Re: Micobacterium Avium or Hypersensitivity Pneumonitis

[Guest guest]

Hi Peggy,

I have hypersensitivity pneumonitis. This does cause scarring in the lungs usually but not always.The problem with this is that we do not know what set it off and therefore we can't control the attacks. I moved form my home of 20yrs into a new apt, got rid of birds, cats, and alll but 1 dog (she's so old I couldn't).Everything went fine for about 1 yr, and then at christmas I couldn't breath. I had to go on o2 24/7. this has been 2yrs ago. If and it is a big IF you do not have scarring and can stay away from what caused the reaction your life will be the same as before, but be sure to treat all allergic reactions and sinus infection. Try to stay away from dust, mold and anything you know you are allergic to. Here is wishing you the best in life

HP PF 5/06 60 TN

PS there is a blood test ( I don't know the name) for PH.

Subject: Micobacterium Avium or Hypersensitivity PneumonitisTo: Breathe-Support Date: Wednesday, July 15, 2009, 6:23 PM

Hi Everyone, I had a follow-up appointment with Dr. Raghu today after all my tests and my PFT's today and my own observation of my O2 saturation (which has been staying around 98-99% even under exertion) and he said I do not have Pulmonary Fibrosis but do have a "mild" interstitial lung disease of either micobacterium avium or hypersensitivity pneumonitis groupings. He said I could wait a year to see him again unless something changes with my condition and there is a good chance that my condition may stay stable as it is the rest of my life. Of course I have realized that anything can happen at any time (as it did in the spring of 2007) so I am going to go about my life enjoying everyday as much as humanly possible. I believe that I was either exposed to something or contracted something in the spring of 2007 that has taken me a couple years to fully recover from but I am as good as I can be at the moment. Does anyone have any experience

with either of these conditions and have them resolve completely? My CT still shows some 'unresolved' areas. I am going to continue to take good care of my health overall to give my immune system the best chance possible and think positively. Thanks so much everyone for all the wonderful support you've given me over these past months. Peggy E. (mild ILD, GERD)

[Guest guest]

Peggy,

Wow this is a pretty big shift way from gerd being responsible for your lung disease. This is all so complex isn't it? I'm curious..in the subject line you specifically mention Mycobacterium Avium...have they cultured you for MAC? It's very treatable with some of the heavy duty anti-tuberculosis antibiotics. It's a nasty infection which can certainly make you very sick. Are they thinking you did have it and it cleared up on it's own? That's would be pretty unusual but I suppose not impossible. MAC Is more typically found in folks who are immune compromised. Interestingly enough it can also cause GI symptoms in addition to the respiratory symptoms.

HP is something that Arnold already commented on very thoroughly and capably. Trying to figure out the cause and then keeping clear of it can be a challenge but it does provide hope for longer term stability.

I hope you continue to do well! Good luck!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Wednesday, July 15, 2009 7:23:23 PMSubject: Micobacterium Avium or Hypersensitivity Pneumonitis

Hi Everyone, I had a follow-up appointment with Dr. Raghu today after all my tests and my PFT's today and my own observation of my O2 saturation (which has been staying around 98-99% even under exertion) and he said I do not have Pulmonary Fibrosis but do have a "mild" interstitial lung disease of either micobacterium avium or hypersensitivity pneumonitis groupings. He said I could wait a year to see him again unless something changes with my condition and there is a good chance that my condition may stay stable as it is the rest of my life. Of course I have realized that anything can happen at any time (as it did in the spring of 2007) so I am going to go about my life enjoying everyday as much as humanly possible. I believe that I was either exposed to something or contracted something in the spring of 2007 that has taken me a couple years to fully recover from but I am as good as I can be at the moment. Does anyone have any experience with

either of these conditions and have them resolve completely? My CT still shows some 'unresolved' areas. I am going to continue to take good care of my health overall to give my immune system the best chance possible and think positively. Thanks so much everyone for all the wonderful support you've given me over these past months. Peggy E. (mild ILD, GERD)

[Guest guest]

Congratulations Peggy!Such great news to know that you do not have

pulmonary fibrosis, such a relef, may God bless and keep you in good health

LOve

Geeta

>

> Hi Everyone, I had a follow-up appointment with Dr. Raghu today after all my

tests and my PFT's today and my own observation of my O2 saturation (which has

been staying around 98-99% even under exertion) and he said I do not have

Pulmonary Fibrosis but do have a " mild " interstitial lung disease of either

micobacterium avium or hypersensitivity pneumonitis groupings. He said I could

wait a year to see him again unless something changes with my condition and

there is a good chance that my condition may stay stable as it is the rest of my

life. Of course I have realized that anything can happen at any time (as it did

in the spring of 2007) so I am going to go about my life enjoying everyday as

much as humanly possible. I believe that I was either exposed to something or

contracted something in the spring of 2007 that has taken me a couple years to

fully recover from but I am as good as I can be at the moment.

>

> Does anyone have any experience with either of these conditions and have them

resolve completely? My CT still shows some 'unresolved' areas. I am going to

continue to take good care of my health overall to give my immune system the

best chance possible and think positively.

>

> Thanks so much everyone for all the wonderful support you've given me over

these past months.

>

> Peggy E. (mild ILD, GERD)

>

[Guest guest]

Peggy E, I am very happy for you. I can not imagine a Dr saying those words.... What a moment. Go live life like crazy.I know you and your family are so very relieved. God is good. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Congratulations Peggy!Such great news to know that you do not have pulmonary fibrosis, such a relef, may God bless and keep you in good health LOve Geeta > > Hi Everyone, I had a follow-up appointment with Dr. Raghu today after all my tests and my PFT's today and my own observation of my O2 saturation (which has been staying around 98-99% even under exertion) and he said I do not have Pulmonary Fibrosis but do have a "mild" interstitial lung disease of either micobacterium avium or hypersensitivity pneumonitis groupings. He said I could wait a year to see him again unless something changes with my condition and there is a good chance that my condition may stay stable as it is the rest of my life. Of course I have realized that anything can happen at any time (as it did in the spring of 2007) so I am going to go about my life enjoying everyday as much as humanly possible. I believe that I was either exposed to something or contracted something in the spring of 2007 that has taken me a couple years to fully recover from but I am as good as I can be at the moment. > > Does anyone have any experience with either of these conditions and have them resolve completely? My CT still shows some 'unresolved' areas. I am going to continue to take good care of my health overall to give my immune system the best chance possible and think positively. > > Thanks so much everyone for all the wonderful support you've given me over these past months. > > Peggy E. (mild ILD, GERD) >

[Guest guest]

Peggy E,

I forgot to ask which GERD med you are taking. We finally fround that Protonix 20mg hsndles the gerd better than anything else for me.

A HP PF 5/06 60 TN

Congratulations Peggy!Such great news to know that you do not have pulmonary fibrosis, such a relef, may God bless and keep you in good healthLOveGeeta>> Hi Everyone, I had a follow-up appointment with Dr. Raghu today after all my tests and my PFT's today and my own observation of my O2 saturation (which has been staying around 98-99% even under exertion) and he said I do not have Pulmonary Fibrosis but do have a "mild" interstitial lung disease of either micobacterium avium or hypersensitivity pneumonitis groupings. He said I could wait a year to see him again unless something changes with my condition and there is a good chance that my condition may stay

stable as it is the rest of my life. Of course I have realized that anything can happen at any time (as it did in the spring of 2007) so I am going to go about my life enjoying everyday as much as humanly possible. I believe that I was either exposed to something or contracted something in the spring of 2007 that has taken me a couple years to fully recover from but I am as good as I can be at the moment. > > Does anyone have any experience with either of these conditions and have them resolve completely? My CT still shows some 'unresolved' areas. I am going to continue to take good care of my health overall to give my immune system the best chance possible and think positively. > > Thanks so much everyone for all the wonderful support you've given me over these past months. > > Peggy E. (mild ILD, GERD)>

[Guest guest]

PeggyE.... What wonderful news for you! At least you can scratch PF off your list of problems.

I'm really glad for you.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Micobacterium Avium or Hypersensitivity Pneumonitis

Hi Everyone, I had a follow-up appointment with Dr. Raghu today after all my tests and my PFT's today and my own observation of my O2 saturation (which has been staying around 98-99% even under exertion) and he said I do not have Pulmonary Fibrosis but do have a "mild" interstitial lung disease of either micobacterium avium or hypersensitivity pneumonitis groupings. He said I could wait a year to see him again unless something changes with my condition and there is a good chance that my condition may stay stable as it is the rest of my life. Of course I have realized that anything can happen at any time (as it did in the spring of 2007) so I am going to go about my life enjoying everyday as much as humanly possible. I believe that I was either exposed to something or contracted something in the spring of 2007 that has taken me a couple years to fully recover from but I am as good as I can be at the moment. Does anyone have any experience with either of these conditions and have them resolve completely? My CT still shows some 'unresolved' areas. I am going to continue to take good care of my health overall to give my immune system the best chance possible and think positively. Thanks so much everyone for all the wonderful support you've given me over these past months. Peggy E. (mild ILD, GERD)