loss but don't like the crazy mania I feel. Sometimes in the afternoon I'll start to feel calm and sleepy only to get all spun-up again an hour or two later. It's crazy!

C_53_IPF_5/09Washington-the- Evergreen- state

From: Beverley Joy <sparrow_98367@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, August 12, 2009 7:46:15 PMSubject: Re: Re: Just made a photo album

I've gained 35 pounds since January and I now have diabetes. I hate prednisone.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho

From: Drisana Merry <drisanamerry@ yahoo.com>Subject: Re: Just made a photo albumTo: Breathe-Support@ yahoogroups. comDate: Wednesday, August 12, 2009, 12:38 PM

Thank you. They are my life savers. Brittany the mama has saved my live at least three times and they all know when I stop breathing to go get dad...now to teach them how to dial 911.She knows sign language well did when she was growing up (she is 18 or 19 years old now) I taught her sign language but she only rmembers sit down and out and NO..I was ravanious on the predisone did any of the rest of you do that? I ate almost an entire ten inch chicken pot pie I had made that usually lasts us for several meals (freeze portions and eat small fresh) my poor husband only got a very very small piece of it...hugs and blessings and thank you all for making me feel welcome and sharing all that you have learned.merry

[Guest guest]

, The NAC is for the mucous and coughing. The blood test is because of the Imuran. I am only on 10mg of Prednisone. I can't imagine what a larger dose would do to me.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho

From: Drisana Merry <drisanamerry@ yahoo.com>Subject: Re: Just made a photo albumTo: Breathe-Support@ yahoogroups. comDate: Wednesday, August 12, 2009, 12:38 PM

Thank you. They are my life savers. Brittany the mama has saved my live at least three times and they all know when I stop breathing to go get dad...now to teach them how to dial 911.She knows sign language well did when she was growing up (she is 18 or 19 years old now) I taught her sign language but she only rmembers sit down and out and NO..I was ravanious on the predisone did any of the rest of you do that? I ate almost an entire ten inch chicken pot pie I had made that usually lasts us for several meals (freeze portions and eat small fresh) my poor husband only got a very very small piece of it...hugs and blessings and thank you all for making me feel welcome and sharing all that you have learned.merry

[Guest guest]

barb

pred is your best friend and worst enemy at the same time

glad i am on it

things would be a lot worse if i were not on it

i know several people who have been on pred for many years for other illnesses

the positives of the pred outweigh the side effects for them

they might be dead (exageration?) without the pred

bless the people who invented it

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Just made a photo albumTo: Breathe-Support Date: Thursday, August 13, 2009, 11:39 PM

- just started taking this stuff on Sunday. My first follow-up appt is on Aug 18th, which will be two weeks and a day taking it. I don't know yet what tests they will do. I have been very resistant to the idea of taking prednisone, but got ganged up on by the local rheumey, the pulmodude (at Emory/Atl), my husband, and another doctor training with the pulmodude. We shall see how it goes - I really don't want to be taking it.

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

From: worth <hope2thend (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, August 13, 2009 11:31:18 PMSubject: Re: Re: Just made a photo album

Hi Barbara,My first couple of weeks on prednisone gave me an increased sense of well-being, like, hey, I'm gonna be okay and I do feel like I breath better and cough less. But now as the weeks pile up, I feel like a manic-depressive person and I've also noticed a bruise or cut takes a long time to heal. No stomach problems. I also started having foot, leg, hip and finger cramping, but I started taking my multi-vitamins and extra calcium and that has improved.What's really scary is what is it doing internally that we don't know about yet? I have weekly blood tests too, to check for kidney failure, do you?

C_53_IPF_5/09Washington-the- Evergreen- state

From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, August 13, 2009 8:19:44 PMSubject: Re: Re: Just made a photo album

I've been on 40 mg of prednisone since Sunday. Feeling "better", more energetic--but edgy, slightly nauseous and have a slight headache much of the time.

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

From: worth <hope2thend (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, August 13, 2009 10:22:46 PMSubject: Re: Re: Just made a photo album

I've been on Prednisone 4-5 weeks and I've lost 8lbs! It keeps me wired all the time, I have increased anxiety and worry. I feel like I do everything in a rush, like I'm under some kind of pressure and I get spun-up about stuff or irritated. I talk faster and more and I can't sleep without taking a sleeping pill. I like the weight loss but don't like the crazy mania I feel. Sometimes in the afternoon I'll start to feel calm and sleepy only to get all spun-up again an hour or two later. It's crazy!

C_53_IPF_5/09Washington-the- Evergreen- state

From: Beverley Joy <sparrow_98367@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, August 12, 2009 7:46:15 PMSubject: Re: Re: Just made a photo album

I've gained 35 pounds since January and I now have diabetes. I hate prednisone.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho

From: Drisana Merry <drisanamerry@ yahoo.com>Subject: Re: Just made a photo albumTo: Breathe-Support@ yahoogroups. comDate: Wednesday, August 12, 2009, 12:38 PM

Thank you. They are my life savers. Brittany the mama has saved my live at least three times and they all know when I stop breathing to go get dad...now to teach them how to dial 911.She knows sign language well did when she was growing up (she is 18 or 19 years old now) I taught her sign language but she only rmembers sit down and out and NO..I was ravanious on the predisone did any of the rest of you do that? I ate almost an entire ten inch chicken pot pie I had made that usually lasts us for several meals (freeze portions and eat small fresh) my poor husband only got a very very small piece of it...hugs and blessings and thank you all for making me feel welcome and sharing all that you have

learned.merry

[Guest guest]

He is on vacation til the 24th. When he put me on it he said he wanted to see the results of my PFT after six weeks of Prednisone. My PFT is scheduled the same day I see him on the 28th. C_53_IPF_5/09Washington-the-Evergreen-stateTo: Breathe-Support Sent: Friday, August 14, 2009 8:58:02 AMSubject: Re: Re: Just made a photo album

lisa

call your doc

maybe they can start lowering the dose

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Drisana Merry <drisanamerry@ yahoo.com>Subject: Re: Just made a photo albumTo: Breathe-Support@ yahoogroups. comDate: Wednesday, August 12, 2009, 12:38 PM

Thank you. They are my life savers. Brittany the mama has saved my live at least three times and they all know when I stop breathing to go get dad...now to teach them how to dial 911.She knows sign language well did when she was growing up (she is 18 or 19 years old now) I taught her sign language but she only rmembers sit down and out and NO..I was ravanious on the predisone did any of the rest of you do that? I ate almost an entire ten inch chicken pot pie I had made that usually lasts us for several meals (freeze portions and eat small fresh) my poor husband only got a very very small piece of it...hugs and blessings and thank you all for making me feel welcome and sharing all that you have learned.merry

[Guest guest]

Well then, the NAC must not be working all that great either. I have mucous and coughing everyday! C_53_IPF_5/09Washington-the-Evergreen-stateTo: Breathe-Support Sent: Thursday, August 13, 2009 10:22:28 PMSubject: Re: Re: Just made a photo album

, The NAC is for the mucous and coughing. The blood test is because of the Imuran. I am only on 10mg of Prednisone. I can't imagine what a larger dose would do to me.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho

From: Drisana Merry <drisanamerry@ yahoo.com>Subject: Re: Just made a photo albumTo: Breathe-Support@ yahoogroups. comDate: Wednesday, August 12, 2009, 12:38 PM

Thank you. They are my life savers. Brittany the mama has saved my live at least three times and they all know when I stop breathing to go get dad...now to teach them how to dial 911.She knows sign language well did when she was growing up (she is 18 or 19 years old now) I taught her sign language but she only rmembers sit down and out and NO..I was ravanious on the predisone did any of the rest of you do that? I ate almost an entire ten inch chicken pot pie I had made that usually lasts us for several meals (freeze portions and eat small fresh) my poor husband only got a very very small piece of it...hugs and blessings and thank you all for making me feel welcome and sharing all that you have learned.merry