Re: PF Awareness- Grass Root Campaign!

[Guest guest]

Jo Ann, and Leanne ...What a great

idea...this Blue T-shirt idea should be mentioned on the Facebook

page of PFF! That would get the thing going!Count me in...I'll wear

one!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Jo Ann Barrett wrote:

>

> Leanne S. and I have talked off and on about raising awareness in

various ways and some of us in Texas wanted to see, if the rest of the

country wanted to join in on wearing Blue T-shirts on Fridays? With all

the other better known disease groups using pink and red and every

other color, we settled on Blue because of the color our lungs become

without oxygen.

>

> If enough people are interested we can even design our own shirt

or just keep it simple and put a "slogan" on it...like 'Pulmonary

Fibrosis...it takes your breath away'. We are totally open and would

like your suggestions on this grass roots project....I think it is

something everyone can do, and sooner or later, when people start

noticing others in Blue T-Shirts they will start asking us what is PF?

When we see a pink ribbon on a shirt we just know it is for Breast

Cancer Awareness....if we all band together we can make Blue for

PF as well known too:)

>

> We would love to hear your thoughts...What do you think?!

I think this is a GREAT idea. I would definately buy shirts if you do

this. Last summer I bought 30 of the white bracelets from Pulmonary

Fibrosis and sold them at work, and to friends and family. I still wear

my bracelet, never take it off. My daughter and one of my sons also

wear theirs everyday.

I will start wearing blue shirts on Friday. Hope this works out.

Jo Ann 53 MI UIP 9/07

>

> {Leanne, thank you for your support and permission in sharing this

idea with everyone online! Between the Pulmonary Fibrosis Foundation in

Chicago, the Coalition for Pulmonary Fibrosis in California and the

Pulmonary Fibrosis Association in Texas, we can all make a difference

in helping to raise awareness of a disease that no one still hears

about.

>

> Jan

>

[Guest guest]

great idea

last week i wwnt to ac moore, bought t shirts for the grand kids and fabric paint and painted their names

i can do the same thing with a blue t shirt and paint ipf on it

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: PF Awareness- Grass Root Campaign!To: Breathe-Support Date: Thursday, July 23, 2009, 4:56 PM

Jan,

I also think this is a terrific idea and it's something most everyone could start doing immediately. Who doesn't have some kind of blue shirt in their wardrobe? When we get printed t-shirts we can wear them but we can also start where we are and tomorrow I will wear a blue t-shirt and get started!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Jan <Jan3145 (AT) aol (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, July 23, 2009 4:06:41 PMSubject: PF Awareness- Grass Root Campaign!

Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness... .if we all band together we can make Blue for PF as well known too:)We would love to hear your

thoughts...What do you think?!{Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.Jan

[Guest guest]

i have been using the slogan on my regular email signature since shortly after learning about it

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: PF Awareness- Grass Root Campaign!To: Breathe-Support Date: Thursday, July 23, 2009, 7:57 PM

Love the idea of blue and love the slogan, can we use the acorn too? You can sign me up for a bunch of those shirts, I would sell them at the senior citizens center and even the grocery store and send the proceeds to either the Chicago Foundation or one of the many pulmonary centers (my favorites are the Mayo Clinic and National Jewish, but then we all have our preferences) . It needs to be brought to the forefront. I have already sent letters to the Utah delegates reviewing the current pulmonary bill in committee.StefaniILD 2/2006, NSIP (cellular) 6/2009, Diabetes II 2/2006, Sleep Apnea 4/2009> > > > Subject: Re: PF Awareness- Grass Root Campaign!> To: Breathe-Support@ yahoogroups. com> Date: Thursday, July 23, 2009, 9:16 PM> > > > > > > > > > I'd be happy to buy a couple of t-shirts, and proud to wear them!> B> > > Barbara McD> IPF, Sept 08> Beautiful Western NC> >

> > Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9> > > > > > > > From: Sher Bauman <bofus (AT) wbcable (DOT) net>> To: Breathe-Support@ yahoogroups. com> Sent: Thursday, July 23, 2009 5:11:04 PM> Subject: Re: PF Awareness- Grass Root Campaign!> > > > > I think this sounds great and I love the slogan....when it gets to the tee shirt I'll sure by one or two.> MamaSher; 70, IPF 3-06, OR. > Nasturtiums> Don't fret about tomorrow, God is already there!> > > PF Awareness- Grass Root

Campaign!> > > > Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. > > If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness... .if we all band together we can make Blue

for PF as well known too:)> > We would love to hear your thoughts...What do you think?!> > {Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.> > Jan>

[Guest guest]

The T-shirts are a great idea, but I want to remind board members to write their Congressmen to support

current legislation to appropriate funds to bring more awareness of our disease and to increase research.

To my knowledge, this is a first effort to get Congress to do something on this scale. A flood of support from those of us who live with this disease would help make it a reality. My Congressman has assured me that

he will support the bill and urge all Congressman to do the same. BUT THEY NEED TO HEAR FROM US!

Don't miss the chance to make your voice heard. Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Thursday, July 23, 2009 7:08:17 PMSubject: Re: PF Awareness- Grass Root Campaign!

I want mine NOW.. I have 3 daughters and 3 sons-in-law and 8grandchildren so I need to order 16 in all the sizes you have LOL GREAT IDEA!Dyane Phoenix IPF 02>> Leanne S. and I have talked off and on about raising awareness invarious ways and some of us in Texas wanted to see, if the rest of thecountry wanted to join in on wearing Blue T-shirts on Fridays? With allthe other better known disease groups using pink and red and every othercolor, we settled on Blue because of the color our lungs become withoutoxygen.>> If enough people are interested we can even design our own shirt orjust keep it simple and put a "slogan" on it...like 'PulmonaryFibrosis...it takes your breath

away'. We are totally open and wouldlike your suggestions on this grass roots project....I think it issomething everyone can do, and sooner or later, when people startnoticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for BreastCancer Awareness... .if we all band together we can make Blue for PF aswell known too:)>> We would love to hear your thoughts...What do you think?!>> {Leanne, thank you for your support and permission in sharing thisidea with everyone online! Between the Pulmonary Fibrosis Foundation inChicago, the Coalition for Pulmonary Fibrosis in California and thePulmonary Fibrosis Association in Texas, we can all make a difference inhelping to raise awareness of a disease that no one still hears about.>> Jan>

[Guest guest]

Do you know the bill # so we can reference it to our congressman?Dorothy-fayetteville GAUIP-7/05Sent via BlackBerry by AT&TFrom: Jack Marshall Date: Fri, 24 Jul 2009 06:39:09 -0700 (PDT)To: <Breathe-Support >Subject: Re: Re: PF Awareness- Grass Root Campaign! The T-shirts are a great idea, but I want to remind board members to write their Congressmen to supportcurrent legislation to appropriate funds to bring more awareness of our disease and to increase research.To my knowledge, this is a first effort to get Congress to do something on this scale. A flood of support from those of us who live with this disease would help make it a reality. My Congressman has assured me thathe will support the bill and urge all Congressman to do the same. BUT THEY NEED TO HEAR FROM US!Don't miss the chance to make your voice heard. Jack79/IPF - UIP/dx06/05 MaineFrom: dyanebillings <dyane.billings (AT) ball-mcgraw (DOT) com>To: Breathe-Support Sent: Thursday, July 23, 2009 7:08:17 PMSubject: Re: PF Awareness- Grass Root Campaign! I want mine NOW.. I have 3 daughters and 3 sons-in-law and 8grandchildren so I need to order 16 in all the sizes you have LOL GREAT IDEA!Dyane Phoenix IPF 02>> Leanne S. and I have talked off and on about raising awareness invarious ways and some of us in Texas wanted to see, if the rest of thecountry wanted to join in on wearing Blue T-shirts on Fridays? With allthe other better known disease groups using pink and red and every othercolor, we settled on Blue because of the color our lungs become withoutoxygen.>> If enough people are interested we can even design our own shirt orjust keep it simple and put a "slogan" on it...like 'PulmonaryFibrosis...it takes your breath away'. We are totally open and wouldlike your suggestions on this grass roots project....I think it issomething everyone can do, and sooner or later, when people startnoticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for BreastCancer Awareness... .if we all band together we can make Blue for PF aswell known too:)>> We would love to hear your thoughts...What do you think?!>> {Leanne, thank you for your support and permission in sharing thisidea with everyone online! Between the Pulmonary Fibrosis Foundation inChicago, the Coalition for Pulmonary Fibrosis in California and thePulmonary Fibrosis Association in Texas, we can all make a difference inhelping to raise awareness of a disease that no one still hears about.>> Jan>

[Guest guest]

I would purchase a bunch for friends and familt. Carroll>> Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. > > If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness....if we all band together we can make Blue for PF as well known too:)> > We would love to hear your thoughts...What do you think?!I think this is a GREAT idea. I would definately buy shirts if you do this. Last summer I bought 30 of the white bracelets from Pulmonary Fibrosis and sold them at work, and to friends and family. I still wear my bracelet, never take it off. My daughter and one of my sons also wear theirs everyday.I will start wearing blue shirts on Friday. Hope this works out.Jo Ann 53 MI UIP 9/07> > {Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.> > Jan>

[Guest guest]

great idea, i'll buy a shirt today, and, as soon as some one get any printed with the logo and slogan i'll buy atleast one of those.

ken o.

To: Breathe-Support Sent: Thursday, July 23, 2009 1:06:41 PMSubject: PF Awareness- Grass Root Campaign!

Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness... .if we all band together we can make Blue for PF as well known too:)We would love to hear your

thoughts...What do you think?!{Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.Jan

[Guest guest]

Beth and everyone...

This is great and it just shows how we all want recognition of our disease and

awareness too. This is how it starts and grows...I'll start tracking names and

sizes,so when we have the final design and info we will be ready to place the

orders! We will get an order form put together also!

Go Blue...is right! Any blue shirt will work till we get the shirts put

together! Every Friday will be a Blue friday until all know about this disease.

I am sincerely grateful that you are all supporting this...we will make a

difference!

I can see newspapers with pictures and stories of groups of us wearing our Blue

Shirts...PF will be talked about,T-shirts can make a difference and it is all

thanks to you!

Good job!

[Guest guest]

As best as I can remember, it is HC 70 or HC73. Sorry, but my notes on the bill got lost in the move. However, your congressman should be able to get it by just asking for the bill on "improving public awareness of IPF and proving funding for IPF research." Jack79/IPF - UIP/dx06/05 Maine

To: Breathe-Support Sent: Friday, July 24, 2009 10:27:07 AMSubject: Re: Re: PF Awareness- Grass Root Campaign!

Do you know the bill # so we can reference it to our congressman?Dorothy-fayettevill e GAUIP-7/05

Sent via BlackBerry by AT & T

From: Jack Marshall Date: Fri, 24 Jul 2009 06:39:09 -0700 (PDT)To: <Breathe-Support@ yahoogroups. com>Subject: Re: Re: PF Awareness- Grass Root Campaign!

The T-shirts are a great idea, but I want to remind board members to write their Congressmen to support

current legislation to appropriate funds to bring more awareness of our disease and to increase research.

To my knowledge, this is a first effort to get Congress to do something on this scale. A flood of support from those of us who live with this disease would help make it a reality. My Congressman has assured me that

he will support the bill and urge all Congressman to do the same. BUT THEY NEED TO HEAR FROM US!

Don't miss the chance to make your voice heard. Jack79/IPF - UIP/dx06/05 Maine

From: dyanebillings <dyane.billings@ ball-mcgraw. com>To: Breathe-Support@ yahoogroups. comSent: Thursday, July 23, 2009 7:08:17 PMSubject: Re: PF Awareness- Grass Root Campaign!

I want mine NOW.. I have 3 daughters and 3 sons-in-law and 8grandchildren so I need to order 16 in all the sizes you have LOL GREAT IDEA!Dyane Phoenix IPF 02>> Leanne S. and I have talked off and on about raising awareness invarious ways and some of us in Texas wanted to see, if the rest of thecountry wanted to join in on wearing Blue T-shirts on Fridays? With allthe other better known disease groups using pink and red and every othercolor, we settled on Blue because of the color our lungs become withoutoxygen.>> If enough people are interested we can even design our own shirt orjust keep it simple and put a "slogan" on it...like 'PulmonaryFibrosis...it takes your breath

away'. We are totally open and wouldlike your suggestions on this grass roots project....I think it issomething everyone can do, and sooner or later, when people startnoticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for BreastCancer Awareness... .if we all band together we can make Blue for PF aswell known too:)>> We would love to hear your thoughts...What do you think?!>> {Leanne, thank you for your support and permission in sharing thisidea with everyone online! Between the Pulmonary Fibrosis Foundation inChicago, the Coalition for Pulmonary Fibrosis in California and thePulmonary Fibrosis Association in Texas, we can all make a difference inhelping to raise awareness of a disease that no one still hears about.>>

Jan>

[Guest guest]

I'll buy at least one of these Tshirts! Let me know the price! Joyce Rudy AZ birds

PF Awareness- Grass Root Campaign!

Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness... .if we all band together we can make Blue for PF as well known too:)We would love to hear your thoughts...What do you think?!{Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.Jan

[Guest guest]

Jack, True I wrote right after Leann brought it up about a month ago I guess..Don't have a lot of hope as I firmly believe Congressmen and Senetors are replaced by pod people as soon as they get to Washington They have to be to act they way they do!.Dyane phoenix IPF 02> >> > Leanne S. and I have talked off and on about raising awareness in> various ways and some of us in Texas wanted to see, if the rest of the> country wanted to join in on wearing Blue T-shirts on Fridays? With all> the other better known disease groups using pink and red and every other> color, we settled on Blue because of the color our lungs become without> oxygen.> >> > If enough people are interested we can even design our own shirt or> just keep it simple and put a "slogan" on it...like 'Pulmonary> Fibrosis...it takes your breath away'. We are totally open and would> like your suggestions on this grass roots project....I think it is> something everyone can do, and sooner or later, when people start> noticing others in Blue T-Shirts they will start asking us what is PF? > When we see a pink ribbon on a shirt we just know it is for Breast> Cancer Awareness... .if we all band together we can make Blue for PF as> well known too:)> >> > We would love to hear your thoughts...What do you think?!> >> > {Leanne, thank you for your support and permission in sharing this> idea with everyone online! Between the Pulmonary Fibrosis Foundation in> Chicago, the Coalition for Pulmonary Fibrosis in California and the> Pulmonary Fibrosis Association in Texas, we can all make a difference in> helping to raise awareness of a disease that no one still hears about.> >> > Jan> >>

[Guest guest]

not to long ago i saw someone wearing a t-shirt with lungs printed on the front, has anybody else seen this?

To: Breathe-Support Sent: Friday, July 24, 2009 6:05:43 PMSubject: Re: PF Awareness- Grass Root Campaign!

That sounds like a good idea to me and I like the slogan.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho

From: Jan <Jan3145 (AT) aol (DOT) com>Subject: PF Awareness- Grass Root Campaign!To: Breathe-Support@ yahoogroups. comDate: Thursday, July 23, 2009, 1:06 PM

Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness... .if we all band together we can make Blue for PF as well known too:)We would love to hear your

thoughts...What do you think?!{Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.Jan

[Guest guest]

Ken, When we were in San Teri had made each one of us a t-shirt with lungs and Pulmonary Fibrosis on it.. We all wore them and we really did get the comments. I still wear mine. It is a good design. I'll take a picture of it and post it. I haven't seen any others. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. not to long ago i saw someone wearing a t-shirt with lungs printed on the front, has anybody else seen this? From: Beverley Joy <sparrow_98367 (AT) yahoo (DOT) com>To: Breathe-Support Sent: Friday, July 24, 2009 6:05:43 PMSubject: Re: PF Awareness- Grass Root Campaign! That sounds like a good idea to me and I like the slogan.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho From: Jan <Jan3145 (AT) aol (DOT) com>Subject: PF Awareness- Grass Root Campaign!To: Breathe-Support@ yahoogroups. comDate: Thursday, July 23, 2009, 1:06 PM Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness... .if we all band together we can make Blue for PF as well known too:)We would love to hear your thoughts...What do you think?!{Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.Jan

[Guest guest]

i beleive the one i saw was in disneyland in april?

To: Breathe-Support Sent: Sunday, July 26, 2009 7:23:35 AMSubject: Re: PF Awareness- Grass Root Campaign!Ken, When we were in San Teri had made each one of us a t-shirt with lungs and Pulmonary Fibrosis on it... We all wore them

and we really did get the comments. I still wear mine. It is a good design. I'll take a picture of it and post it.

I haven't seen any others.

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.

not to long ago i saw someone wearing a t-shirt with lungs printed on the front, has anybody else seen this?

From: Beverley Joy <sparrow_98367@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, July 24, 2009 6:05:43 PMSubject: Re: PF Awareness- Grass Root Campaign!

That sounds like a good idea to me and I like the slogan.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho

From: Jan <Jan3145 (AT) aol (DOT) com>Subject: PF Awareness- Grass Root Campaign!To: Breathe-Support@ yahoogroups. comDate: Thursday, July 23, 2009, 1:06 PM

Leanne S. and I have talked off and on about raising awareness in various ways and some of us in Texas wanted to see, if the rest of the country wanted to join in on wearing Blue T-shirts on Fridays? With all the other better known disease groups using pink and red and every other color, we settled on Blue because of the color our lungs become without oxygen. If enough people are interested we can even design our own shirt or just keep it simple and put a "slogan" on it...like 'Pulmonary Fibrosis...it takes your breath away'. We are totally open and would like your suggestions on this grass roots project....I think it is something everyone can do, and sooner or later, when people start noticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for Breast Cancer Awareness... .if we all band together we can make Blue for PF as well known too:)We would love to hear your

thoughts...What do you think?!{Leanne, thank you for your support and permission in sharing this idea with everyone online! Between the Pulmonary Fibrosis Foundation in Chicago, the Coalition for Pulmonary Fibrosis in California and the Pulmonary Fibrosis Association in Texas, we can all make a difference in helping to raise awareness of a disease that no one still hears about.Jan