Re: re: pre-admission testing and pulmo visit

[Guest guest]

nne,

Well as far as pain goes, that is such an individual thing that no one can tell you with confidence that a lung biopsy will be painful. Mine wasn't. But of course there was this really precious little morphine dispenser to my left that my best friend kept punching, probably more often than I realized. I never felt pain from the biopsy, even with the tube and all. There was more pain associated with my hernia operation.

Allo of these things can be frightening at first. Then one day will follow another and another..... The one special thought and hope I have received already from this group is that we can have a good quality of life even with IPF.

I also think about Joe and those going into trials, not entirely for their own sake, but for those of us who may benefit from what researchers find out. It is my fervant hope that you and I and so many others can be told in just a few years that IPF isa not the dreaded disease it once was. I do believe that will come to pass in only a few years.

Do what you can to live as many years as long as you can, but most important, keep on having a great life. So many good times are truly ahead of you. I still smile to myself when I remember what I read on my biopsy report. "End Stage," it said, and that was four years ago. Geeta is clipping along on her 14th year following diagnosis. You can enjoy many good days ahead.

Jerry/Mississippi/54/IPF/04/05Who believes that hard times help us appreciate the good times even more.

Subject: re: pre-admission testing and pulmo visitTo: Breathe-Support Date: Wednesday, July 15, 2009, 11:42 PM

Well I just had the pre-admission testing and a consult with anesthesiologist who basically said I'm going to be in a lot of pain after the biopsy and probably end up at the ICU for awhile. She asked me if I had broncho spasms and I said oh you mean like hiccups that come from the lungs? And she told me I had to go back to my dr for a stronger inhaler because if the left lung goes into spasm while the right is collapsed it could be very dangerous. So I went to my pulmo and while he was getting me a free sample to use, I read report of CT scan that said findings were consistant with pF. So he comes back and I show him what I read and said " Nice knowing you- maybe we'll see each other in heaven!" Anyway he said that sentence didn't mean I had fibrosis- only biopsy can tell for sure. Trying to stay positive but today was hard. B/P is constantly high, 150/100, even his nurse said calm down already (but I thought I was calm- all I did was walk 10 feet

to the bathroom). Anyway- could this still be something treatable or is my dr just trying to stay optimistic for my sake. I am so glad I can just vent here- it really helps writing this down because I've been freaking out all day. Love to all!- nne ILD 6/09