Re: PF Awareness- Grass Root Campaign! Bill Number

[Guest guest]

Hi Dorothy

H.R.1079

Title: To expand the research, prevention, and awareness activities of the

Centers for Disease Control and Prevention and the National Institutes of Health

with respect to pulmonary fibrosis, and for other purposes.

Sponsor: Rep Baird, [WA-3] (introduced 2/13/2009) Cosponsors (34)

Latest Major Action: 2/13/2009 Referred to House committee. Status: Referred to

the House Committee on Energy and Commerce

If you google " US Congress Bills " a website comes us. You put the number in and

it will bring up the bill. You can click on co-sponsors to see if your

representative has signed on yet.

Eileen UIP/IPF May 06

Boca Raton FL

> >

> > Leanne S. and I have talked off and on about raising awareness in

> various ways and some of us in Texas wanted to see, if the rest of the

> country wanted to join in on wearing Blue T-shirts on Fridays? With all

> the other better known disease groups using pink and red and every other

> color, we settled on Blue because of the color our lungs become without

> oxygen.

> >

> > If enough people are interested we can even design our own shirt or

> just keep it simple and put a " slogan " on it...like 'Pulmonary

> Fibrosis...it takes your breath away'. We are totally open and would

> like your suggestions on this grass roots project....I think it is

> something everyone can do, and sooner or later, when people start

> noticing others in Blue T-Shirts they will start asking us what is PF?

> When we see a pink ribbon on a shirt we just know it is for Breast

> Cancer Awareness... .if we all band together we can make Blue for PF as

> well known too:)

> >

> > We would love to hear your thoughts...What do you think?!

> >

> > {Leanne, thank you for your support and permission in sharing this

> idea with everyone online! Between the Pulmonary Fibrosis Foundation in

> Chicago, the Coalition for Pulmonary Fibrosis in California and the

> Pulmonary Fibrosis Association in Texas, we can all make a difference in

> helping to raise awareness of a disease that no one still hears about.

> >

> > Jan

> >

>

[Guest guest]

Eileen,

Thank you so much for the information. I will try to get as many folks as possible to write/call in their support to our legislators.

Dorothy-Fayetteville, GA

dx 7/05 - UIP

To: Breathe-Support Sent: Saturday, July 25, 2009 9:03:10 AMSubject: Re: PF Awareness- Grass Root Campaign! Bill Number

Hi DorothyH.R.1079Title: To expand the research, prevention, and awareness activities of the Centers for Disease Control and Prevention and the National Institutes of Health with respect to pulmonary fibrosis, and for other purposes.Sponsor: Rep Baird, [WA-3] (introduced 2/13/2009) Cosponsors (34)Latest Major Action: 2/13/2009 Referred to House committee. Status: Referred to the House Committee on Energy and CommerceIf you google "US Congress Bills" a website comes us. You put the number in and it will bring up the bill. You can click on co-sponsors to see if your representative has signed on yet.Eileen UIP/IPF May 06Boca Raton FL> >> > Leanne S. and I have talked off and on about raising awareness in> various ways and some of us in Texas wanted to see, if the rest of the> country wanted to join in on wearing Blue T-shirts on Fridays? With all> the other better known disease groups using pink and red and every other> color, we settled on Blue because of the color our lungs become without> oxygen.> >> > If enough people are interested we can even design our own shirt or> just keep it simple and put a "slogan" on it...like 'Pulmonary> Fibrosis...it takes your breath away'. We are totally open and would> like your suggestions on this grass roots project....I think it is> something everyone can do, and sooner or later, when people start> noticing others in Blue T-Shirts they will start asking us what is PF? > When we see

a pink ribbon on a shirt we just know it is for Breast> Cancer Awareness... .if we all band together we can make Blue for PF as> well known too:)> >> > We would love to hear your thoughts...What do you think?!> >> > {Leanne, thank you for your support and permission in sharing this> idea with everyone online! Between the Pulmonary Fibrosis Foundation in> Chicago, the Coalition for Pulmonary Fibrosis in California and the> Pulmonary Fibrosis Association in Texas, we can all make a difference in> helping to raise awareness of a disease that no one still hears about.> >> > Jan> >>