Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Hi Beth, I was diagnosed in May when I went to the doctors because of coughing and breathlessness. My primary care physician did a chest x-ray, then a cat scan and diagnosed IPF and referred me to a Pulmonary Specialist. He ordered a bunch of blood tests to rule out RA or some other auto-immune disease going on and ordered a high-resolution cat scan, a breathing function test, and a bronchoscopy. He showed me the scarring and honeycombing on the HS catscan. He did a flush of my lungs and biopsy during the bronchoscopy. He said the results of that showed low-grade inflammation, and confirmed IPF. He said the low inflammation meant it was growing at a slow rate. He did mention that I would probably be referred to the UWMC at some point and listed the doctors name on my visit summary. He didn't talk about testing for connective tissue disease or hypersensitivity pneumonitis? I don't know what that is. What does ILD department stand for? Almost 3 years ago, in August 2006 I went to urgent care for coughing and breathlessness and they did a chest x-ray and diagnosed pneumonia, put me on an antibiotic and I thought that was it. I started experiencing the same symptoms about a year ago but thought it was because of my smoking and put off going to the doctor. But the PS doctor reviewed that x-ray and said I should have been followed up because it looked almost the same as my x-ray in May 09 revealing fibrosis. So, I guess I've been living with it untreated for a few years. C IPF 5/09 > > From: lisac_wa <hope2thend@ ...> > Subject: Prednisone - side effects > To: Breathe-Support@ yahoogroups. com > Date: Tuesday, July 21, 2009, 9:53 AM > > > > Good morning, > I've been on 40mg prednisone for over a week now and didn't mind how it made me feel, like I was well again! But what are we supposed to do about sleep? > > Thanks, > C 53 IPF 5/09 > > --- End forwarded message --- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 Hi Bruce! Thanks for your input and everyone elses. I don't know why my doc would say the UWMC eval could be later. But I'm definitely going to talk to him about it TOMORROW. C > > > > > > > > From: lisac_wa <hope2thend@ ...> > > > > Subject: Prednisone - side effects > > > > To: Breathe-Support@ yahoogroups. com > > > > Date: Tuesday, July 21, 2009, 9:53 AM > > > > > > > > > > > > > > > > Good morning, > > > > I've been on 40mg prednisone for over a week now and didn't mind > how > > it made me feel, like I was well again! But what are we supposed to do > > about sleep? > > > > > > > > Thanks, > > > > C 53 IPF 5/09 > > > > > > > > --- End forwarded message --- > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2009 Report Share Posted July 21, 2009 yes, I have Group Health. > > > > > > > > > > From: lisac_wa <hope2thend@ ...> > > > > > Subject: Prednisone - side effects > > > > > To: Breathe-Support@ yahoogroups. com > > > > > Date: Tuesday, July 21, 2009, 9:53 AM > > > > > > > > > > > > > > > > > > > > Good morning, > > > > > I've been on 40mg prednisone for over a week now and didn't mind > > how > > > it made me feel, like I was well again! But what are we supposed to do > > > about sleep? > > > > > > > > > > Thanks, > > > > > C 53 IPF 5/09 > > > > > > > > > > --- End forwarded message --- > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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