Re: Daddy's First Chemo

[Guest guest]

Nothing to help but a comment on fatigue. After chemo the low point in your

blood count is 3-4 days after treatment so that is when fatigue is most likely

to occur. From that point you hope your blood builds back for the next

treatment. Unfortunately you appear to have more side effects than most but oncs

are pretty good about handling the individual side effects if you tell them

in detail what they are. I kept of log of how and what I felt each day and

except for chronic fatigue the onc took care of most of my concerns.

[Guest guest]

Hmmm , yes take the calcium magnesium for the tingles, however , it seems to me

that maybe yall should consider that the dose of chemo he is getting is to high

for him??

It just seems odd to me that the neuropathy would set in THIS fast, and that

with the intense aches , may mean the dose is to strong ?

For the insomnia couldnt they give him a sedative? They did for my husband

called Adavant ( I believe ) he also was on the Emend anti nausea ( only one

that worked for him)

Deb

Meri wrote:

Daddy had his first round of chemo (FOLFOX4 w/ Avastin) last Wed-Fri and had

very few side effects until Monday morning. Now, he feels bad all of the time.

In the early morning hours on Monday he had extreme pain and spasms in his lower

back and down both legs. His onc told him to go to the ER. He had blood tests,

urinalysis, and a CT done. They feared something could be wrong with his kidney

function or that he could have an aneurysm. The CT did not show anything wrong

with his organs, thank God. They attribute the pain to side effects from the

chemo.

He has numbness in his jaw, fingers, and toes. He also has tingling and burning

in his feet. He has heaviness in his legs and arms. He is very uncomfortable. He

has not had any nausea, but he is on aloxi & decadron (iv) and emend &

dexamethasone. He still has the insomnia and jitters from the dex even though he

stopped taking it on Sunday.

He has the option for the Calcium-Magnesium infusion, would it help the

neuropathy? Should he also take ALA? If so, how much would you recommend? He is

taking some B-6.

He also has a very low body temperature (94-96) and low pulse (drops into the

30s-40s frequently.) Is this response common with these drugs? His normal body

temp is 98.something and his pulse is usually in the 60s-70s. They were

concerned with his pulse at the hospital yesterday. He has high-normal bp.

Daddy feels much weaker and has a lot of aches and pains all over his body. Is

there anything that you can recommend to help him feel better?

We are very concerned about the slowed heart and lowered body temperature-is

this common?

Thank you for any answers you may provide. I really appreciate it.

Take care. You are in my prayers.

Meri

d/o , my Daddy & hero!

DX: 10-13-05

CC w/ peritoneal mets

FOLFOX4 w/ Avastin: 12-14-05

PAACE Trial, Control Arm

*******************************************

Merry Christmas!!

" For there is born to you this day in the

city of a Savior, who is Christ the Lord.

And this will be the sign to you: You will find

a Babe wrapped in swaddling cloths, lying in a

manger. " And suddenly there was with the angel

a multitude of the heavenly host praising God and

saying: " Glory to God in the highest, And on earth

peace, goodwill toward men! "

Luke 2:11-14

********************************************

[Guest guest]

Hi, I am so sorry that your dad is having such severe side effects.

Yes, it has been known that the chemo can effect the joints. But

your dad's seems awful severe.

I think his onc should consider lowering the dosage of his chemo.

It does sound like your dad's system had gotten over whelmed with

this dosage. They ussually give the standard dosage taking into

consideration his weight and height. Everyone handles this

differently and it sounds like your dad is just more senstive to this

chemo dosage.

When the lowered my dosage towards the end of my chemo since the

side effects do get worse as the chemo goes on. The dosage reduction

did help so much and the reactions I was having became greatly

reduced.

Yes, Definatley have him take the Calcium-Magnesium infusion since

it does seem to lesson the neuropathy. Again each person handles it

differently and this may or may not help. It does seem to lesson the

nerve damage that the chemo creates.

The chemo is rough on a person. And the fact that your dad is

having so many problems this early into the chemo may warrent a

dosage reduction.

The chemo will make you feel weak and can cause lower blood

preasure as well as other things. I had to take a break in the middle

of my chemo since my blood preasure which is low to begin with

dropped more then my onc was comfotale with.

Your dad needs to discuss all of the problems with his onc before

they do another infusion.

The chemo effects get worse over time since your body does get

weaker with each chemo.

Most of the time only time between the chemo sessions will make

your dad feel better. He must seriously sit down with his onc and

have a long talk about all of this.

My Prayers are with your father. God Bless him. Hopefully they can

find a happy medium and he will be able to tolerate the chemo better.

Ingrid

>

> Daddy had his first round of chemo (FOLFOX4 w/ Avastin) last Wed-

Fri and had very few side effects until Monday morning. Now, he feels

bad all of the time. In the early morning hours on Monday he had

extreme pain and spasms in his lower back and down both legs. His onc

told him to go to the ER. He had blood tests, urinalysis, and a CT

done. They feared something could be wrong with his kidney function

or that he could have an aneurysm. The CT did not show anything wrong

with his organs, thank God. They attribute the pain to side effects

from the chemo.

>

> He has numbness in his jaw, fingers, and toes. He also has tingling

and burning in his feet. He has heaviness in his legs and arms. He is

very uncomfortable. He has not had any nausea, but he is on aloxi &

decadron (iv) and emend & dexamethasone. He still has the insomnia

and jitters from the dex even though he stopped taking it on Sunday.

>

> He has the option for the Calcium-Magnesium infusion, would it help

the neuropathy? Should he also take ALA? If so, how much would you

recommend? He is taking some B-6.

>

> He also has a very low body temperature (94-96) and low pulse

(drops into the 30s-40s frequently.) Is this response common with

these drugs? His normal body temp is 98.something and his pulse is

usually in the 60s-70s. They were concerned with his pulse at the

hospital yesterday. He has high-normal bp.

>

> Daddy feels much weaker and has a lot of aches and pains all over

his body. Is there anything that you can recommend to help him feel

better?

>

> We are very concerned about the slowed heart and lowered body

temperature-is this common?

>

> Thank you for any answers you may provide. I really appreciate it.

>

> Take care. You are in my prayers.

>

> Meri

> d/o , my Daddy & hero!

> DX: 10-13-05

> CC w/ peritoneal mets

> FOLFOX4 w/ Avastin: 12-14-05

> PAACE Trial, Control Arm

>

>

>

>

>

>

> *******************************************

> Merry Christmas!!

>

> " For there is born to you this day in the

> city of a Savior, who is Christ the Lord.

> And this will be the sign to you: You will find

> a Babe wrapped in swaddling cloths, lying in a

> manger. " And suddenly there was with the angel

> a multitude of the heavenly host praising God and

> saying: " Glory to God in the highest, And on earth

> peace, goodwill toward men! "

>

> Luke 2:11-14

> ********************************************

>

>

[Guest guest]

Meri, your dad is in our prayers. God bless.

~Deb from KS

Meri wrote:

Daddy had his first round of chemo (FOLFOX4 w/ Avastin) last Wed-Fri and had

very few side effects until Monday morning. Now, he feels bad all of the time.

In the early morning hours on Monday he had extreme pain and spasms in his lower

back and down both legs. His onc told him to go to the ER. He had blood tests,

urinalysis, and a CT done. They feared something could be wrong with his kidney

function or that he could have an aneurysm. The CT did not show anything wrong

with his organs, thank God. They attribute the pain to side effects from the

chemo.

He has numbness in his jaw, fingers, and toes. He also has tingling and burning

in his feet. He has heaviness in his legs and arms. He is very uncomfortable. He

has not had any nausea, but he is on aloxi & decadron (iv) and emend &

dexamethasone. He still has the insomnia and jitters from the dex even though he

stopped taking it on Sunday.

He has the option for the Calcium-Magnesium infusion, would it help the

neuropathy? Should he also take ALA? If so, how much would you recommend? He is

taking some B-6.

He also has a very low body temperature (94-96) and low pulse (drops into the

30s-40s frequently.) Is this response common with these drugs? His normal body

temp is 98.something and his pulse is usually in the 60s-70s. They were

concerned with his pulse at the hospital yesterday. He has high-normal bp.

Daddy feels much weaker and has a lot of aches and pains all over his body. Is

there anything that you can recommend to help him feel better?

We are very concerned about the slowed heart and lowered body temperature-is

this common?

Thank you for any answers you may provide. I really appreciate it.

Take care. You are in my prayers.

Meri

d/o , my Daddy & hero!

DX: 10-13-05

CC w/ peritoneal mets

FOLFOX4 w/ Avastin: 12-14-05

PAACE Trial, Control Arm

__________________________________________________

[Guest guest]

I am assuming that all his organs are clear. What are his blood counts like?

Do they think he has an infection? The Calcium Magnesium sounds like a plan.

You really need blood work results it sounds like something with either low

counts or infection Ask lots of questions as to why this is happening. It

sounds strange to be having these reactions a whole week after treatment

In a message dated 12/20/2005 10:02:48 PM Eastern Standard Time,

merier@... writes:

Daddy had his first round of chemo (FOLFOX4 w/ Avastin) last Wed-Fri and had

very few side effects until Monday morning. Now, he feels bad all of the

time. In the early morning hours on Monday he had extreme pain and spasms in

his

lower back and down both legs. His onc told him to go to the ER. He had

blood tests, urinalysis, and a CT done. They feared something could be wrong

with

his kidney function or that he could have an aneurysm. The CT did not show

anything wrong with his organs, thank God. They attribute the pain to side

effects from the chemo.

He has numbness in his jaw, fingers, and toes. He also has tingling and

burning in his feet. He has heaviness in his legs and arms. He is very

uncomfortable. He has not had any nausea, but he is on aloxi & decadron (iv)

and emend

& dexamethasone. He still has the insomnia and jitters from the dex even

though he stopped taking it on Sunday.

He has the option for the Calcium-Magnesium infusion, would it help the

neuropathy? Should he also take ALA? If so, how much would you recommend? He is

taking some B-6.

He also has a very low body temperature (94-96) and low pulse (drops into

the 30s-40s frequently.) Is this response common with these drugs? His normal

body temp is 98.something and his pulse is usually in the 60s-70s. They were

concerned with his pulse at the hospital yesterday. He has high-normal bp.

Daddy feels much weaker and has a lot of aches and pains all over his body.

Is there anything that you can recommend to help him feel better?

We are very concerned about the slowed heart and lowered body temperature-is

this common?

Thank you for any answers you may provide. I really appreciate it.

Take care. You are in my prayers.

Meri

d/o , my Daddy & hero!

DX: 10-13-05

CC w/ peritoneal mets

FOLFOX4 w/ Avastin: 12-14-05

PAACE Trial, Control Arm

*******************************************

Merry Christmas!!

" For there is born to you this day in the

city of a Savior, who is Christ the Lord.

And this will be the sign to you: You will find

a Babe wrapped in swaddling cloths, lying in a

manger. " And suddenly there was with the angel

a multitude of the heavenly host praising God and

saying: " Glory to God in the highest, And on earth

peace, goodwill toward men! "

Luke 2:11-14

********************************************

[Non-text portions of this message have been removed]

[Guest guest]

Meri

Your dad should take the Calcium-Magnesium infusion, he should NOT take B6

during chemo sessions only in between sessions. I loved decadron!!! It

took away all my aches and pains in my knees and hips and helped me breathe

better. Course after chemo was all over it came back to me with a vengeance.

The aches and pains are back, but I finally have the breathing in control. I

am experiencing heaviness in my legs and that just started recently. I am

thinking it is a chemo side effect though somewhat delayed. If I sit for a

length of time watching tv or in the car driving somewhere when I start to

get up it feels as if my legs will go out from under me. Strangely it does

not affect me when I get up from resting in bed.

Yes the insomnia is normal, he can get sleep aids. Low body temp is normal

- my temp is just now getting up in the normal range, but it was always 96

or 97 . If it got over 97 I would know I had a fever. I don't know about

the slowed heart. Aches and pains - he should be able to get some pain meds

- I had Percocet (oxicondin sp?) but mostly for my back. Finally started

taking Tylenol. Just be aware the Percocet will or can cause constipation.

I am on bp meds and for most part my bp was in normal ranges during chemo.

I am sure others will contribute more advice.. I never had any extreme

reactions to chemo - mostly just tiredness.

Hugs and Prayers for all the family.. Jolene