Re: nne's Adventure in the Land of Portable O2

[Guest guest]

nne

Choosing the right oxygen provider is very important if you have a

choice. I don't know your situation and maybe you're with Cigna or

someone who contracts only with Apria. But their response on the

Marathon is very disturbing. You need to try talking to the manager of

the local facility instead of customer service as well to outline your

future needs and see how they can serve you. While I can understand them

occasionally taking time to get a unit to the local office, I find their

lack of knowledge quite disturbing. I also will warn you that Apria

doesn't like supplying liquid and has moved as many patients as they can

in many areas away from it. They consider it more costly to provide.

Now for factual correction. Marathon is no older than the Helios Plus,

in fact I believe it is more recent. It's active and new ones being made

every day. It is the industry standard as one moves from Helios Plus to

Helios Marathon to Companion 1000 (all made by Puritan ) to

Companion T.

As an extra, Helios Marathons and Companion 1000's are often available

on Ebay as well as through companies that rebuild them. Occasionally

you'll see a comparable product by Caire. I purchased a Caire Stroller

on ebay at a real bargain.

> >

> > Hi everyone!

> > Well I got a new resevoir last Friday and it is still full so I am

pretty sure this one doesn't have a leak. However, my portable even

though it is filled only lasts 1 hour. On Saturday, I went to the gym

and that's all I needed so I didn't realize it until yesterday. When I

got to work- no more air!! So I went out anyway and it was NOT fun. I

called them and am picking up another one today. I'm so glad they are so

understanding here about letting me leave early again as I did last week

for a pulmodude appt.

> > Speaking of pulmodude, he decreased prednisone to 10 mg. and I think

I'm getting worse although when he listened to my lungs he said it's the

same. I barely breathe and it hurts- I don't know I will just have to

wait and see what Columbia thinks on Oct 1.

> >

>

[Guest guest]

Hi Bruce,

Yes I have Cigna insurance and this is the only provider I can use. When I

called they said that they were getting the unit from another part of the state.

But I will take your advise and stop talking to customer service and tell a

manager that I need this for an extended period of time during the day. Not

surprised that Apria just wants to make an easy buck! I will definitely search

ebay over the weekend- thank you for the information!

nne, ILD 6/9

> > >

> > > Hi everyone!

> > > Well I got a new resevoir last Friday and it is still full so I am

> pretty sure this one doesn't have a leak. However, my portable even

> though it is filled only lasts 1 hour. On Saturday, I went to the gym

> and that's all I needed so I didn't realize it until yesterday. When I

> got to work- no more air!! So I went out anyway and it was NOT fun. I

> called them and am picking up another one today. I'm so glad they are so

> understanding here about letting me leave early again as I did last week

> for a pulmodude appt.

> > > Speaking of pulmodude, he decreased prednisone to 10 mg. and I think

> I'm getting worse although when he listened to my lungs he said it's the

> same. I barely breathe and it hurts- I don't know I will just have to

> wait and see what Columbia thinks on Oct 1.

> > >

> >

>

[Guest guest]

my recommendation is to just pay for some tanks to use as back up

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: nne's Adventure in the Land of Portable O2To: Breathe-Support Date: Friday, August 28, 2009, 3:32 PM

Oh I almost forgot- another chapter in my portable O2 adventure.Called up Apria yesterday and they said they would try to locate a Marathon but they are getting away from liquid O2 so they may not be able to locate one because a Marathon is a very old unit. It seems like so many people here use it how can it be "old"?. This afternoon I called again since I hadn't heard back and my local distributor said it will take 5-7 business days (ugh). Also I wanted to ask everyone if there is a an inexpensive one I could buy as a backup maybe not a Marathon but something similar. My husband's niece is getting married in October and I sure would like to have a backup.nne, ILD 6/9 >> Hi everyone!> Well I got a new resevoir last Friday and it is still full so I am pretty sure this one doesn't have a leak. However, my portable even though it is filled only lasts 1 hour. On Saturday, I went to the gym and that's all I needed so I didn't realize it until yesterday. When I got to work- no more air!! So I went out anyway and it was NOT fun. I called them and am picking up another one today. I'm so glad they are so understanding here about letting me leave early again as I did last week for a pulmodude appt. > Speaking of pulmodude, he decreased prednisone to 10 mg. and I think I'm getting worse although when he listened to my lungs he said it's the same. I barely breathe and it hurts- I don't know I will just have to wait and see what Columbia thinks on Oct 1.>

[Guest guest]

when out, i have a tendency to start talking to ohter people who are using o2

i also pay attention to the scooters and the wheelchairs just in case i need one down the road

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: nne's Adventure in the Land of Portable O2To: Breathe-Support Date: Friday, August 28, 2009, 3:34 PM

I don't wear O2, but I've been around people who do. So I never gave it a lot of thought. Now that I have this lung disease I'm looking at things much differently.I know my son and daughter kinda freaked when they saw me use an inhaler for the first time. But, I decided there's no sense in hiding it.They too will get used to it. We're all human with different problems, some apparent, others not. I wish I could walk away from this. Hopefully some brainiac will come up with a cure and let us off the hook. I'm all for that!!!!!!!! !!!!!It's a breezy warm day with a scattering of rain here in NE Ohio. Hoping all of you out there are having a pleasant day.PJ in Ohio, 54, IPF '09, Sjogren's '95. Re: nne's Adventure in the Land of

Portable O2 Hi Marsha,I'm going to try staring back and smiling. That's a good idea. I was talking with a co-worker today about the staring and she said they are probably not used to seeing anyone on O2 who is not elderly and frail. Who knows! I was taught it is impolite to stare.I guess it is just curiosity and I too never smoked. nne, ILD 6/9>> > > > > I found that if someone stares, look them in the eye and> smile and they almost always smile back. If they don’t, forget them. Little kids of course are curious and want> to know.

They can be great for a laugh. > I thought I had explained it pretty good  to one little guy, but as they walked away, I heard his mother> say, “No it is not a fire> extinguisher.�  I did have a> disconcerting encounter with an 11 year old boy. You know how boys that age can> be. > >  I had an> E-tank on a cart in my shopping cart. > He politely asked if he could ask me a question about my oxygen. I said yes and his question was, “Is it a pain in the butt dragging that> thing around?� I had a hard time not> laughing as his Grandmother tried to sink thru the floor.  I told him, that “Yes it is.� And “Not to> ever smoke.� I

didn’t tell him that I> never smoked. I think of it as an adventure.  > Marcia>

[Guest guest]

MY local company provided me two companion T's and can borrow a small 90 pound travel tank that fits in my van. I am on 10 LPM with the companion T P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 10 LPM 8/04, PH 3/06, ILL yo 61REMEMBER : All of you on Prednisone'stressed' spelled backwards is 'desserts'From: teddyspenguins

Subject: Re: nne's Adventure in the Land of Portable O2To: Breathe-Support Date: Friday, August 28, 2009, 2:32 PM

Oh I almost forgot- another chapter in my portable O2 adventure.

Called up Apria yesterday and they said they would try to locate a Marathon but they are getting away from liquid O2 so they may not be able to locate one because a Marathon is a very old unit. It seems like so many people here use it how can it be "old"?. This afternoon I called again since I hadn't heard back and my local distributor said it will take 5-7 business days (ugh). Also I wanted to ask everyone if there is a an inexpensive one I could buy as a backup maybe not a Marathon but something similar. My husband's niece is getting married in October and I sure would like to have a backup.

nne, ILD 6/9

>

> Hi everyone!

> Well I got a new resevoir last Friday and it is still full so I am pretty sure this one doesn't have a leak. However, my portable even though it is filled only lasts 1 hour. On Saturday, I went to the gym and that's all I needed so I didn't realize it until yesterday. When I got to work- no more air!! So I went out anyway and it was NOT fun. I called them and am picking up another one today. I'm so glad they are so understanding here about letting me leave early again as I did last week for a pulmodude appt.

> Speaking of pulmodude, he decreased prednisone to 10 mg. and I think I'm getting worse although when he listened to my lungs he said it's the same. I barely breathe and it hurts- I don't know I will just have to wait and see what Columbia thinks on Oct 1.

>

[Guest guest]

Yahoo is messing with me.Does anyone know what makes some of my posts become filled with A"s and symbols. Is it inserted in places where I left a blank spaces? It is also sending before I intend, as you can see a blank post. sorry. Marcia

[Guest guest]

the weird symbols happen to me sometimes too

don't know why

since i got; my lap top, i hit wrong keys by mistake and weird things happen

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: nne's Adventure in the Land of Portable O2To: Breathe-Support Date: Saturday, August 29, 2009, 1:05 AM

Yahoo is messing with me.Does anyone know what makes some of my posts become filled with A"s and symbols. Is it inserted in places where I left a blank spaces? It is also sending before I intend, as you can see a blank post. sorry. Marcia