Ronnie--Transplant evaluation

[Guest guest]

Ronnie,

I'm not sure if anyone in the group has had a transplant evaluation done in Dallas. We have many members in Texas but I'm not sure off the top of my head if we have anyone who's been evaluated for transplant recently in Texas.

Please let us know how it goes. We'll be thinking of you!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Saturday, July 25, 2009 6:48:44 AMSubject: Re: Re: Transplant Evaluation!

I am new to support group and I am not sure if we have talked before. Did you do your evaluation in dallas or was that a messge from someone else in our group?. i will be going to dallas this wed to be evaluated.

Ronnie

From: Beverley Joy <sparrow_98367@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Friday, July 24, 2009 8:14:14 PMSubject: Re: Re: Transplant Evaluation!

Sher. Will Lincare give a different concentrator or did you buy yours?The person who wanted to look at my house must have changed her mind. Maybe she just wanted to look inside my house.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Transplant Evaluation!To: Breathe-Support@ yahoogroups. comDate: Wednesday, July 15, 2009, 11:16 AM

DorothyThe insurances choose for different reasons. Sometimes its because oftheir hospital contracts and, when so, thats troublesome as you may notbe able to choose the best or closest. In Jan's case, if I remembercorrectly, its a choice based on quality. Methodist Hospital in Houstonhad a period during which they considered them not to meet the standard.I do believe though that they have recovered or are on the way torecovery.JanIs there a chance down the road, you'll switch to Houston? I see theyare doing far more transplants than UTSW and while their success rate islower they are transplanting a much higher percentage of those waiting.>> Jan,>

Congrats - you must be glad this portion is complete. How long is the> process? This is going to be my next step after I see the doctor on8/20.>> I didn't realize your insurance would choose the facility that youhave to> go to. Is that because there is not a transplant hospital near you?>> I will keep you in my prayers for approval by the Committee.> Dorothy, Fayetteville, GA> UIP 7/05>> _____>> From: Breathe-Support@ yahoogroups. com> [mailto:Breathe-Support@ yahoogroups. com] On Behalf Of Jan> Sent: Wednesday, July 15, 2009 11:29 AM> To: Breathe-Support@ yahoogroups. . com> Subject: Transplant Evaluation!>>>>>> I have just completed (I think) testing for transplanteligibility. ..it was> very interesting and intense!>> Due to my insurance we have to go to Dallas for anything related to> Transplant. We are patients of the Heart and Lung Transplantdepartment at> UT Southwest. I can't say enough about every single employee at thehospital> and every specialist's office that we have had to visit. They are allvery> concerned about your comfort, that you do not have to wait for your> appointment and that you always have someone right there to help youfind> whatever you may need ! Even the doctors take their time and visitwith

you> until all your questions are answered. We are very impressed. They areone> of the Centers of Excellence, and we can sure see how they got there!>> Hopefully, my case will be presented to the Committee on Friday ofthis> week...if not then the next week.. It has been fun...interesting andthe> source of greater fatigue, just keeping up with the schedule...lol. ..>> I hope you all have a great Wednesday today!>

[Guest guest]

Peggy

No, I have not heard anything from her recently.

> > >

> > > Jan,

> > >

> > Congrats - you must be glad this portion is complete. How long is

the

> > > process? This is going to be my next step after I see the doctor

on

> > 8/20.

> > >

> > > I didn't realize your insurance would choose the facility that

you

> > have to

> > > go to. Is that because there is not a transplant hospital near

you?

> > >

> > > I will keep you in my prayers for approval by the Committee.

> > > Dorothy, Fayetteville, GA

> > > UIP 7/05

> > >

> > > _____

> > >

> > > From: Breathe-Support@ yahoogroups. com

> > > [mailto:Breathe-Support@ yahoogroups. com] On Behalf Of Jan

> > > Sent: Wednesday, July 15, 2009 11:29 AM

> > > To: Breathe-Support@ yahoogroups. . com

> > > Subject: Transplant Evaluation!

> > >

> > >

> > >

> > >

> > >

> > > I have just completed (I think) testing for transplant

> > eligibility. ..it was

> > > very interesting and intense!

> > >

> > > Due to my insurance we have to go to Dallas for anything related

to

> > > Transplant. We are patients of the Heart and Lung Transplant

> > department at

> > > UT Southwest. I can't say enough about every single employee at

the

> > hospital

> > > and every specialist's office that we have had to visit. They are

> all

> > very

> > > concerned about your comfort, that you do not have to wait for

your

> > > appointment and that you always have someone right there to help

> you

> > find

> > > whatever you may need ! Even the doctors take their time and

visit

> > with

> > you

> > > until all your questions are answered. We are very impressed.

They

> are

> > one

> > > of the Centers of Excellence, and we can sure see how they got

> there!

> > >

> > > Hopefully, my case will be presented to the Committee on Friday

of

> > this

> > > week...if not then the next week.. It has been fun...interesting

> and

> > the

> > > source of greater fatigue, just keeping up with the

schedule...lol.

> ..

> > >

> > > I hope you all have a great Wednesday today!

> > >

> >

>