Re: Re: results of VATS?????/

[Guest guest]

Thank you, , but how is it different then IPF? Joyce Rudy, AZ birds

Re: results of VATS?????

Hi ,Yeah- you're right I know having NSIP is not an illness where you pop a few antibiotics and get "cured". My pulmo-dude is reducing prednisone since he doesn't think it's doing anything, which is why he is referring me to Columbia Presbyterian for a transplant evaluation. I am his first patient with this mish-mosh of a diagnosis so he doesn't want to just keep trying this or that. He said the best you can hope for with a medicine working is that it would slow the progression of the disease, I would still be at the same place I am now- a transplant is the only chance to be normal again. Now I have another question, ever since this nightmare started mid-May of this year, I have been experiencing spasms in my lungs- if my mouth is open, it sounds like a hiccup which is so embarassing but it definitely isn't coming from my stomach. Told drs. about this and they said NOTHING, mentioned it to anesthesiologist at the VATS and I called it a broncho-spasm and he said it wasn't-but he didn't say what is was. Anyone else experience this? Yesterday was really bad and all I was doing was sitting, not talking. It happens whenever and wherever.> > >> > > >> > > > >> > > > >> > > > > Hi everybody,> > > > > Well I saw my pulmo-dude last week and the surgeon yesterday and my> > > > > diagnosis is not specifically one thing or another. I'm going to > > write it> > > > > all here and maybe someone else had a similar result.> > > > > Final Pathologic Diagnosis- Cellular Interstitial Inflammation with> > > > > numerous fibroblastic foci and mild interstitial fibrosis.> > > > > Biopsies show a cellular mixed inflammatory infiltrate of > > lymphocytes and> > > > > histiocytes in the alveolar septae. Scattered throughout the > > alveoli are> > > > > several small fibroblastic foci in the interstitium. There is mild> > > > > interstitial fibrosis thickening of the alveolae septae. No dense> > > > > honeycombing. Findings are consistant with a cellular fibrosing > > interstitial> > > > > pneumonitis. Differential diagnosis is a mixed NSIP pattern and UIP.> > > > > Presence of fibroblastic foci favors UIP but the dense fibrosing > > associated> > > > > with UIP is not observed in the samples. A similar histologic > > picture may be> > > > > observed in collagen vascular disease, pneumoconoisis, and > > hypersensitivity> > > > > pneumonitis. Suggest correlation with clinical and radiologic > > findings.HUH?> > > > > This is not how an episode of HOUSE MD ends! Anyway I am being > > referred by> > > > > my pulmo-dude to Columbia Presbyterian Medical Center-NYC which > > has an> > > > > interstitial lung disease department to be evaluated. I am back > > at work and> > > > > so happy to be out of the house. My company is giving me a > > parking spot> > > > > closest to the lobby and I also got from Motor Vehicles a > > handicapped> > > > > placard since I am on O2 for exertion. - nne> > > > >> > > > >> > > > >> > > >> > > >> > > >> > >> > > > --> > > > Dyane L. Billings> > > > Senior Staff Accountant> > > > Ball & McGraw PC> > > >> > >> >> >>

[Guest guest]

Joyce Rudy, The pattern of fibrosis

is different and the progression of the disease

is less dramatic. People with NSIP frequently remain stable for many

years, some with Prednisone and

others without. The life expectancy is longer as well.

You can look up NSIP on Medlineplus.gov...

this is a great site for loads of medical questions.

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

JOYCE RUDY wrote:

Thank you, , but how is it different then IPF? Joyce Rudy,

AZ birds

-----

Original Message -----

From:

Zion

To:

Breathe-Support

Sent:

Saturday, August 08, 2009 2:40 PM

Subject:

Re: Re: results of VATS?????

Joyce Rudy, NSIP is short

for Non-Specific Interstitial Pneumenitis..a form of PF.

The NS basically means they haven't a clue to the cause....of the

inflammation and fibrosis of the tissue

between the bronchial tubes. It's fibrosis anyway you call it!!!

My NSIP is responsive to Prednisone( fibriotic usually isn't).

Z 65, fibriotic NSIP/05/PA

And "mild" PH/10/07 and Reynaud's

too!!

No, NSIP was not self-inflicted.I

never smoked!

Potter, reader,carousel lover and

MomMom to Darah and Sara

"I'm

gonna be iron like a lion in Zion" Bob Marley

Vinca Minor-periwinkle is my

flower

JOYCE RUDY wrote:

What is NSIP? Joyce Rudy AZ birds

-----

Original Message -----

From:

teddyspenguins

To:

Breathe-Support

Sent:

Friday, August 07, 2009 1:17 PM

Subject:

Re: results of VATS?????

Hi ,

Yeah- you're right I know having NSIP is not an illness where you pop a

few antibiotics and get "cured". My pulmo-dude is reducing prednisone

since he doesn't think it's doing anything, which is why he is

referring me to Columbia Presbyterian for a transplant evaluation. I am

his first patient with this mish-mosh of a diagnosis so he doesn't want

to just keep trying this or that. He said the best you can hope for

with a medicine working is that it would slow the progression of the

disease, I would still be at the same place I am now- a transplant is

the only chance to be normal again.

Now I have another question, ever since this nightmare started mid-May

of this year, I have been experiencing spasms in my lungs- if my mouth

is open, it sounds like a hiccup which is so embarassing but it

definitely isn't coming from my stomach. Told drs. about this and they

said NOTHING, mentioned it to anesthesiologist at the VATS and I called

it a broncho-spasm and he said it wasn't-but he didn't say what is was.

Anyone else experience this? Yesterday was really bad and all I was

doing was sitting, not talking. It happens whenever and wherever.

> > >

> > > >

> > > > >

> > > > >

> > > > > Hi everybody,

> > > > > Well I saw my pulmo-dude last week and the

surgeon yesterday and my

> > > > > diagnosis is not specifically one thing or

another. I'm going to

> > write it

> > > > > all here and maybe someone else had a similar

result.

> > > > > Final Pathologic Diagnosis- Cellular

Interstitial Inflammation with

> > > > > numerous fibroblastic foci and mild

interstitial fibrosis.

> > > > > Biopsies show a cellular mixed inflammatory

infiltrate of

> > lymphocytes and

> > > > > histiocytes in the alveolar septae. Scattered

throughout the

> > alveoli are

> > > > > several small fibroblastic foci in the

interstitium. There is mild

> > > > > interstitial fibrosis thickening of the

alveolae septae. No dense

> > > > > honeycombing. Findings are consistant with a

cellular fibrosing

> > interstitial

> > > > > pneumonitis. Differential diagnosis is a mixed

NSIP pattern and UIP.

> > > > > Presence of fibroblastic foci favors UIP but

the dense fibrosing

> > associated

> > > > > with UIP is not observed in the samples. A

similar histologic

> > picture may be

> > > > > observed in collagen vascular disease,

pneumoconoisis, and

> > hypersensitivity

> > > > > pneumonitis. Suggest correlation with clinical

and radiologic

> > findings.HUH?

> > > > > This is not how an episode of HOUSE MD ends!

Anyway I am being

> > referred by

> > > > > my pulmo-dude to Columbia Presbyterian Medical

Center-NYC which

> > has an

> > > > > interstitial lung disease department to be

evaluated. I am back

> > at work and

> > > > > so happy to be out of the house. My company is

giving me a

> > parking spot

> > > > > closest to the lobby and I also got from Motor

Vehicles a

> > handicapped

> > > > > placard since I am on O2 for exertion. -

nne

> > > > >

> > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> > > > --

> > > > Dyane L. Billings

> > > > Senior Staff Accountant

> > > > Ball & McGraw PC

> > > >

> > >

> >

> >

>