Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 In a message dated 2/17/02 11:39:58 AM Eastern Standard Time, Autism_in_Girls writes: > Andy! Who the HELL do you think you are? Do you think you have an answer > to every question? I read your coment on my desisions with my dauther, and > > frankly, I think that you`re very narrow minded... Please stop giving > advice to people so quickly, without looking an inch before youself... > (re: > Maggies Mom/periods) > Lo > Hmmm...I don't know what you are talking about here. But I didn't see any offensive answers from Andy here. If you have a problem with him, please keep it to private e-mails. We parents have enough to worry about and don't really need to or have the time to read irrelevant posts like this. If you were kidding on the other hand, it didn't look like you were. :-) ***************************************************************************** " It takes One Person to lead, One Person to assist with change, One Person to send a message of unity, of awareness, for our children/individuals, and the ever increasing pandemic wide spread epidemic of Autism Spectrum Disorders. A message of One, Together we can make positive cost effective changes for individuals with Autism Spectrum Disorders. " - AutismAwakening <A HREF= " http://www.autismawakening.com/ " >Autism Awakening 4 Kids</A> , <A HREF= " http://www.autism-society.org/ " >The Autism Society of America Home Page</A> , <A HREF= " http://www.cureautismnow.org/ " >CAN, Cure Autism Now</A> , <A HREF= " autism_and_vaccinations/ " >! Groups : autism_and_vaccinations</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 If anyone feels they need to express themselves about opinions please email each other privately rather than suggest everyone to bickering. This tend to disrupt everyone needlessly. We all to work together to help our children get well... bickering will not help our children. Anyone has any comment they wish to express to me ... my email address is bridalsh@... I am open and will to listen. Thank You Sincerely, Beverly Weakley Monitor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 I should have typed " subject " rather than " suggest " ! Well at any rate. My spell check just did not work right for me.... Let's just work together please for the good of our children! Sincerely, Beverly Weakley Re: Digest Number 818 > If anyone feels they need to express themselves about opinions please email > each other privately rather than suggest everyone to bickering. This tend to > disrupt everyone needlessly. We all to work together to help our children > get well... bickering will not help our children. > > Anyone has any comment they wish to express to me ... my email address is > bridalsh@... > I am open and will to listen. > Thank You Sincerely, > Beverly Weakley > Monitor > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 Andy, I'm not sure who 'LO' is, but I have been a member of this list for a while now and I've never seen any bickering at all. We have all supported one another through alot of 'stuff'. We all do have different opinions. Here's what I know about Flouride and Aluminum. They can pass across the placenta to a developing fetus, there they can pass the blood brain barrier and like to deposit them selves in the thyroid. Aluminum and Flouride are both metals that can be toxic. They are also strongly attracted to each other and form covalent bonds- the strongest chemical bond that can be formed. Everyone feel free to edit or flame at will. But, realize that all I am doing is sharing information, just like Andy. Is this idea fringe? Maybe, alot of study is done in Canada by a group - help with this? Remember, gf/cf may not be fringe to us now, but it was and still is to alot of people. We all can only deal with so much info at once, maybe that was why 'LO' reacted so strongly. When we first learn new things we want to share, share, share...I know I did. Let's just all try to take information in the spirit in which it is intended. Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 Hi Beverly, I was not aware that I had sent any offensive emails. I do not wish to be part of a list where people fight. I joined this list to gain support, information, and inspiration. I am not interested in bickering with anyone. Andy mum to Hannah 5.5 (autism dx) 6.11 (seizure disorder) and Meaghan 8.5 (nt) Re: Digest Number 818 If anyone feels they need to express themselves about opinions please email each other privately rather than suggest everyone to bickering. This tend to disrupt everyone needlessly. We all to work together to help our children get well... bickering will not help our children. Anyone has any comment they wish to express to me ... my email address is bridalsh@... I am open and will to listen. Thank You Sincerely, Beverly Weakley Monitor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 Yes Kathy, can you send it to me in an attachment? Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 Andy, your statemetns are true, so don't feel too bad :0)...I'm with you on this one Kathy Re: Digest Number 818 > > > If anyone feels they need to express themselves about opinions please email > each other privately rather than suggest everyone to bickering. This tend to > disrupt everyone needlessly. We all to work together to help our children > get well... bickering will not help our children. > > Anyone has any comment they wish to express to me ... my email address is > bridalsh@... > I am open and will to listen. > Thank You Sincerely, > Beverly Weakley > Monitor > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 Look up GA-GTP....this is exactly what the convalent bond makes, which is a anti-thyroid hormone. It is in my proposal paper if you want it? Kathy Re: Digest Number 818 > Andy, I'm not sure who 'LO' is, but I have been a member of this list for a > while now and I've never seen any bickering at all. We have all supported > one another through alot of 'stuff'. We all do have different opinions. > Here's what I know about Flouride and Aluminum. They can pass across the > placenta to a developing fetus, there they can pass the blood brain barrier > and like to deposit them selves in the thyroid. Aluminum and Flouride are > both metals that can be toxic. They are also strongly attracted to each > other and form covalent bonds- the strongest chemical bond that can be > formed. Everyone feel free to edit or flame at will. But, realize that all > I am doing is sharing information, just like Andy. Is this idea fringe? > Maybe, alot of study is done in Canada by a group - help with > this? Remember, gf/cf may not be fringe to us now, but it was and still is > to alot of people. We all can only deal with so much info at once, maybe > that was why 'LO' reacted so strongly. When we first learn new things we > want to share, share, share...I know I did. Let's just all try to take > information in the spirit in which it is intended. Deanna > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2002 Report Share Posted July 15, 2002 In a message dated 7/14/2002 9:27:18 PM Central Daylight Time, writes: > > Message: 12 > Date: Sun, 14 Jul 2002 11:45:51 -0700 > From: donna j <djandrews@...> > Subject: Re: Digest Number 816 > > Dear : > Did Jordan have an MRI? What you are describing is likely not > connected with her seizures. I have questions that need to be answered > before I can really comment. If you wish to talk with me, please > contact me directly. > Sincere regards, > Dr. Donna J. s > > Dr. s, Thank You for your interest in my baby..I've sent you her complete story off list and appreciate any advice/direction you can give me. I'm desperate for answers.....jennifer Hi group, my daughter was originally started on depakote for absence seizures. I have never seen a med. make a child so violent before! She had become uncontrollable and the neuro. ended up having to give her clonodine for sedation. Then her med. was changed to lamictal. I was told by neuro. to watch out for a rash, that it could be life threating. This is really scarey. When i asked the pharmacist about lamictal he said he didn't know to much about it, that it wasn't a widely used drug. Has anyone had any experiences good or bad with lamicatl? So far she has been fine, but we are only doing 10mg. a day...(still not helping her seizures either) If you have had this med. what is a theraputic dose? I am guessing that it differs from person to person right? I also read that this wasn't used in children under the age of 16...daughter is 7. Is this old info?? If anyone has any incite on this i would be greatful. Thanks, , Our neuro is starting us on Lamictal as well. I've read extensively about it and you're right it does sound scary....if it makes you feel any better he said that a lot of the studies on Lamictal and rash were small and misleading. He said the larger data from Germany shows that it is a much safer drug. I've copied the dosing table below from the PDR for you to review. He claims the key to avoiding the rash is to " go slow " so your neuro should be titrating up slowly every 1-2 wks. I can't comment on side effects b/c we are not at a therapeutic dose yet. You can go to PDR.net and read the entire profile. Although, you may not want to...it may scare you to death. Remember that they must list every reported side effect even though most are rare. PDR.net is a good source to obtain drug-drug interactions and other info. about any drug you want to learn about. Lamictal is weight based so that's how you will determine her therapeutic range. Medical profession uses kg. for weight. In case you aren't familiar with kg....just divide her wt. in pounds by 2.2 and you will get her wt. in kg. I don't mean to confuse you. If I did, send me her wt. and I'll figure it for you. Table 9: LAMICTAL Added to EIAEDs (Without VPA) in Patients 2 to 12 Years of Age Weeks 1 and 2 0.6 mg/kg/day in two divided doses, rounded down to the nearest whole tablet. Weeks 3 and 4 1.2 mg/kg/day in two divided doses, rounded down to the nearest whole tablet. Usual maintenance dose: 5 to 15 mg/kg/day (maximum 400 mg/day in two divided doses). To achieve the usual maintenance dose, subsequent doses should be increased every 1 to 2 weeks as follows: calculate 1.2 mg/kg/day, round this amount down to the nearest whole tablet, and add this amount to the previously administered daily dose. Sincerely, (Jordan's Mom) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2004 Report Share Posted June 23, 2004 Sherri, The curriculum mentioned by Candace was developed and produced by NCFH in collaboration with several dentists from health centers in South Texas and with two dental hygienists, including Magda. The curriculum, Healthy Smiles for a Lifetime is in English and Spanish and is available through the NCFH Resource Center. Sylvia Partida wrote: > >There are 2 messages in this issue. > >Topics in this digest: > > 1. oral health curriculum for Promotora training > From: " S. Lukes " <smlukes@...> > 2. Re: oral health curriculum for Promotora training > From: " Kugel & Zuroweste " <kugelzur@...> > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 1 > Date: Tue, 22 Jun 2004 08:32:07 -0500 > From: " S. Lukes " <smlukes@...> >Subject: oral health curriculum for Promotora training > >Hi everyone, > >Does anyone know the name of and where I can get an oral health curriculum for training Promotores/as. I'm pretty sure there's one out there already-no need to reinvent the wheel. I've done some Promotora training in oral health but haven't actually developed an entire curriculum. I have a friend in Texas who needs one and is happy to pay for it, so I'd appreciate any help. > >Gracias!! > >Sherri Lukes > >Sherri M. Lukes, RDH, MS >Assistant Professor, Dental Hygiene >HCP-CASA, MC 6615 >Southern Illinois University >Carbondale, IL 62901 >Phone (618) 453-7289 >FAX (618) 453-7020 >smlukes@... > > >[This message contained attachments] > > > >________________________________________________________________________ >________________________________________________________________________ > >Message: 2 > Date: Tue, 22 Jun 2004 13:09:20 -0400 > From: " Kugel & Zuroweste " <kugelzur@...> >Subject: Re: oral health curriculum for Promotora training > >Sherri: This is actually something I have looked for, for my work in Central America. Have you seen Where there is no Dentist by the Hesperian Foundation? It is very good. Attached is a very basic outline I made up, using references to that book. I have forwarded your email to Magda de la Torre at UTSan because she has developed a curriculum like what you are looking for, but I have never seen it... >Let me know if you find something! >Good luck, >Candace > >Candace Kugel, CRNP, CNM >Migrant Clinicians Network >878 N. St. >State College, PA 16803 >814-238-6566 >kugelzur@... >www.migrantclinician.org > ----- Original Message ----- > From: S. Lukes > > Cc: Barb > Sent: Tuesday, June 22, 2004 9:32 AM > Subject: [ ] oral health curriculum for Promotora training > > > Hi everyone, > > Does anyone know the name of and where I can get an oral health curriculum for training Promotores/as. I'm pretty sure there's one out there already-no need to reinvent the wheel. I've done some Promotora training in oral health but haven't actually developed an entire curriculum. I have a friend in Texas who needs one and is happy to pay for it, so I'd appreciate any help. > > Gracias!! > > Sherri Lukes > > Sherri M. Lukes, RDH, MS > Assistant Professor, Dental Hygiene > HCP-CASA, MC 6615 > Southern Illinois University > Carbondale, IL 62901 > Phone (618) 453-7289 > FAX (618) 453-7020 > smlukes@... > > > > To Post a message, send it to: Groups > > To Unsubscribe, send a blank message to: -unsubscribe > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 In a message dated 6/27/2004 9:41:39 AM Eastern Daylight Time, writes: even had an adult vacation for people too old for camp. We went to Hot Springs, a dude ranch in FL, the Gulf Coast Biloxi, Mobile, and New Orleans and others where we stayed in a hotel and had sight seeing tours and activities. Then the new rules favored research and most of this stopped. So your perception of what MDA does for us can be very different at various ages. But their work is still important. Pam, when did you go to the dude ranch in Fla? I went to one on Lake Kissimee in 79,80,81? I can't remember. And, yes, I also remember MDA doing everything and more that you mentioned. It's only in the last 20-25 yrs. that they've focused more on research. I miss the " old days " , mainly because it wes so much fun. Us " old farts " (I'll be 51 on the 3rd) only have our memories of what MDA used to be. Some changes arn't so good, huh? Love and peace to all, Vickie in Ga. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2004 Report Share Posted July 3, 2004 Vickie wrote: " Pam, when did you go to the dude ranch in Fla? I went to one on Lake Kissimee in 79,80,81? I can't remember. And, yes, I also remember MDA doing everything and more that you mentioned. It's only in the last 20-25 yrs. that they've focused more on research. I miss the " old days " , mainly because it wes so much fun. Us " old farts " (I'll be 51 on the 3rd) only have our memories of what MDA used to be. " Yes Vickie, it sounds like the same trip to me. I may have met you years ago and we don't even know. Did you come to the one in New Orleans? We had a great Mardi Gras costume dance and that is where I first met Mike, dressed in drag no less, LOL. Love, Pamela Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2004 Report Share Posted July 4, 2004 Hi, I was at one MDA adult trip in New Orleans. Won the costume contest as Betsy Ross! Really original, wasn't it? Thanks for bringing back good memories. Carla > Yes Vickie, it sounds like the same trip to me. I may have met you years > ago and we don't even know. Did you come to the one in New Orleans? We > had a great Mardi Gras costume dance and that is where I first met Mike, > dressed in drag no less, LOL. > Love, > Pamela Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2006 Report Share Posted May 25, 2006 Urine toxic metal test. Lx Re: Nasal mb12 spray without prescription? Similar story here, but when we tried with the cream, he wakes up when we try to lift the cream cover foil. We also tried without the foil, aplying just the cream on a larger area in the hope that it will all go numb... didn't happen though. Do you use that foil for the cream? He actually doesn't wake when the needle goes in, he wakes BEFORE that happens. He has got some invisible sensors I think... he starts tossing and turning as soon as we enter the room to give him the shot, never does that otherwise... Natasa > In a message dated 18/05/2006 12:07:19 GMT Daylight Time, > stuartfinnes1@... writes: > > Has anybody tried a course of secretin? > > >>>We did the Homeopathic version from Ainsworths, not sure if we > saw anything, I was still at the throw evberything at him wildy > stage then - backin 1999, god I feel old!! > > > I believe it was looking promising for helping with digestive tract > issues, but it seems to have fallen by the wayside - anyone either > tried it or know more about it? > > >>>Its was like everything really, some kids got major wows, some > saw nothing. I have corresponded with 3 parents where there kid > had first speech with it. > > You can't actually get the stuff the first lot of kids had because > they stopped making it. They then made synthetix version but study > results wern;t too positive, however, many chose to continue with > treatment and there were more positives over time it seems from > postings onb the lists > > There was a UK GP flying around the country giving IV Secrelux - > another synthetic in parents back rooms and whizzing off to the > next place. I spoke to some of the mums at the AiA conference in > 2000 and they were seeing great things, one nearly crashed the car > when the kid started talking ont he way home from the IV > > Then of course he was disciplined or arrested, something about the > single MMR vaccs, I forget what, anyways, then he went off to > Autrailia I think, they sell it as Secrelux Nasal Spray there and > say loads of pople are using it but I never found anyone who > has......................... > > Then came digestive enzymes, with the introduction of Serenaid (by > Devin Houston BTW), Enzymeaid and then HNI, then the secretin > looked expensive, bit hit and miss and because IV tricky to > admimister and then it seemed to fade away. > > Seen some posts recently, not sure where about doing TD Secretin, > didn;t pay much attention, I'll try and recall where I saw it > > > I'm primarily interested because I saw some results that suggested it > had helped with social and language skills. > > >>Language was a biggie for the kids that responded and was what > gave the najor publicity, like instantly - words, I can;t even > imgaine what that must be like, but I can still dream > > Mandi x > > > > > DISCLAIMER > No information contained in this post is to be construed as medical > advice. If you need medical advice, please seek it from a suitably > qualified practitioner. > > > > > Quote Link to comment Share on other sites More sharing options...
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