Re: stages

[Guest guest]

> Just wondering how long each of you remained at the various stages? I

> would love to begin with some lettuce and salads but am only on SCD for

> 5 weeks. I do eat small amounts of almond bread. Small amounts of

> yogurt (very small). Is there any approximate or average time for each

> stage? Thanks for your feedback!

>

> Best wishes,

>

> Ronnie

> SCD, 5 weeks

I never followed them. They didn't exist when I started the diet and

were created for Pecanbread. They aren't an " official " part of SCD.

They were composed based on reports by parents. Elaine tells in

generalities, how to add foods in BTVC but agreed to The Stages as a

reference for those who were afraid to rely on their own choices. Most

appreciate their existence and want to use them.

For me, as an adult, it simply would have inhibited and complicated my

addition of foods after the Intro. Others swear by them.

Carol F.

Celiac, MCS, Latex Allergy, EMS

SCD 6 years

[Guest guest]

Could someone give the link to the stages? I can't seem to find them.

Thanks so much!

~

Celiac

>

>I never followed them. They didn't exist when I started the diet and

>were created for Pecanbread. They aren't an " official " part of SCD.

>They were composed based on reports by parents. Elaine tells in

>generalities, how to add foods in BTVC but agreed to The Stages as a

>reference for those who were afraid to rely on their own choices. Most

>appreciate their existence and want to use them.

>

>For me, as an adult, it simply would have inhibited and complicated my

>addition of foods after the Intro. Others swear by them.

>

>Carol F.

>Celiac, MCS, Latex Allergy, EMS

>SCD 6 years

>

_________________________________________________________________

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[Guest guest]

Ronnie,

Those stages are to help parents implement SCD but they are only a guide.

You will need to go by trial and error. If you feel you are ready for a bit of

lettuce try some and see what the next few days bring. For certain everything in

moderation.

Even after 5 years, there are periods where raw food is ok and then I can see I

am not tolerating it and I pull back a bit and go with only things cooked. A

lot of fruit for me can be hard still so I am very careful with that too. As you

can see it is trial and error. If it bothers you, you cut back and try again

later. Just don't over do if you seem to be fine with it.

Charlene

UC 8 years

SCD 5 1/2 years

> Just wondering how long each of you remained at the various stages? I

> would love to begin with some lettuce and salads but am only on SCD for

> 5 weeks. I do eat small amounts of almond bread. Small amounts of

> yogurt (very small). Is there any approximate or average time for each

> stage? Thanks for your feedback!

>

> Best wishes,

>

> Ronnie

> SCD, 5 weeks

I never followed them. They didn't exist when I started the diet and

were created for Pecanbread. They aren't an " official " part of SCD.

They were composed based on reports by parents. Elaine tells in

generalities, how to add foods in BTVC but agreed to The Stages as a

reference for those who were afraid to rely on their own choices. Most

appreciate their existence and want to use them.

For me, as an adult, it simply would have inhibited and complicated my

addition of foods after the Intro. Others swear by them.

Carol F.

Celiac, MCS, Latex Allergy, EMS

SCD 6 years

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[Guest guest]

> Could someone give the link to the stages? I can't seem to find them.

>

> Thanks so much!

> ~

> Celiac

http://www.pecanbread.com/foodprep.html

>

>

Carol F.

Celiac, MCS, Latex Allergy, EMS

SCD 6 years

[Guest guest]

>

> > Just wondering how long each of you remained at the various

stages? I

> > would love to begin with some lettuce and salads but am only on

SCD for

> > 5 weeks. I do eat small amounts of almond bread. Small amounts

of

> > yogurt (very small). Is there any approximate or average time

for each

> > stage? Thanks for your feedback!

> >

> > Best wishes,

> >

> > Ronnie

> > SCD, 5 weeks

>

> I never followed them. They didn't exist when I started the diet

and

> were created for Pecanbread. They aren't an " official " part of

SCD.

> They were composed based on reports by parents. Elaine tells in

> generalities, how to add foods in BTVC but agreed to The Stages

as a

> reference for those who were afraid to rely on their own choices.

Most

> appreciate their existence and want to use them.

>

> For me, as an adult, it simply would have inhibited and

complicated my

> addition of foods after the Intro. Others swear by them.

>

> Carol F.

> Celiac, MCS, Latex Allergy, EMS

> SCD 6 years

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.394 / Virus Database: 268.10.3/395 - Release Date:

7/21/2006

>

>

>

[Guest guest]

Stages

Thank you so much for your informative message! I am so lucky to be able to

ask these questions and hear your experiences. I can't express how much I

appreciate this group. I thank you again.

Best wishes,

Ronnie

>> Just wondering how long each of you remained at the various stages? I

would love to begin with some lettuce and salads but am only on SCD for 5

weeks. I do eat small amounts of almond bread. Small amounts of yogurt

(very small). Is there any approximate or average time for each stage?

Thanks for your feedback! <<

Ronnie,

When I started SCD, there wasn't any such thing as " stages " -- this was

created for the predecessor list to Pecan Bread -- the Elaine's Children

List.

<g> I can appreciate the craving for a good tossed salad, especially in

summer, when every thing looks so luscious!

However, at five weeks on SCD, you may not be ready for raw vegetables. For

myself, I ate exactly four items for two months: beef roast, pork roast,

steamed zucchini (sometimes with grated mild cheddar, sometimes with

butter) and soft-boiled eggs. I didn't even have the strength to fix

chicken breasts or a turkey, and my husband, whose cooking skills include

baking bacon, boiling water, and making toasted sandwiches, wasn't up for

it, even with my instructions.

After that two months, I branched out to well-steamed green beans, and

amazingly enough, steamed broccoli and cauliflower. I tolerated those two

just fine -- it was the carrots, nominally on the intro diet, which I

didn't tolerate at all. (They came through in big orange chunks, completely

undigested.)

I think I finally tackled a salad around 6-9 months. I peeled my cucumbers,

partly because SCD calls for peeling veggies, and partly because I prefer

my cukes peeled anyway. I dipped tomatoes in boiling water, and peeled and

seeded them, then re-chilled them. I did not try raw onion bits! I did use

lightly steamed cauliflower and broccoli -- steamed until just

tender-crisp, then re-chilled. I made nifty croutons out of almond bread. I

did not use sliced raw mushrooms for over a year, but then, mushrooms,

cooked or raw, and I have a bad history which goes back to the story of

Babar the Elephant. It seems I had a sensitivity to them as a child, and,

lacking the language to explain to my mother that they made me feel sick, I

latched onto the story of Babar, and how the king elephant ate a BA-AD

mushroom and turned all green and died, for an explanation of why I

wouldn't eat mushrooms. It wasn't until I was an adult that I discovered

that I could tolerate very small amounts of mushrooms occasionally, but if

I tried to eat more, I would have gut cramps, horrible gas, and diarrhea.)

I had been on SCD three years when I tried doing salads on on a daily

basis, and found my system did not yet tolerate that. Then I had diarrhea,

but extremely reduced motility, so I ended up with lots of " accidents "

because I was only squirting a little out at any given time. I determined

then that I could have a salad one day, but needed to have a cooked

vegetable, such as my well-tolerated steamed zucchini the next day.

Currently, after over five years grain-free, I can do salads for 3-4 days,

but then I must have cooked vegetables for a day or two. And, curiously

enough, while I'm just fine with all forms of green lettuce, baby spinach,

and other greens, I don't tolerate the red lettuces at all. They don't

cause me problems, per se, they just end up floating in the toilet, which

startled the heck out of me the first time I saw it.

So, the answer, as with so many things relating to SCD, is that when you

can have salads depends on your particular system, how well you've healed,

and what you tolerate.

This is one of the things which can make SCD seem so very difficult at

first. We're accustomed to people telling us what to eat and when to eat

it, and even as nominal adults, we're not used to making such decisions for

ourselves. As a consequence, we approach a diet expecting everything to be

laid out for us.

What *Breaking the Vicious Cycle* does is lay out the parameters of what we

can eat -- and then it is our responsibility to observe the workings of our

own body in relation to what we consume, and determine what we can and

cannot have. That's scary. For the first time, WE are responsible! (It's

even scarier when you're the one making decisions for a child, and trying

to determine what works and what doesn't, and worrying about nutrition, but

more on that, later, with regards to Balance Over Time.)

Determining what works is where keeping a food diary is critical. You may

think you'll remember what you ate before you had those symptoms, but trust

me, you won't. Been there, tried it without the diary, didn't work.

In any case, if you decide to try a salad, let us know how it goes. <g> And

I have some great salad dressing recipes!

-- Marilyn (New Orleans, Louisiana, USA)

Undiagnosed IBS 25 Years, SCD Five Years

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

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[Guest guest]

Hi MB and Ken,

I am in the fighting stage of this disease and will continue to be so until they find a treatment for this blasted horrid monster. As we all should be. Have a great day people.

Wally

NSIP 10/06

west Texas

Subject: Re: stagesTo: Breathe-Support Date: Thursday, June 11, 2009, 12:29 PM

Ken,

I am not aware of any formal "stages" for pulmonary fibrosis. The only time I've heard a stage referred to is if a doctor tells someone they are in "end stage". But we've had members of this group who go on living in "end stage" for years.

If people ask you what stage lung disease you have you can use the opportunity to share information about pulmonary fibrosis with them. Cancer is typically referred to in stages so perhaps they think that pulmonary fibrosis has similar 'stages'.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Overman <kenover44 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, June 11, 2009 11:47:41 AMSubject: stages

good morning all

could someone explain the differant stages of PF, i don't recall if my pomodoc explained them or even told me which state i'm in, and, when i tell someone about my lung problem they ask me which stage i'm in, and i fell embarrassed that i don't know, so i simply say stage 1 as i beleive thats the lessor stage? and stage 4 is the worst? but i will make it a priority question when i see my pomodoc in sept.

thanks

ken o.

[Guest guest]

Wally,

That's fantastic and a great answer for people....the fighting stage....I love it!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Thursday, June 11, 2009 2:22:25 PMSubject: Re: stages

Hi MB and Ken,

I am in the fighting stage of this disease and will continue to be so until they find a treatment for this blasted horrid monster. As we all should be. Have a great day people.

Wally

NSIP 10/06

west Texas

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: stagesTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 11, 2009, 12:29 PM

Ken,

I am not aware of any formal "stages" for pulmonary fibrosis. The only time I've heard a stage referred to is if a doctor tells someone they are in "end stage". But we've had members of this group who go on living in "end stage" for years.

If people ask you what stage lung disease you have you can use the opportunity to share information about pulmonary fibrosis with them. Cancer is typically referred to in stages so perhaps they think that pulmonary fibrosis has similar 'stages'.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Overman <kenover44 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, June 11, 2009 11:47:41 AMSubject: stages

good morning all

could someone explain the differant stages of PF, i don't recall if my pomodoc explained them or even told me which state i'm in, and, when i tell someone about my lung problem they ask me which stage i'm in, and i fell embarrassed that i don't know, so i simply say stage 1 as i beleive thats the lessor stage? and stage 4 is the worst? but i will make it a priority question when i see my pomodoc in sept.

thanks

ken o.

[Guest guest]

I love it too, and that will be my response! "THE FIGHTING STAGE"

To: Breathe-Support Sent: Thursday, June 11, 2009 11:30:53 AMSubject: Re: stages

Wally,

That's fantastic and a great answer for people....the fighting stage....I love it!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: WALLY HOLMESLY <wkholmesly@sbcgloba l.net>To: Breathe-Support@ yahoogroups. comSent: Thursday, June 11, 2009 2:22:25 PMSubject: Re: stages

Hi MB and Ken,

I am in the fighting stage of this disease and will continue to be so until they find a treatment for this blasted horrid monster. As we all should be. Have a great day people.

Wally

NSIP 10/06

west Texas

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: stagesTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 11, 2009, 12:29 PM

Ken,

I am not aware of any formal "stages" for pulmonary fibrosis. The only time I've heard a stage referred to is if a doctor tells someone they are in "end stage". But we've had members of this group who go on living in "end stage" for years.

If people ask you what stage lung disease you have you can use the opportunity to share information about pulmonary fibrosis with them. Cancer is typically referred to in stages so perhaps they think that pulmonary fibrosis has similar 'stages'.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Overman <kenover44 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, June 11, 2009 11:47:41 AMSubject: stages

good morning all

could someone explain the differant stages of PF, i don't recall if my pomodoc explained them or even told me which state i'm in, and, when i tell someone about my lung problem they ask me which stage i'm in, and i fell embarrassed that i don't know, so i simply say stage 1 as i beleive thats the lessor stage? and stage 4 is the worst? but i will make it a priority question when i see my pomodoc in sept.

thanks

ken o.

[Guest guest]

That sure is what Lou was, " The Persistent Fighter" in her fighting stage.

Could we all be as ML was.

I miss her.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

stages

good morning all

could someone explain the differant stages of PF, i don't recall if my pomodoc explained them or even told me which state i'm in, and, when i tell someone about my lung problem they ask me which stage i'm in, and i fell embarrassed that i don't know, so i simply say stage 1 as i beleive thats the lessor stage? and stage 4 is the worst? but i will make it a priority question when i see my pomodoc in sept.

thanks

ken o.

[Guest guest]

it's not really political

they just have letters ready for people to write to their congress people about bills relating to our disease

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: stagesTo: Breathe-Support Date: Friday, June 12, 2009, 8:26 PM

Hi Joyce,Oh boy - just what I need another political group - oh my gawd - that is probably what got me this disease to begin with. Thanks - I'll check it out - I'm learning to be involved without losing myself! Peggy E

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: stagesTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 11, 2009, 10:29 AM

Ken,

I am not aware of any formal "stages" for pulmonary fibrosis. The only time I've heard a stage referred to is if a doctor tells someone they are in "end stage". But we've had members of this group who go on living in "end stage" for years.

If people ask you what stage lung disease you have you can use the opportunity to share information about pulmonary fibrosis with them. Cancer is typically referred to in stages so perhaps they think that pulmonary fibrosis has similar 'stages'.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Overman <kenover44 (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, June 11, 2009 11:47:41 AMSubject: stages

good morning all

could someone explain the differant stages of PF, i don't recall if my pomodoc explained them or even told me which state i'm in, and, when i tell someone about my lung problem they ask me which stage i'm in, and i fell embarrassed that i don't know, so i simply say stage 1 as i beleive thats the lessor stage? and stage 4 is the worst? but i will make it a priority question when i see my pomodoc in sept.

thanks

ken o.