Guest guest Posted June 30, 2009 Report Share Posted June 30, 2009 Thanks for the welcome. I guess I'm still somewhat in denial because I'm in such good health otherwise (knock on wood). That's why I'm OK with the study. Maybe it will do me or someone else some good. Terre > > Hi Terre... I want to welcome you to our board. I see Bruce already replied to you with his always good information. > My PF was found accidently, much like you. When I went for a second x-ray/Cscan I read Pulmonary Fibrosis on the paperwork. When I got home I went online and Wow! what a surprise to learn how serious it is. > I think what you say about fungus is really interesting. I hadn't heard this before. > Remember now, chances are you are not going to die next month so get acquainted with the board. All your questions have answers here. > Have a good day. > MamaSher; 70, IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > > Sinus drainage > > > > > > Hi all, > My name is Terre Higgs. I'm 66 year old male and was disgnosed with IPF about 1 year ago. It was fouund accidentally while doing a CT scan of my abdomen. I didn't have many symptoms. > Anyway, I noticed some peolpe mentioning sinus problems and thought I'd relay an experience that I just had with mine. I have had chronic sinus discharge into my throat for years. It always caused hacking and coughing. I wanted to stop the coughing from my sinuses to see if I was coughing beacuse of the IPF. > The usual sinus sprays for bacteria didn't do much. After investigating IPF I came across info from the Mayo clinic that 70% of sinus problems are casused by fungus. > So, I asked my GP for something for my sinuses that killed fungus. He gave my 15 pils, one a day, for systemic body fungus. It can be hard on your liver. The med was diflucanose. > In three days my sinuses stopped draining. Then in another 2-3 days it sort of started again. So I used an antibacterial spray figuring that with the fungus gone it might have given the bacteria a chance to multiply. The spray stopped the draining again. My sinuses have now been dry for over a month. I'm using an antibacterial spray in the morning and a colloidal silver spray for the fungus in the evening. > Those of you that have chronic sinus discharge might want to ask your doctor about an anti fungal treatment. > I'm aspplying next week for a study at the U of M(Miami) for ambrisentan. This is the Artimus Study. Does anyone know about this study? The med has been tested for PAH with fair results, so I'm told. They now want to test it on IPF patients. I'm just looking for anyone with info on this drug. > Thanks. > Terre Higgs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2009 Report Share Posted June 30, 2009 Thanks, Terre, for this info. My nose drains constantly, inducing a lot of coughing which in turn causes head aches and eventually a bloody nose. I will talk to my pulmo and PCP about this. At 80 years old, you're still a kid to me Jack79/IPF - UIP/dx06/05 Maine To: Breathe-Support Sent: Tuesday, June 30, 2009 9:40:10 AMSubject: Sinus drainage Hi all,My name is Terre Higgs. I'm 66 year old male and was disgnosed with IPF about 1 year ago. It was fouund accidentally while doing a CT scan of my abdomen. I didn't have many symptoms.Anyway, I noticed some peolpe mentioning sinus problems and thought I'd relay an experience that I just had with mine. I have had chronic sinus discharge into my throat for years. It always caused hacking and coughing. I wanted to stop the coughing from my sinuses to see if I was coughing beacuse of the IPF.The usual sinus sprays for bacteria didn't do much. After investigating IPF I came across info from the Mayo clinic that 70% of sinus problems are casused by fungus. So, I asked my GP for something for my sinuses that killed fungus. He gave my 15 pils, one a day, for systemic body fungus. It can be hard on your liver. The med was diflucanose.In three days my sinuses stopped draining. Then in another 2-3 days it sort of started again. So I used an antibacterial spray figuring that with the fungus gone it might have given the bacteria a chance to multiply. The spray stopped the draining again.. My sinuses have now been dry for over a month. I'm using an antibacterial spray in the morning and a colloidal silver spray for the fungus in the evening.Those of you that have chronic sinus discharge might want to ask your doctor about an anti fungal treatment.I'm aspplying next week for a study at the U of M(Miami) for ambrisentan. This is the Artimus Study. Does anyone know about this study? The med has been tested for PAH with fair results, so I'm told. They now want to test it on IPF patients. I'm just looking for anyone with info on this drug.Thanks.Terre Higgs Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.