RE: My experience with Hospice

[Guest guest]

Narice,

That's just so sad that they would act like that when people need them so

desperately. It's just way different from what I understand hospice to be all

about. If they were recommended by someone, I'd certainly register my

complaints to whoever recommended them. You're so lucky to have such a loving

church family, just wish we could have all been there to help you too. And

bless Tim for being such a good son. I did the same with my dad before he died.

Kids have way more strength and courage than we give them credit for sometimes,

don't they.

flipper759@... wrote:

As I wrote I was NOT happy with our Hospice experience.

I felt they really left us alone to manage most of Phil's care ourselves and

did next to nothing to help US. They did come bathe him and check vitals but

I administered his medications I cleaned him up and in the early days before

we went on full care

(which basically means a few more appointments)

The biggest disappointment was that they would say to call them if we had

questions concerns or needed support but they rarely came. One day my 14 year

old son Tim tried to help Phil to the bedside chair and Phil fell and lost

control of himself. I was not here but Tim Helped Phil in every way, i.e., held

him up changed him and put him to bed. He then called Hospice with notable

upset but Hospice never came.

Whenever we called to report a change in Phil's condition we got the

impression it was an imposition for the nurse to come out.

The night Phil died the nurse was giving my boys a talk on how someone dies

and how we grieve!!! As I was hugging Phil and crying she was standing in

the background as though I was holding her up from watching a repeat of

Seinfeld.

The next day the crew came to get all the medical equipment but left some

items when I called to ask what to do with them I got the distinct impression

that the office couldn't be bothered.

Thank God the members of our church took 2 hour shifts and included enough

nurses that Phil had skilled care as needed. BUT I can't help wonder how

lonely and confusing the journey is for those with no other help.

Bottom line check out the agency

Narice.

[Guest guest]

That is so sad.. I sure would complain to someone about their care. Even

though hospice never had to actually help me with Richie, but they did bring

the stuff to the house and for at least a year after someone would call me

on a monthly basis to see how I was doing. They only thing they goofed on

was they submitted a bill to medicare for the equipment that they brought to

my house (and never used) of over $1,000 but it was denied because they

submitted it too late. It is downright shame that they treated you the way

they did. Oh I am sure it broke Tim's heart when his dad fell. A big hug to

him for helping is dad. Oh I would so hurt that hospice for not coming to

aid Tim.. I feel so bad for you. Take care and God Bless. Lotsa love and

big hugs Jolene

My experience with Hospice

As I wrote I was NOT happy with our Hospice experience.

I felt they really left us alone to manage most of Phil's care ourselves

and

did next to nothing to help US. They did come bathe him and check vitals

but

I administered his medications I cleaned him up and in the early days

before

we went on full care

(which basically means a few more appointments)

The biggest disappointment was that they would say to call them if we had

questions concerns or needed support but they rarely came. One day my 14

year

old son Tim tried to help Phil to the bedside chair and Phil fell and lost

control of himself. I was not here but Tim Helped Phil in every way, i.e.,

held

him up changed him and put him to bed. He then called Hospice with notable

upset but Hospice never came.

Whenever we called to report a change in Phil's condition we got the

impression it was an imposition for the nurse to come out.

The night Phil died the nurse was giving my boys a talk on how someone dies

and how we grieve!!! As I was hugging Phil and crying she was standing in

the background as though I was holding her up from watching a repeat of

Seinfeld.

The next day the crew came to get all the medical equipment but left some

items when I called to ask what to do with them I got the distinct

impression

that the office couldn't be bothered.

Thank God the members of our church took 2 hour shifts and included enough

nurses that Phil had skilled care as needed. BUT I can't help wonder how

lonely and confusing the journey is for those with no other help.

Bottom line check out the agency

Narice.

[Guest guest]

Well said, dear Lydia.

mily wrote:

Dear Narice.

Some people have no feelings at all. They only work

for the sake of making money. Those people shouldn't

be doing this kind of work for living. There are

planty of other types of work that would fit them

better.

However, I am sure that those guys may say that they

didn't help you because there were so many people from

church.

As for your son, give him a big hug from me, he's so

wonderful. I am sure that this kind of experience will

mark his life for ever, he will grow much faster than

other boys of his age. And I am so sure, your boys are

going to be wonderfull people, just like their

parents. Phil has left you two beautiful gems.

As for the hospice, you or someone else should write

to them and refer what was wrong with them.

I don't know why some people take advantage of others,

in moments when those are so weak and desperate.

Here in this part of the world, from what I hear, they

are not much different. They try to arrange things, so

desperate people end up paying and buying expensive

services. Things like transportation for the beloved

one, transportation for buses for people, when this is

necessary, flowers etc..

Dear Narice it made me so sad, when you wrote that you

were huging and crying for Phil. God Bless you.

I am sending you my prayers, so things can settle down

easier than it has been so far. God is taken care of

Phil and little by little you will organize your life

again. Take care. You are a wonderful and courageous

person.

love,

lydia

--- flipper759@... wrote:

>

>

> As I wrote I was NOT happy with our Hospice

> experience.

> I felt they really left us alone to manage most of

> Phil's care ourselves and

> did next to nothing to help US. They did come bathe

> him and check vitals but

> I administered his medications I cleaned him up and

> in the early days before

> we went on full care

> (which basically means a few more appointments)

>

> The biggest disappointment was that they would say

> to call them if we had

> questions concerns or needed support but they rarely

> came. One day my 14 year

> old son Tim tried to help Phil to the bedside chair

> and Phil fell and lost

> control of himself. I was not here but Tim Helped

> Phil in every way, i.e., held

> him up changed him and put him to bed. He then

> called Hospice with notable

> upset but Hospice never came.

>

> Whenever we called to report a change in Phil's

> condition we got the

> impression it was an imposition for the nurse to

> come out.

>

> The night Phil died the nurse was giving my boys a

> talk on how someone dies

> and how we grieve!!! As I was hugging Phil and

> crying she was standing in

> the background as though I was holding her up from

> watching a repeat of

> Seinfeld.

>

> The next day the crew came to get all the medical

> equipment but left some

> items when I called to ask what to do with them I

> got the distinct impression

> that the office couldn't be bothered.

>

> Thank God the members of our church took 2 hour

> shifts and included enough

> nurses that Phil had skilled care as needed. BUT I

> can't help wonder how

> lonely and confusing the journey is for those with

> no other help.

>

> Bottom line check out the agency

>

> Narice.

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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