Guest guest Posted September 13, 2009 Report Share Posted September 13, 2009 Joyce Rudy It's a wonderful story. Glad you like your new car. Seems to me you sort of got a new life. I flew for business. To me its just the way to get from one place to another. Sounds great combining a medical trip with such a beautiful view and experience. Nice tax deduction too. 48 MPG is like science fiction to me. To me the 6 minute walk just indicates you took a minutely slower pace, so the 10 feet means nothing. The fact your sats were better means a lot. > > It was a good journey. The car was stupendous and got 48 mpg going 80 mph up tremendous mountains! Stopped at the painted desert and the petrified forest on the way home and the painted desert was breath taking! The petrified forest was a bust. You can see more petrified wood at the vendors surrounding the park. > > Jewish was wonderful as usual. Dr. Cosgrove said there was no change. All my tests were the same and he considered that good news. He told me that my biopsy showed I did have permanent scarring and there were indications that even though it was the birds that caused it that it might continue but the fact that it had stopped right now was a positive. He also told me if I had kept the birds for a year longer there would be no reversing it and it might as well be IPF so I guess I am very lucky that I went to Jewish and didn't pay attention to my pulmodude hear in Prescott. The only change was the 6 minute walk. I did 10 feet less but my 02 didn't drop as far. 6 months ago my 02 dropped to 92 using 4lpm and this time it dropped to 95 using 4lpm. He said I could drop my 02 to 3 instead of 4 lpm. He is hoping that eventually just sitting around I won't need oxygen at all and only need it when I get up and go out. This, is good news! > > I am glad I am home. I got home on Friday evening and yesterday all I did was sleep. I slept and slept and slept. I never realized I was so tired. Joyce Rudy AZ birds > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2009 Report Share Posted September 13, 2009 Joyce, Congratulations!! I'm so happy to hear you are stable and that it's safe to reduce your oxygen. That's such positive news!! Sounds like you had a great trip though 80mph going up mountains sounds a little scary to me...LOL Oh and I wouldn't worry about 10 feet less on the 6 minute walk. All that means is you were walking a teeny bit more slowly. It's not a big enough difference to get excited about. So keep doing what you're doing cause it's working! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support <Breathe-Support >Sent: Sunday, September 13, 2009 12:09:28 PMSubject: Update from Jewish It was a good journey. The car was stupendous and got 48 mpg going 80 mph up tremendous mountains! Stopped at the painted desert and the petrified forest on the way home and the painted desert was breath taking! The petrified forest was a bust. You can see more petrified wood at the vendors surrounding the park. Jewish was wonderful as usual. Dr. Cosgrove said there was no change. All my tests were the same and he considered that good news. He told me that my biopsy showed I did have permanent scarring and there were indications that even though it was the birds that caused it that it might continue but the fact that it had stopped right now was a positive. He also told me if I had kept the birds for a year longer there would be no reversing it and it might as well be IPF so I guess I am very lucky that I went to Jewish and didn't pay attention to my pulmodude hear in Prescott. The only change was the 6 minute walk. I did 10 feet less but my 02 didn't drop as far. 6 months ago my 02 dropped to 92 using 4lpm and this time it dropped to 95 using 4lpm. He said I could drop my 02 to 3 instead of 4 lpm. He is hoping that eventually just sitting around I won't need oxygen at all and only need it when I get up and go out. This, is good news! I am glad I am home. I got home on Friday evening and yesterday all I did was sleep. I slept and slept and slept. I never realized I was so tired. Joyce Rudy AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2009 Report Share Posted September 13, 2009 MB, Nurse ... what does a hard heart mean ?? Any idea. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Joyce, Congratulations!! I'm so happy to hear you are stable and that it's safe to reduce your oxygen. That's such positive news!! Sounds like you had a great trip though 80mph going up mountains sounds a little scary to me...LOL Oh and I wouldn't worry about 10 feet less on the 6 minute walk. All that means is you were walking a teeny bit more slowly. It's not a big enough difference to get excited about. So keep doing what you're doing cause it's working! BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08 From: JOYCE RUDY <greycharlie@q.com>To: Breathe-Support <Breathe-Support >Sent: Sunday, September 13, 2009 12:09:28 PMSubject: Update from Jewish It was a good journey. The car was stupendous and got 48 mpg going 80 mph up tremendous mountains! Stopped at the painted desert and the petrified forest on the way home and the painted desert was breath taking! The petrified forest was a bust. You can see more petrified wood at the vendors surrounding the park. Jewish was wonderful as usual. Dr. Cosgrove said there was no change. All my tests were the same and he considered that good news. He told me that my biopsy showed I did have permanent scarring and there were indications that even though it was the birds that caused it that it might continue but the fact that it had stopped right now was a positive. He also told me if I had kept the birds for a year longer there would be no reversing it and it might as well be IPF so I guess I am very lucky that I went to Jewish and didn't pay attention to my pulmodude hear in Prescott. The only change was the 6 minute walk. I did 10 feet less but my 02 didn't drop as far. 6 months ago my 02 dropped to 92 using 4lpm and this time it dropped to 95 using 4lpm. He said I could drop my 02 to 3 instead of 4 lpm. He is hoping that eventually just sitting around I won't need oxygen at all and only need it when I get up and go out. This, is good news! I am glad I am home. I got home on Friday evening and yesterday all I did was sleep. I slept and slept and slept. I never realized I was so tired. Joyce Rudy AZ birds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2009 Report Share Posted September 13, 2009 Peggy, I think it might mean that the heart is "calcified". I remember my grandmother having one when the doctor was putting in her pacemaker. Toodles! Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > Joyce,> Congratulations!! I'm so happy to hear you are stable and that it's > safe to reduce your oxygen. That's such positive news!!> Sounds like you had a great trip though 80mph going up mountains > sounds a little scary to me...LOL> > Oh and I wouldn't worry about 10 feet less on the 6 minute walk. All > that means is you were walking a teeny bit more slowly. It's not a > big enough difference to get excited about.> > So keep doing what you're doing cause it's working!> > Beth> > Moderator> > Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > To: Breathe-Support Breathe-Support > Sent: Sunday, September 13, 2009 12:09:28 PM> Subject: Update from Jewish> > > > It was a good journey. The car was stupendous and got 48 mpg going 80 > mph up tremendous mountains! Stopped at the painted desert and the > petrified forest on the way home and the painted desert was breath > taking! The petrified forest was a bust. You can see more petrified > wood at the vendors surrounding the park.> > Jewish was wonderful as usual. Dr. Cosgrove said there was no change. > All my tests were the same and he considered that good news. He told > me that my biopsy showed I did have permanent scarring and there were > indications that even though it was the birds that caused it that it > might continue but the fact that it had stopped right now was a > positive. He also told me if I had kept the birds for a year longer > there would be no reversing it and it might as well be IPF so I guess > I am very lucky that I went to Jewish and didn't pay attention to my > pulmodude hear in Prescott. The only change was the 6 minute walk. I > did 10 feet less but my 02 didn't drop as far. 6 months ago my 02 > dropped to 92 using 4lpm and this time it dropped to 95 using 4lpm. > He said I could drop my 02 to 3 instead of 4 lpm. He is hoping that > eventually just sitting around I won't need oxygen at all and only > need it when I get up and go out. This, is good news!> > I am glad I am home. I got home on Friday evening and yesterday all I > did was sleep. I slept and slept and slept. I never realized I was so > tired. Joyce Rudy AZ birds> Quote Link to comment Share on other sites More sharing options...
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