Peggy

[Guest guest]

Welcome back. I had a discussion recently with UTSW regarding the

torture of PFT's to more advanced patients. You know from your

saturation how you're doing and as poorly as one can do the PFT's the

information gained is limited. I can't do volumes and DLCO in my

doctor's office, but can at medical centers such as U of Chicago or

UTSW.

Now, glad you are having the echo and if it doesn't turn out like you'd

hope, don't panic, just do the catheter and find out the facts. My

pressure on my echo was 47, but on the catheter is was only 18.

Well, welcome home and rest and recover tomorrow. Hope its a good porch

day but imagine too hot.

>

> Hi group, I got back from my Dr. around 7PM sure a long day. I was

> unable to do the PFT's. I knew I didn't have that kind of air

> anymore.. The DLCO was just impossible. I have coughed today until I

> am aching like crazy. But

> I did it. I am to have an echo ASAP. they will call me with the

> appointment. You know I am not looking forward to that with my fiber-

> cystic problem.. Anyhow I am not doing anymore PFT's. YEAHHHH I

think.

> My lungs have all sorts of noises going on. I will get more info when

> I have the echo.

>

> If you want to do some interesting searching google UF Pulmonary

> Dept. My Drs pic is there ( not a very good one ) lol but they are

> building the web site. There is a Dr. Ibrahim Faruqi, M.D., MPH. He

> is starting a IPF clinic at UF. Dr Antony is very excited about it .

> He is already working on it. They will have a full clinic

> with support group and every kind of a Dr. IPF patients may need.

> Sounds amazing.

>

> I am to tired to think straight right now so if I think of anything

> else---later.

>

>

>

> Love and Prayers, Peggy

> IPF 2004, Florida

>

> Worry looks around,

> Sorry looks back,

> Faith looks up.

>