Guest guest Posted September 5, 2009 Report Share Posted September 5, 2009 My sister had a CT scan done to check for IPF and her primary doctor gave her this report: "lungs look good - no masses or nodules, thickening....findings may reflect developing changes of fibrosis without frank honeycombing - no lung infiltrates, consolidation, collapse or nodules are demonstrated...." She said doc's interpretation of the report is that she does not have IPF; but is referring her to pulmo specialist to have them review the actual scan and report because of the family history. My question to any of you, is what does this statement mean? "findings may reflect developing changes of fibrosis..."C_53_Familial IPF_5/09Washington Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2009 Report Share Posted September 5, 2009 , I don't know what precisely he/she means by that statement but I am very glad the ct is going to be looked at by a specialist. Was it by chance a high resolution ct scan or just a regular ct? An HRCT will give the clearest picture of what, if anything is going on in her lungs at this time. I'm confused about what "findings may reflect developing fibrosis without frank honeycombing" means. Something concerning must be visible on the ct or that makes zero sense. Does your sister live near UWMC or one of the other 'centers of excellence'? Given your family history it is better to be safe rather than sorry, at least that's my take. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breath Support <Breathe-Support >Sent: Saturday, September 5, 2009 12:58:25 PMSubject: Sister's CT Scan results My sister had a CT scan done to check for IPF and her primary doctor gave her this report: "lungs look good - no masses or nodules, thickening.. ..findings may reflect developing changes of fibrosis without frank honeycombing - no lung infiltrates, consolidation, collapse or nodules are demonstrated. ..." She said doc's interpretation of the report is that she does not have IPF; but is referring her to pulmo specialist to have them review the actual scan and report because of the family history. My question to any of you, is what does this statement mean? "findings may reflect developing changes of fibrosis..."C_53_Familial IPF_5/09Washington Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2009 Report Share Posted September 5, 2009 Hi Beth,Thanks for your response. I thought it was a concerning and confusing statement in light of the doctor saying "her lungs looked good." I told my sister to ask the pulmo specialist she sees next week to explain that reported statement to her and if the CT wasn't an HRCT to ask for one. C_53_Familial IPF_5/09WashingtonTo: Breathe-Support Sent: Saturday, September 5, 2009 11:03:01 AMSubject: Re: Sister's CT Scan results , I don't know what precisely he/she means by that statement but I am very glad the ct is going to be looked at by a specialist. Was it by chance a high resolution ct scan or just a regular ct? An HRCT will give the clearest picture of what, if anything is going on in her lungs at this time. I'm confused about what "findings may reflect developing fibrosis without frank honeycombing" means. Something concerning must be visible on the ct or that makes zero sense. Does your sister live near UWMC or one of the other 'centers of excellence'? Given your family history it is better to be safe rather than sorry, at least that's my take. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: worth <hope2thend (AT) yahoo (DOT) com>To: Breath Support <Breathe-Support@ yahoogroups. com>Sent: Saturday, September 5, 2009 12:58:25 PMSubject: Sister's CT Scan results My sister had a CT scan done to check for IPF and her primary doctor gave her this report: "lungs look good - no masses or nodules, thickening.. ..findings may reflect developing changes of fibrosis without frank honeycombing - no lung infiltrates, consolidation, collapse or nodules are demonstrated. ..." She said doc's interpretation of the report is that she does not have IPF; but is referring her to pulmo specialist to have them review the actual scan and report because of the family history. My question to any of you, is what does this statement mean? "findings may reflect developing changes of fibrosis..."C_53_Familial IPF_5/09Washington Quote Link to comment Share on other sites More sharing options...
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