Guest guest Posted December 26, 2005 Report Share Posted December 26, 2005 Sharon You are so right about the low potassium, when I had that during chemo my Onc was quite worried about that and stressed that it was life threatening. It was good he told me because aside from the diarrhea and the usual chemo tiredness I didn't feel as if I was at death's door. Yes I too hope Donelle and Glenn's day went well was not too traumatic for him or Donelle. I just hope his family behaved themselves. Yes the Lord is celebrating His glorious feast with a remarkable crew from our group here and more than a few from others groups and families as well. Your mom is in good company. Take care, am off to do some errands before I go to work at 1pm, already had to wash two loads of clothes --- am out of underwear and slacks.. LOL.. Hopefully I will lose some weight soon and fit my jeans again. God Bless and Hugs Jolene _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 Len, You are so very right about that. I have also noticed how often I have to remind my Onc for this or that. But they have so many patients that they just glance at your chart and wing it from there. That can be dangerous if we are not careful. We all should take our treatments and check and double check them. Love, Ingrid > > > > Sharon > > > > You are so right about the low potassium, when I had > that during > chemo my > > Onc was quite worried about that and stressed that > it was life > threatening. > > It was good he told me because aside from the > diarrhea and the > usual chemo > > tiredness I didn't feel as if I was at death's door. > > > > > > > > > Yes I too hope Donelle and Glenn's day went well was > not too > traumatic for > > him or Donelle. I just hope his family behaved > themselves. Yes > the Lord is > > celebrating His glorious feast with a remarkable > crew from our > group here > > and more than a few from others groups and families > as well. Your > mom is in > > good company. > > > > Take care, am off to do some errands before I go to > work at 1pm, > already had > > to wash two loads of clothes --- am out of underwear > and slacks.. > LOL.. > > Hopefully I will lose some weight soon and fit my > jeans again. God > Bless and > > Hugs Jolene > > > > > > > > _____ > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > For an an extensive collection of colon cancer related > links go to > http://groups.yahoo.com/group/colon_cancer_support/links > or > http://ourworld.compuserve.com/homepages/suthercon/ > > yahoo.com/group/colon_cancer_support/links or > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2005 Report Share Posted December 27, 2005 When I see my onc again will ask him if there is anything he forgot to tell me. Duh! I can plead ignorance to the MRI, say what MRI, no one told me about it. LOL. I just have to find time to do it now. My bones ache especially tonight. Have two more days and I will be off for the weekend. Have two gals out sick from fabric department. Hope I don't get it. Hugs to all Jolene Re:Sharon and Donelle Len, You are so very right about that. I have also noticed how often I have to remind my Onc for this or that. But they have so many patients that they just glance at your chart and wing it from there. That can be dangerous if we are not careful. We all should take our treatments and check and double check them. Love, Ingrid > > > > Sharon > > > > You are so right about the low potassium, when I had > that during > chemo my > > Onc was quite worried about that and stressed that > it was life > threatening. > > It was good he told me because aside from the > diarrhea and the > usual chemo > > tiredness I didn't feel as if I was at death's door. > > > > > > > > > Yes I too hope Donelle and Glenn's day went well was > not too > traumatic for > > him or Donelle. I just hope his family behaved > themselves. Yes > the Lord is > > celebrating His glorious feast with a remarkable > crew from our > group here > > and more than a few from others groups and families > as well. Your > mom is in > > good company. > > > > Take care, am off to do some errands before I go to > work at 1pm, > already had > > to wash two loads of clothes --- am out of underwear > and slacks.. > LOL.. > > Hopefully I will lose some weight soon and fit my > jeans again. God > Bless and > > Hugs Jolene > > > > > > > > _____ > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > For an an extensive collection of colon cancer related > links go to > http://groups.yahoo.com/group/colon_cancer_support/links > or > http://ourworld.compuserve.com/homepages/suthercon/ > > yahoo.com/group/colon_cancer_support/links or > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 Len & Ingrid, You are 100% correct about being on guard. Mom often heard things very differently from what I did. Often no explanation was given, and Mom, bless her, never wanted to " put anyone out " or question the doctors. I was on offense as much as possible, but Mom would get mad if she thought I was too tough on the docs. I still believe that Mom would have lived longer(but maybe for the worse)if the docs had not been so blunt. The radiation onc said he was going to waste his time on small spots; the onc told her that her CEA was over 1000 ( this was 4 weeks after it was below 40), and the PCP told her it was time to call in hospice. Not one of them ever addressed her deep depression that had been there for months. I'm not saying this would have changed the outcome, but it might have given her some " good " time. I just can't seem to let go of my resentment of the docs. Sorry, still venting after 8 months. Sharon - In colon_cancer_support , " Ingrid Lowe " <lowenco@h...> wrote: > > Len, You are so very right about that. I have also noticed how often > I have to remind my Onc for this or that. But they have so many > patients that they just glance at your chart and wing it from there. > That can be dangerous if we are not careful. We all should take our > treatments and check and double check them. Love, Ingrid > > > > > > > > > > Sharon > > > > > > You are so right about the low potassium, when I had > > that during > > chemo my > > > Onc was quite worried about that and stressed that > > it was life > > threatening. > > > It was good he told me because aside from the > > diarrhea and the > > usual chemo > > > tiredness I didn't feel as if I was at death's door. > > > > > > > > > > > > > > Yes I too hope Donelle and Glenn's day went well was > > not too > > traumatic for > > > him or Donelle. I just hope his family behaved > > themselves. Yes > > the Lord is > > > celebrating His glorious feast with a remarkable > > crew from our > > group here > > > and more than a few from others groups and families > > as well. Your > > mom is in > > > good company. > > > > > > Take care, am off to do some errands before I go to > > work at 1pm, > > already had > > > to wash two loads of clothes --- am out of underwear > > and slacks.. > > LOL.. > > > Hopefully I will lose some weight soon and fit my > > jeans again. God > > Bless and > > > Hugs Jolene > > > > > > > > > > > > _____ > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > > > > For an an extensive collection of colon cancer related > > links go to > > http://groups.yahoo.com/group/colon_cancer_support/links > > or > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > yahoo.com/group/colon_cancer_support/links or > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 Dear Sharon, You are absolutely correct that had Your mom been given any hope it might have changed the outcome or at least given her more time. It is very well known that people without hope just give up. Studies have proven that people that have hope, purpose, plan for a future & are positive about their lives have better outcomes & longer survival rates. Why do some doctors have to take that away from people? Why can't they be honest without destroying all hope? Why not say " we will do all that we can. Don't stop fighting there is always hope " ? Or tell people " statistically these are the facts, but I have seen people beat the odds before don't give up hope. " I know a man " Cliff Beckwith " that was diagnosed fifteen years ago with stage 4 PC & was given a few months to live as doctors said there was nothing that could be done. If Cliff had listened to the doctors he would have died a long time age. He didn't give up he searched for answers & found the Budwig Protocol. Not only is he alive fifteen years later he has established a yahoo group & helps others on this journey find the answers they are searching for. What a waste of a compassionate, useful, beautiful human being if he had just done what the doctors told him to do (die in a few months). I am so sorry that you are suffering the loss of your mother & feeling such resentment towards her doctors. You must find a way to release those feelings & free yourself from any guilt. It sounds as though you were a devoted & loving daughter to her & I'm sure she saw everyday how very much you loved her. Sincerely, Trase tarcav23 wrote: Len & Ingrid, You are 100% correct about being on guard. Mom often heard things very differently from what I did. Often no explanation was given, and Mom, bless her, never wanted to " put anyone out " or question the doctors. I was on offense as much as possible, but Mom would get mad if she thought I was too tough on the docs. I still believe that Mom would have lived longer(but maybe for the worse)if the docs had not been so blunt. The radiation onc said he was going to waste his time on small spots; the onc told her that her CEA was over 1000 ( this was 4 weeks after it was below 40), and the PCP told her it was time to call in hospice. Not one of them ever addressed her deep depression that had been there for months. I'm not saying this would have changed the outcome, but it might have given her some " good " time. I just can't seem to let go of my resentment of the docs. Sorry, still venting after 8 months. Sharon - In colon_cancer_support , " Ingrid Lowe " <lowenco@h...> wrote: > > Len, You are so very right about that. I have also noticed how often > I have to remind my Onc for this or that. But they have so many > patients that they just glance at your chart and wing it from there. > That can be dangerous if we are not careful. We all should take our > treatments and check and double check them. Love, Ingrid > > > > > > > > > > Sharon > > > > > > You are so right about the low potassium, when I had > > that during > > chemo my > > > Onc was quite worried about that and stressed that > > it was life > > threatening. > > > It was good he told me because aside from the > > diarrhea and the > > usual chemo > > > tiredness I didn't feel as if I was at death's door. > > > > > > > > > > > > > > Yes I too hope Donelle and Glenn's day went well was > > not too > > traumatic for > > > him or Donelle. I just hope his family behaved > > themselves. Yes > > the Lord is > > > celebrating His glorious feast with a remarkable > > crew from our > > group here > > > and more than a few from others groups and families > > as well. Your > > mom is in > > > good company. > > > > > > Take care, am off to do some errands before I go to > > work at 1pm, > > already had > > > to wash two loads of clothes --- am out of underwear > > and slacks.. > > LOL.. > > > Hopefully I will lose some weight soon and fit my > > jeans again. God > > Bless and > > > Hugs Jolene > > > > > > > > > > > > _____ > > > > > > > > > > > > [Non-text portions of this message have been > > removed] > > > > > > > > > > > > > > > > > For an an extensive collection of colon cancer related > > links go to > > http://groups.yahoo.com/group/colon_cancer_support/links > > or > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > yahoo.com/group/colon_cancer_support/links or > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2005 Report Share Posted December 28, 2005 Sharon, I am so sorry that your mom's doctors did not treat you and your mom with more heart. But I also understand that the doctors cannot give false hope. Just wish they would at least not be so morbid. Doctors should by now know that there is always some hope. Even if it is just a glimmer, there has been miralces that have occured before. Even they should know that. Seems that the cancer doctors now a days are so busy making the almighty dollar that they forget that they are treating humans who have feelings and a soul. Not all doctors are like this but some are. I know that when I am nervous and scared at a doctors visit, the way the doctor talks to me and tells me what to expect is how my feelings will be. We all depend on the doctor so much and the way they interact with us can cause us to give the fight up or try to fight this. I hope and Pray that you can find some peace within yourself and know that your mom is looking down on you and wanting you to be Happy and Peaceful. Love, ingrid > > > > > > > > Sharon > > > > > > > > You are so right about the low potassium, when I had > > > that during > > > chemo my > > > > Onc was quite worried about that and stressed that > > > it was life > > > threatening. > > > > It was good he told me because aside from the > > > diarrhea and the > > > usual chemo > > > > tiredness I didn't feel as if I was at death's door. > > > > > > > > > > > > > > > > > > > Yes I too hope Donelle and Glenn's day went well was > > > not too > > > traumatic for > > > > him or Donelle. I just hope his family behaved > > > themselves. Yes > > > the Lord is > > > > celebrating His glorious feast with a remarkable > > > crew from our > > > group here > > > > and more than a few from others groups and families > > > as well. Your > > > mom is in > > > > good company. > > > > > > > > Take care, am off to do some errands before I go to > > > work at 1pm, > > > already had > > > > to wash two loads of clothes --- am out of underwear > > > and slacks.. > > > LOL.. > > > > Hopefully I will lose some weight soon and fit my > > > jeans again. God > > > Bless and > > > > Hugs Jolene > > > > > > > > > > > > > > > > _____ > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > For an an extensive collection of colon cancer related > > > links go to > > > http://groups.yahoo.com/group/colon_cancer_support/links > > > or > > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > yahoo.com/group/colon_cancer_support/links or > > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 Dear Trase, Why is it that docs think they are giving false hope? Your words are so much kinder and yet still convey the situation. I know that I have to let go, but I'd really like to see the docs develope some compassion. Sharon > > > > > > > > Sharon > > > > > > > > You are so right about the low potassium, when I had > > > that during > > > chemo my > > > > Onc was quite worried about that and stressed that > > > it was life > > > threatening. > > > > It was good he told me because aside from the > > > diarrhea and the > > > usual chemo > > > > tiredness I didn't feel as if I was at death's door. > > > > > > > > > > > > > > > > > > > Yes I too hope Donelle and Glenn's day went well was > > > not too > > > traumatic for > > > > him or Donelle. I just hope his family behaved > > > themselves. Yes > > > the Lord is > > > > celebrating His glorious feast with a remarkable > > > crew from our > > > group here > > > > and more than a few from others groups and families > > > as well. Your > > > mom is in > > > > good company. > > > > > > > > Take care, am off to do some errands before I go to > > > work at 1pm, > > > already had > > > > to wash two loads of clothes --- am out of underwear > > > and slacks.. > > > LOL.. > > > > Hopefully I will lose some weight soon and fit my > > > jeans again. God > > > Bless and > > > > Hugs Jolene > > > > > > > > > > > > > > > > _____ > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > For an an extensive collection of colon cancer related > > > links go to > > > http://groups.yahoo.com/group/colon_cancer_support/links > > > or > > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > yahoo.com/group/colon_cancer_support/links or > > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 Re:Sharon and Donelle Dear Trase, Why is it that docs think they are giving false hope? Your words are so much kinder and yet still convey the situation. I know that I have to let go, but I'd really like to see the docs develope some compassion. Sharon > > > > > > > > Sharon > > > > > > > > You are so right about the low potassium, when I had > > > that during > > > chemo my > > > > Onc was quite worried about that and stressed that > > > it was life > > > threatening. > > > > It was good he told me because aside from the > > > diarrhea and the > > > usual chemo > > > > tiredness I didn't feel as if I was at death's door. > > > > > > > > > > > > > > > > > > > Yes I too hope Donelle and Glenn's day went well was > > > not too > > > traumatic for > > > > him or Donelle. I just hope his family behaved > > > themselves. Yes > > > the Lord is > > > > celebrating His glorious feast with a remarkable > > > crew from our > > > group here > > > > and more than a few from others groups and families > > > as well. Your > > > mom is in > > > > good company. > > > > > > > > Take care, am off to do some errands before I go to > > > work at 1pm, > > > already had > > > > to wash two loads of clothes --- am out of underwear > > > and slacks.. > > > LOL.. > > > > Hopefully I will lose some weight soon and fit my > > > jeans again. God > > > Bless and > > > > Hugs Jolene > > > > > > > > > > > > > > > > _____ > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > For an an extensive collection of colon cancer related > > > links go to > > > http://groups.yahoo.com/group/colon_cancer_support/links > > > or > > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > yahoo.com/group/colon_cancer_support/links or > > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 On the OTHER hand when Phil began bleeding last month he had emergency colonoscopies and endoscopies to try to find the source. As the bleeding was from the liver they did not find it. And it had stopped for the moment. 3 GI doctors all proceeded to tell him this was NOT a big deal. I remember Joyce called me to warn me differently and I must admit I had some false hope because (forgive me Joyce) but 3 doctors should know more right? The following week Phil went to the oncologist who told him he was (and he used stronger language) furious with those doctors for giving false hope. He then told him You ARE amazing Phil and there is always the chance of a miracle but barring that it really looks as if we have reached the end of the journey and that you only have weeks. Was it rough? OF COURSE but I always wonder WHY the doctors were not honest. Compassion is appreciated but honesty just as much. I so felt for our oncologist Dr. Rothman who not only had to break the news to us but had to tell Phil that a doctor we had trusted for 3 years basically lied to make him feel better. Poor Dr. Rothman had formed so close a relationship with Phil that he had to step out of the examining room 3 times while trying to tell him. He so wanted Phil to beat the odds. And he felt completely helpless!! He was not harsh but he was honest and caring and never sugar coated the truth. My son Dan and I have a different doctor for our testing who is a colo-rectal surgeon rather than the GI guys who worked on Phil. Narice Re:Sharon and Donelle Dear Trase, Why is it that docs think they are giving false hope? Your words are so much kinder and yet still convey the situation. I know that I have to let go, but I'd really like to see the docs develope some compassion. Sharon > > > > > > > > Sharon > > > > > > > > You are so right about the low potassium, when I had > > > that during > > > chemo my > > > > Onc was quite worried about that and stressed that > > > it was life > > > threatening. > > > > It was good he told me because aside from the > > > diarrhea and the > > > usual chemo > > > > tiredness I didn't feel as if I was at death's door. > > > > > > > > > > > > > > > > > > > Yes I too hope Donelle and Glenn's day went well was > > > not too > > > traumatic for > > > > him or Donelle. I just hope his family behaved > > > themselves. Yes > > > the Lord is > > > > celebrating His glorious feast with a remarkable > > > crew from our > > > group here > > > > and more than a few from others groups and families > > > as well. Your > > > mom is in > > > > good company. > > > > > > > > Take care, am off to do some errands before I go to > > > work at 1pm, > > > already had > > > > to wash two loads of clothes --- am out of underwear > > > and slacks.. > > > LOL.. > > > > Hopefully I will lose some weight soon and fit my > > > jeans again. God > > > Bless and > > > > Hugs Jolene > > > > > > > > > > > > > > > > _____ > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > For an an extensive collection of colon cancer related > > > links go to > > > http://groups.yahoo.com/group/colon_cancer_support/links > > > or > > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > yahoo.com/group/colon_cancer_support/links or > > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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