Re: CPAPs

[Guest guest]

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It took them two months to get me diagnosed and level set. They have taken an

additional two months fine tuning it. I got the ResMed Auto adjust one. They

started me on a lower level and worked me up to the 13-16 range. My cpap doctor

says my numbers are good, but she would like to have additional 2 liters of

oxygen mixed in. My pulmonologist says don't need it. I am using the

additional oxygen while here at home (4800 feet elevation), but don't worry

about it when I visit at lower elevations (less than 500 feet elevation). I

double checked with a third party (National Jewish Oxygen support staff) and

they agreed with my take on the advice. Just be aware that there may be

additional adjustments. I have done 3 additional sleep recordings (using the

memory chip in the CPAP and the oximeter recorder that I check out from the

medical supply company) since I originally got my machine. I am figuring they

may ask me to do it again if there is a change in my health status or they want

to make sure I am stable (in 6 months to a year).

Stefani

ILD 2/2006, NSIP (cellular) 6/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

> >

> > I was just diagnosed with Sleep Apnea and have my clinical appointment

> for the CPAP fitting and training. Anything I should know about

> before-hand?

> >

> > C_53_IPF_5/09

> > Washington-the-Evergreen-state

> >

>

[Guest guest]

Hi ,

When I was first diagnosed knowing nothing about masks I ended up with

the nose plugs and an elastic band aroung my jaw to keep it closed. At

that time my ins would buy me a new mask 2x a year. Now it is every

three months and since I have a health savings account plan I simply buy

my over the internet - so much cheaper and I don't have to deal with the

ins company which insists on a new prescription for each mask - idiots!

I use the Fisher Pakel 402(2) as it actually fits under the chin which

helps keep my mouth closed. Its not quite as comfortable as the blue

gel but I have a very small face (stuck on my round prednisone head tee

hee) and their size small fits better than the blue gel size small.

After 4 years I cannot sleep without my cpap and if I do fall asleep

without it I wake up with the worst sore throat from snoring! I also

have a special plug on the end of the hose to attach to the o2 hose at

night. Once you get past the 'I'm wearing an alien on my face to bed'

part, you wont want to be without it. Be proactive and get a mask that

fits! Good Luck

Dyane Phoenix IPF 02

>

> I was just diagnosed with Sleep Apnea and have my clinical appointment

for the CPAP fitting and training.� Anything I should know about

before-hand?��

>

> C_53_IPF_5/09

> Washington-the-Evergreen-state

>