Guest guest Posted June 25, 2009 Report Share Posted June 25, 2009 Beverly Joy, I've been taking both Prednisone and Imuran for 4 years.... The Prednisone dose went from 40 to 10 over that time and the Imuran went from 100 to 50. I I have most of the miserable side effects of Prednisone and none of the problems of Imuran. I get monthly bloodwork because of the Imuran and Prednisone. But I HAVE BEEN STABLE since DX!!! I will always be on these meds and many others to counteract the side effects...but I'M HERE!!!! Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Beverley Joy wrote: Hello everyone, I went to see my pulmo doc today. I just went to find out for sure what kind of PF I have. I have a combination of UIP and NSIP. My lungs have gotten worse in the last two months. He took a blood test to see if I can take Imuran. I guess that I can add Imuran to the Prednisone or up the dosage of Prednisone. Since I am having so many side affects from the Prednisone I think that he thinks that I should take the Imuran but he doesn't like giving it to anyone because it has worse side affect. Does anyone have any suggestions about this? Beverley Joy, 71, UIP,NSIP, Sjogren's, Fibromyalgia. Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2009 Report Share Posted June 25, 2009 Beverly Joy, I forgot to say I also have NSIP...just that but that's more than enough!!! Z fibriotic NSIP/05 Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Beverley Joy wrote: Hello everyone, I went to see my pulmo doc today. I just went to find out for sure what kind of PF I have. I have a combination of UIP and NSIP. My lungs have gotten worse in the last two months. He took a blood test to see if I can take Imuran. I guess that I can add Imuran to the Prednisone or up the dosage of Prednisone. Since I am having so many side affects from the Prednisone I think that he thinks that I should take the Imuran but he doesn't like giving it to anyone because it has worse side affect. Does anyone have any suggestions about this? Beverley Joy, 71, UIP,NSIP, Sjogren's, Fibromyalgia. Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2009 Report Share Posted June 25, 2009 , Thank you for the info. I am only on 10mg Prednisone now. I wasn't even due for an appointment until October but I called and asked exactly what I had. They wouldn't tell me on the phone and my doctor is moving to the coast next month so they made me an appointment. When he found out that I had to turn up my oxygen he did a breathing test and found out that I am worse. Well, maybe if I get on the Imuran I can get stable.Beverley Joy, 71, UIP,NSIP, Sjogren's, Fibromyalgia. Idaho Hello everyone, I went to see my pulmo doc today. I just went to find out for sure what kind of PF I have. I have a combination of UIP and NSIP. My lungs have gotten worse in the last two months. He took a blood test to see if I can take Imuran. I guess that I can add Imuran to the Prednisone or up the dosage of Prednisone. Since I am having so many side affects from the Prednisone I think that he thinks that I should take the Imuran but he doesn't like giving it to anyone because it has worse side affect. Does anyone have any suggestions about this? Beverley Joy, 71, UIP,NSIP, Sjogren's, Fibromyalgia. Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2009 Report Share Posted June 25, 2009 , He told me that the UIP was a lot worse than the NSIP. I don't know how the two work together.Beverley Joy, 71, UIP,NSIP, Sjogren's, Fibromyalgia. Idaho Hello everyone, I went to see my pulmo doc today. I just went to find out for sure what kind of PF I have. I have a combination of UIP and NSIP. My lungs have gotten worse in the last two months. He took a blood test to see if I can take Imuran. I guess that I can add Imuran to the Prednisone or up the dosage of Prednisone. Since I am having so many side affects from the Prednisone I think that he thinks that I should take the Imuran but he doesn't like giving it to anyone because it has worse side affect. Does anyone have any suggestions about this? Beverley Joy, 71, UIP,NSIP, Sjogren's, Fibromyalgia. Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2009 Report Share Posted June 26, 2009 Beverely Jerry had been on prednisone for about 30 years for a different disease a couple of years ago his GI doc put him on Imuran and was able to get him off of prednisone because of the imuran, he goes for a blood test every month -- I'm not sure what they are testing -- maybe liver functions it's a trade off -- whatever works with the least side effects -- consider the alternatives Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: bad newsTo: Breathe-Support Date: Thursday, June 25, 2009, 10:33 PM Hello everyone,I went to see my pulmo doc today. I just went to find out for sure what kind of PF I have. I have a combination of UIP and NSIP. My lungs have gotten worse in the last two months. He took a blood test to see if I can take Imuran. I guess that I can add Imuran to the Prednisone or up the dosage of Prednisone. Since I am having so many side affects from the Prednisone I think that he thinks that I should take the Imuran but he doesn't like giving it to anyone because it has worse side affect. Does anyone have any suggestions about this?Beverley Joy, 71, UIP,NSIP, Sjogren's, Fibromyalgia. Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2009 Report Share Posted June 26, 2009 BJ... gosh I'm sorry to hear your dx. I have no suggestions about the drugs but someone will reply who does. I'm going to UWMC in Oct. I'm anxious/apprehensive to find just what kind of PF I have...... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! bad news Hello everyone,I went to see my pulmo doc today. I just went to find out for sure what kind of PF I have. I have a combination of UIP and NSIP. My lungs have gotten worse in the last two months. He took a blood test to see if I can take Imuran. I guess that I can add Imuran to the Prednisone or up the dosage of Prednisone. Since I am having so many side affects from the Prednisone I think that he thinks that I should take the Imuran but he doesn't like giving it to anyone because it has worse side affect. Does anyone have any suggestions about this?Beverley Joy, 71, UIP,NSIP, Sjogren's, Fibromyalgia. Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2009 Report Share Posted June 26, 2009 /BJ....for ...do you have the weight gain so many seem to have as a side effect? MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: bad news Beverly Joy, I've been taking both Prednisone and Imuran for 4 years....The Prednisone dose went from 40 to 10 over that time and the Imuran went from 100 to 50. I I have most of the miserable side effects of Prednisone and none of the problems of Imuran. I get monthlybloodwork because of the Imuran and Prednisone. But I HAVE BEEN STABLE since DX!!!I will always be on these meds and many others to counteract the side effects...but I'M HERE!!!! Z 65, fibriotic NSIP/05/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Beverley Joy wrote: Hello everyone,I went to see my pulmo doc today. I just went to find out for sure what kind of PF I have. I have a combination of UIP and NSIP. My lungs have gotten worse in the last two months. He took a blood test to see if I can take Imuran. I guess that I can add Imuran to the Prednisone or up the dosage of Prednisone. Since I am having so many side affects from the Prednisone I think that he thinks that I should take the Imuran but he doesn't like giving it to anyone because it has worse side affect. Does anyone have any suggestions about this?Beverley Joy, 71, UIP,NSIP, Sjogren's, Fibromyalgia. Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2009 Report Share Posted June 26, 2009  I wonder how they can tell the two apart! ? MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re: bad news , He told me that the UIP was a lot worse than the NSIP. I don't know how the two work together.Beverley Joy, 71, UIP,NSIP, Sjogren's, Fibromyalgia. Idaho Hello everyone,I went to see my pulmo doc today. I just went to find out for sure what kind of PF I have. I have a combination of UIP and NSIP. My lungs have gotten worse in the last two months. He took a blood test to see if I can take Imuran. I guess that I can add Imuran to the Prednisone or up the dosage of Prednisone. Since I am having so many side affects from the Prednisone I think that he thinks that I should take the Imuran but he doesn't like giving it to anyone because it has worse side affect. Does anyone have any suggestions about this?Beverley Joy, 71, UIP,NSIP, Sjogren's, Fibromyalgia. Idaho Quote Link to comment Share on other sites More sharing options...
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