Re: PAH

[Guest guest]

Joy,

Welcome back! I'm so sorry to hear about the development of PAH for you. It stinks! Are they doing anything specific to treat it?

I am happy however that you've found a pulmo that you like and feel comfortable with. That's a huge accomplishment.

Hope you stick around. Your posts were always so honest and straitforward. I've missed you!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, June 12, 2009 8:03:49 PMSubject: PAH

I've been away fromt he group for some time as I was doing okay. Now, I'm back on 02, and a new disease...PAH.So, can anyone with this disease tell me how they are doing with it? I was just diagnosed with it. My top # was 43, 12 pts up from my last eco over a year ago.I no longer see Raghu - I didn't feel he was very receptive and helpful for me. I now see Lynn Keenan at NW Hosp ... she is great!Thanks, Joy in Seattle

[Guest guest]

Joy....I missed you when you left the board although we have kept in touch privately...

It's good to have you back. I can't help with any info on the new dx. All I know is what I've learned here but you know others will respond.

I'm sorry about this new dx in your life.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

PAH

I've been away fromt he group for some time as I was doing okay. Now, I'm back on 02, and a new disease...PAH.So, can anyone with this disease tell me how they are doing with it? I was just diagnosed with it. My top # was 43, 12 pts up from my last eco over a year ago.I no longer see Raghu - I didn't feel he was very receptive and helpful for me. I now see Lynn Keenan at NW Hosp ... she is great!Thanks, Joy in Seattle