RE: Re: PF synposium

[Guest guest]

Steve,

Looking forward to seeing you again.

I hope Jack can make it down from Bangor.

I haven’t heard from him. Good news on the transplant quest, I hope

it all falls into place. DeFazio from Boston (he is on the PFF

support group) should be at the symposium he was listed at Brigham and Women’s

and was flown to Pittsburgh for a transplant shortly following the last

symposium. Maybe we can all have a toast with bottles of Poland Springs (LOL).

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of s_knip51

Sent: Monday, August 31, 2009 7:07

PM

To: Breathe-Support

Subject: Re: PF

synposium

My wife Anne and I will be there.

I just had my latest appt. at the Lung Transplant Clinic at Brigham and Women's

Hospital in Boston,

last Thursday. I am now at the point where they anticipate activating me on the

transplant list after my next visit, in 4-6 weeks. That is contingent on my

losing the remaining weight to get down to my upper weight limit. I am now on

day 11 of a physician supervised liquid diet. In the first 11 days I have now

lost 12 pounds and I have another 12 left to go. So, I probably won't be able

to eat the lunch they provide at the symposium!!! lol

They will have oxygen available for those that need it. I remember they had it

last year also and it was a great help, being able to refill my Helios

Marathon.

Steve aka...Knip UIP/IPF 9/07 VATS 12/07

57 Plymouth, NH

>

> Hi Nan,

>

> I just got back home from my 48 week checkup with Dr. Zibrak this

afternoon

> and he said they are expecting about 150 for the symposium. My wife

Barbara

> and I will be attending (I'll be presenting) and my youngest son Greg and

> his wife Patti will be attending too. I'm not sure who else in the Breathe

> Support Group will be there.

>

>

>

> Ken Baker UIP/IPF 12/05 New

Hampshire

>

>

>

> _____

>

> From: Breathe-Support

> [mailto:Breathe-Support ]

On Behalf Of truromntc

> Sent: Monday, August 31, 2009 1:42 PM

> To: Breathe-Support

> Subject: PF synposium

>

>

>

>

>

> I'm getting excited. The symposium is coming up soon. I just booked my

> transportation to get there. It's in Boston

on the 12th of Sept.

> I mentioned it to my uncle. He's a RT in upstate N.Y. He said he's going

to

> try and switch shifts with someone and come down. I hope he can. It'll be

> nice spending some time with him and going to the symposium together.

> Will anyone else be coming?? I know there are a few people in N.H. I'd

love

> to meet some people.

> Nan 49, MA

> List started '82

> ILD '04

> PF '08

> Asthma '09

>