RE: Narice future plans

[Guest guest]

Narice, glad to hear that Phil was feeling better for Thanksgiving. All of this

is so hard for you, especially a future without him. Be strong and take care of

yourself. I really admire you for wanting to do your future plans; it's not

morbid at all, but caring. Even if the boys are not involved in it with you, go

ahead and do it. They may decide to join you later. God bless all four of you

and your family members as well. Take care.

Prayers for everyone on here,

~Deb from KS

flipper759@... wrote:

I talked to Phil and once the dust settles with our current situation I

would like to start a local chapter of CCNetwork here in Erie. I'll need lots

of

suggestions and HELP but I would really like to do this.

Phil would also like me to March in Project March. I want to if I am

physically and emotionally ready to do so.

I did send 2 sheets of signatures to Priscilla let me know if you got them.

Hope no one thinks this morbid but I know CCNetwork and Colon Cancer Support

have been my Godsends and when the time comes I want to give back what I

have received and work my way out of a job

Narice

---------------------------------

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[Guest guest]

Hello Narice:

I have been meaning to message you for quite some time - I think of you and

Phil - and the hardest battle of your life, on a daily basis and have been

keeping up with your posts while I don't often post, so you do not know me that

well. I pray and think of you both - I hope you find some comfort with your

friends here and I know your boys will be strong with you and you will all take

comfort in each other. Only time heals, but indeed your broken heart will mend

over time.

I just had to write right now and encourage you with your ideas to get

involved in colon cancer awareness and prevention. I am for the time being a

survivor (does that sound negative - it's the fear creeping in) I too feel that

I have been called to get

involved in some way and to " give back " by taking part in the campaign for

awareness and prevention. In March, I " walked " in the Big Blue Quest only 3

weeks after my surgery - and was able to raise more than $5000 simply by telling

people my story in a letter I sent to friends and family. BBQ is an event

sponsored by Allegheny General Hospital and coordinated by my doctors there -

it's founder is also a colon cancer survivor - Kathyrn Knight. I can put you in

touch with her for ideas. Since we are not far away from each other - perhaps we

can help each other with ideas or walk in each other's walks. I'd be happy to do

that as I am involved again in the Walk/Run this year - we are developing and

hosting a website for the organization. I will keep you up to date with this -

and as always, keep you and your family in my thoughts and prayers!

God bless,

Pat

Good idea Narice.. One thing talk to folks at the hospital and see what

support they can give you. That is why I could not get anything done at Fort

Hood hospital cause they said was no money for it. In order to have the

availability of people to come speak at meetings it needs to go through a

hospital. I probably could have gone through one of civilian hospitals in

the are but since there were so many for Fort Hood thought it better to stay

on base -- for all the good it did. I wish you well in this admirable

endeavor and is great that Phil encourages you to do it. I hope you make to

Project March as well. I won't be able to make it - just too many bills and

no more credit cards. All my accounts are closed. I sure will be there in

spirit though. Hugs and Prayers Jolene

Narice future plans

I talked to Phil and once the dust settles with our current situation I

would like to start a local chapter of CCNetwork here in Erie. I'll need

lots of

suggestions and HELP but I would really like to do this.

Phil would also like me to March in Project March. I want to if I am

physically and emotionally ready to do so.

I did send 2 sheets of signatures to Priscilla let me know if you got them.

Hope no one thinks this morbid but I know CCNetwork and Colon Cancer

Support

have been my Godsends and when the time comes I want to give back what I

have received and work my way out of a job

Narice

[Guest guest]

Hello Narice:

I have been meaning to message you for quite some time - I think of you and

Phil - and the hardest battle of your life, on a daily basis and have been

keeping up with your posts while I don't often post, so you do not know me that

well. I pray and think of you both - I hope you find some comfort with your

friends here and I know your boys will be strong with you and you will all take

comfort in each other. Only time heals, but indeed your broken heart will mend

over time.

I just had to write right now and encourage you with your ideas to get

involved in colon cancer awareness and prevention. I am for the time being a

survivor (does that sound negative - it's the fear creeping in) I too feel that

I have been called to get

involved in some way and to " give back " by taking part in the campaign for

awarness and prevention. In March, I " walked " in the Big Blue Quest only 3

weeks after my surgery - and was able to raise more than $5000 simply by telling

people my story in a letter I sent to friends and family. BBG is an event

sponsored by Allegheny General Hospital and coordinated by my doctors there -

it's founder is also a colon cancer survivor - Kathyrn Knight. I can put you in

touch with her for ideas. Since we are not far away from each other - perhaps we

can help each other with ideas. I am involved again in the Walk/Run this year -

we are developing and hosting a website for the organization. I will keep you

up to date with this - and as always, keep you and your family in my thoughts

and prayers! MP

Good idea Narice.. One thing talk to folks at the hospital and see what

support they can give you. That is why I could not get anything done at Fort

Hood hospital cause they said was no money for it. In order to have the

availability of people to come speak at meetings it needs to go through a

hospital. I probably could have gone through one of civilian hospitals in

the are but since there were so many for Fort Hood thought it better to stay

on base -- for all the good it did. I wish you well in this admirable

endeavor and is great that Phil encourages you to do it. I hope you make to

Project March as well. I won't be able to make it - just too many bills and

no more credit cards. All my accounts are closed. I sure will be there in

spirit though. Hugs and Prayers Jolene

Narice future plans

I talked to Phil and once the dust settles with our current situation I

would like to start a local chapter of CCNetwork here in Erie. I'll need

lots of

suggestions and HELP but I would really like to do this.

Phil would also like me to March in Project March. I want to if I am

physically and emotionally ready to do so.

I did send 2 sheets of signatures to Priscilla let me know if you got them.

Hope no one thinks this morbid but I know CCNetwork and Colon Cancer

Support

have been my Godsends and when the time comes I want to give back what I

have received and work my way out of a job

Narice

[Guest guest]

Narice, I received the signatures. Thank you. It really helps.

I know what you mean about working your way out of a job. That has been my goal

from the beginning.

Colon cancer is so different from other cancers. We alreay know how to end it

completely - screen all adults not just those over 50, and remove all polyps.

We already have the technology needed - colonoscopies. Where as other cancers

are desperate for research money - we are desperate for a mandate that all

health insurance must cover all adults and that a fund be set up for screening

all those adults without insurance. Those two things alone would eliminate any

more people like Phil dying from this cancer.

It is unbelievable that when nearly 20 years ago it was discovered that colon

cancer begins as a polyp our medical community and insurance community just sat

on this information.

It is horrifying that since colon cancer has been known to be one of the top

cause of cancer deaths for more than 100 years that it was only 5 years ago that

the American Cancer Society even put it on its agenda.

I am sitting here tonight with some memorial gifts in the name of a woman who 6

months ago called and ordered awareness bracelets.

To the other side of my desk is a picture you sent of Phil and the obituary of

Joe Savage sent to me by his daughter.

How can a country that talks about " war on cancer " , " kinder gentler nation " ,

" taking care of our own " sit by and allow 58,000 people to die this year and

every year from a preventable cancer. How can we go to war over the death of

3,000 on Sept 11 and do nothing as more than 15 times that die every year from

this cancer. These people aren't statistics. They are fathers and mothers,

sisters and brothers, friends and children. They are loved and have lives and

are contributing to this world and are robbed of their very life when three or

four extra screenings would have prevented it.

Justice does not exist except where we demand that it does. Democracy doesn't

happen except when we make it happen.

I look forward to the day when there is an action team in your area and one in

every state and every county within every state. But we don't even need that

many to stand up to end this cancer. If we are vocal, insistant, and consistent

it will happen.

We have changed our chapter program. There are no chapters now only action

teams. Chapters are a legal term. And with that comes a lot of headache,

tracking, paperwork, etc. We aren't in business to grow a monster organization.

We are just people who are coming together for one common goal. Make the

'system' use the technology and knowledge that already exists to stop this

cancer.

How do you become an action team? Say you are and you are. Give us a contact

name, number and email so that others may join you in your action team. And you

are then an active one. Do something. One small thing once. One small thing

regularly. Large things. Just do it. And your action team is then part of

the solution. We can sit and hurt for the losses around us. Or, when we can

breathe again, we can get up and do something. The carnage is growing higher

even now. Tonight there are 168 families newly joining us in the grief caused

by the loss of someone to colon cancer. And tomorrow another 168 will join in

the grieving. This world can truly hold up under unbelievable amounts of grief

because it continues to just sit by as the number who are grieving grows. We

can't sit by. I wish I could have been with you at Phil's funeral. You are 5

hours away but I was trying to arrange my schedule so that I could be there -

and then we got 7 inches of snow and a few inches of ice. But I wish I could

have been there for you for whatever little support I might have been able to

add for you. God was surely not ready to have Phil come home yet. But colon

cancer had other plans. We needed him here. There are two many hurting people

in this world - they need men and women like Phil to heal them and lead them

home. And I hate passionately that another person so much needed in this world

is gone home to God.

The price of great love is great loss. But I hate deeply that you had to pay the

price so early.

It is an honor to fight this with you.

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or save

thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

Narice future plans

I talked to Phil and once the dust settles with our current situation I

would like to start a local chapter of CCNetwork here in Erie. I'll need

lots of

suggestions and HELP but I would really like to do this.

Phil would also like me to March in Project March. I want to if I am

physically and emotionally ready to do so.

I did send 2 sheets of signatures to Priscilla let me know if you got them.

Hope no one thinks this morbid but I know CCNetwork and Colon Cancer

Support

have been my Godsends and when the time comes I want to give back what I

have received and work my way out of a job

Narice

[Guest guest]

we can't take care of our own people... our beloved legislators are too busy

sending every country in the whole world more money and then more money

which if we used it at home would totally solve our budget problems, our

health care issues, our senior drug problems. Everyone would have medical

care. Gee, why are we the world's keepers.

If they can't afford their populaces... its THEIR problem not ours. I am

stepping up to the plate saying I'm sick of America helping everyone but the

people who need it FIRST and MOST ... our taxpayers!

Nonnie

Who would say this on the news if they got a chance and NO I don't want to

be an elected official cause then I woud have to be corrupt.

Re: Narice future plans

Narice, I received the signatures. Thank you. It really helps.

I know what you mean about working your way out of a job. That has been my

goal from the beginning.

Colon cancer is so different from other cancers. We alreay know how to end

it completely - screen all adults not just those over 50, and remove all

polyps. We already have the technology needed - colonoscopies. Where as

other cancers are desperate for research money - we are desperate for a

mandate that all health insurance must cover all adults and that a fund be

set up for screening all those adults without insurance. Those two things

alone would eliminate any more people like Phil dying from this cancer.

It is unbelievable that when nearly 20 years ago it was discovered that

colon cancer begins as a polyp our medical community and insurance community

just sat on this information.

It is horrifying that since colon cancer has been known to be one of the top

cause of cancer deaths for more than 100 years that it was only 5 years ago

that the American Cancer Society even put it on its agenda.

I am sitting here tonight with some memorial gifts in the name of a woman

who 6 months ago called and ordered awareness bracelets.

To the other side of my desk is a picture you sent of Phil and the obituary

of Joe Savage sent to me by his daughter.

How can a country that talks about " war on cancer " , " kinder gentler nation " ,

" taking care of our own " sit by and allow 58,000 people to die this year and

every year from a preventable cancer. How can we go to war over the death

of 3,000 on Sept 11 and do nothing as more than 15 times that die every year

from this cancer. These people aren't statistics. They are fathers and

mothers, sisters and brothers, friends and children. They are loved and

have lives and are contributing to this world and are robbed of their very

life when three or four extra screenings would have prevented it.

Justice does not exist except where we demand that it does. Democracy

doesn't happen except when we make it happen.

I look forward to the day when there is an action team in your area and one

in every state and every county within every state. But we don't even need

that many to stand up to end this cancer. If we are vocal, insistant, and

consistent it will happen.

We have changed our chapter program. There are no chapters now only action

teams. Chapters are a legal term. And with that comes a lot of headache,

tracking, paperwork, etc. We aren't in business to grow a monster

organization. We are just people who are coming together for one common

goal. Make the 'system' use the technology and knowledge that already

exists to stop this cancer.

How do you become an action team? Say you are and you are. Give us a

contact name, number and email so that others may join you in your action

team. And you are then an active one. Do something. One small thing once.

One small thing regularly. Large things. Just do it. And your action

team is then part of the solution. We can sit and hurt for the losses

around us. Or, when we can breathe again, we can get up and do something.

The carnage is growing higher even now. Tonight there are 168 families

newly joining us in the grief caused by the loss of someone to colon cancer.

And tomorrow another 168 will join in the grieving. This world can truly

hold up under unbelievable amounts of grief because it continues to just sit

by as the number who are grieving grows. We can't sit by. I wish I could

have been with you at Phil's funeral. You are 5 hours away but I was trying

to arrange my schedule so that I could be there - and then we got 7 inches

of snow and a few inches of ice. But I wish I could have been there for you

for whatever little support I might have been able to add for you. God was

surely not ready to have Phil come home yet. But colon cancer had other

plans. We needed him here. There are two many hurting people in this world

- they need men and women like Phil to heal them and lead them home. And I

hate passionately that another person so much needed in this world is gone

home to God.

The price of great love is great loss. But I hate deeply that you had to pay

the price so early.

It is an honor to fight this with you.

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or

save thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

Narice future plans

I talked to Phil and once the dust settles with our current situation I

would like to start a local chapter of CCNetwork here in Erie. I'll need

lots of

suggestions and HELP but I would really like to do this.

Phil would also like me to March in Project March. I want to if I am

physically and emotionally ready to do so.

I did send 2 sheets of signatures to Priscilla let me know if you got

them.

Hope no one thinks this morbid but I know CCNetwork and Colon Cancer

Support

have been my Godsends and when the time comes I want to give back what I

have received and work my way out of a job

Narice

[Guest guest]

Priscilla, thank you for explaining that.

~Deb from KS

Priscilla Savary wrote:

It isn't coming across negatively at all. Reviewing the research literature

indicates that situations where colon cancer comes back in 5 or fewer years is

believed to be most likely because it was not all gone and that micro mets still

existed. Micros mets are those single cells or cellular groups too small to be

detected. Six years is probably not all that far outside of that window

statistically speaking. And that is why it is a good idea to always consider

doing the GCC-B1 test right after you are declared cancer free and then every

year or so after it for awhile. If it was clear right after it then you would

have fairly solid evidence to indicate true cancer-free status. And if it later

showed evidence of returning it would then be classified in most cases as not a

recurrence but rather a second primary. Which is considered to be much much

less common.

And 6 " to either side is actually quite conservative. There are many who have

much more removed.

Priscilla A. Savary

Executive Director

Colorectal Cancer Network

PO Box 182, Kensington MD 20895

psavary@...

www.colorectal-cancer.net

_________

Screening for All. Colon Cancer for None.

ProjectMARCH -- rarely in life do you get a chance to make major change or save

thousands of lives. March 6, 2006 you can.

http://www.colorectal-cancer.net/projectmarch.htm

Narice future plans

I talked to Phil and once the dust settles with our

current situation I

would like to start a local chapter of CCNetwork

here in Erie. I'll need

lots of

suggestions and HELP but I would really like to do

this.

Phil would also like me to March in Project March. I

want to if I am

physically and emotionally ready to do so.

I did send 2 sheets of signatures to Priscilla let

me know if you got them.

Hope no one thinks this morbid but I know CCNetwork

and Colon Cancer

Support

have been my Godsends and when the time comes I want

to give back what I

have received and work my way out of a job

Narice

__________________________________________________