Guest guest Posted July 12, 2009 Report Share Posted July 12, 2009 Sher, You made me step ever so high and lively on that treadmill after reading those really kind words. The board has meant a lot to me already, and yes I will bicycle 100 miles in October. Jerry/Mississippi/54/IPF/dx April 2005 Who believes that hard times help us appreciate the good times even more. Subject: Re: Re: 6MW TestTo: Breathe-Support Date: Sunday, July 12, 2009, 6:52 PM Jerry....(Hi Geeta), I've read this post of yours many times. What a great example you are for others to follow! Not that all of us will the same results but at least to be inspired to get out there and do what we can. Like Geeta, walking is the most difficult. Arthritis/fibromyal gia and being nearly 71 (next month) doesn't help. You have my admiration. I know it has not been a simple endeavor but you did it! Goodie for you. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! 6MW Test> > To: Breathe-Support@ yahoogroups. com> > Date: Friday, July 10, 2009, 9:47 PM> > > > > > > > > > > > > > > > > > This is crazy. I went last Mon for a 6MW test. I already told you about the Tech. wanted to give me PFT's but I insisted that I was there for 6MW test. Well I had the test. At 1 min. dropped to 90, at 2 min. dropped to 85, every min. after kept dropping. Ended 6 min. at 76. Monday evening I had 02 delivered to house. They brought me 7 D tanks, and a Concentrator for the house. I asked about something smaller for when I go away, they said I had to get a new RX from my DR.> > Tues. I used 02 when I went to Rehab, still dropped to 88 on Nustep. I am on 2 lpm with exertion. Tried calling my Dr. to find out if I am supposed to use 02 at night. Thur. at Rehab again I dropped to 88 on Nustep, and 86 with hand weights. Called my Dr. again. Now this is the Crazy part, Pulmo Dr can't find anything that they Rx the 02. Nurse said she would check around and find out what is going on. Called me back later and said my Primary Care Dr. Rx the 02. I have never seen her for any of my breathing problems,the only thing they did id schedule my 6mw test,(wrong I might add) Now I find out that they did my 6mw test wrong. They should have stopped when I dropped to 85, gave me 02, then did the rest of the test with 02, to find out how much I should be using. Dr. thinks I should be on 3 lpm not 2 lpm. Now I have to go back and have another 6MW test done next week. CRAZY> > > > Now that I am done Ranting, I have some questions about 02 This is all new to me. I lead a very busy life with 2 children and 3 grandchildren that live with me. I am gone away from home a good part of the day,> > What type of 02 does everyone use?> > What about liquid? How hard is it to fill?> > Please help.> > > > Jo Ann 53 MI UIP 9/07> >> Quote Link to comment Share on other sites More sharing options...
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