Re: Thank You

[Guest guest]

Mallory Weis was the physician (g.i.) who discovered that kind of tear--

caused by many things. Actually, I am rather glad that they found some

thing undisastrous, but somewhat explanatory, probably!

Keep the faith,

n

[Guest guest]

> Dear Carol, Patti and Everyone,

> Thank you for your answer. I also ate a great deal of string beans

> (found French Haricot verts) at Trader Joes and may have gone

> overboard.

> Also, since I added Swiss Cheese and Cheddar to my repertoire, I have

> been overly thrilled with the taste..and including one or the other

> with

> every meal (maybe not such a great idea).

> Thanks again, for the suggestions. I love learning and studying this

> diet. I feel as if I'm back in school and it's a true challenge...but a

> rewarding one.

>

> Thanks again,

>

> Ronnie

Ronnie,

SCD became a hobby and a door to using my creativity. I can't say " when

you are handed a lemon, make lemonade. " as I started being food

involved at the age of ten ( I am now 75). I always loved trying a

new diet. This one became the keeper. (It's been six years now)

I maintain a consistent healthy weight with it (was up and down a

lifetime and obese for long periods). It is not a weight loss diet. I

became celiac in March 2000 and was lucky it clicked right away.

SCD made me into an imaginative cook. There may have been a few whites

and beiges missing from the palette, like rice, potatoes and wheat

flour, but using SCD legal foods there is always a new combo to try.

Call me the Ray of SCD, except that last week I lost 90% of my

ability to taste food am seeing my dentist and family doctor to get to

the bottom of it.

SCD is perfect for Passover too!

>

>

Carol F.

Celiac, MCS, Latex Allergy, EMS

SCD 6 years

[Guest guest]

You're welcome . I really felt like you just had too much on your plate

right now to also try chelating. It has taken me years to really realize what

all this stress does to our adrenals, and that chelation can also add stress to

the adrenals, so at times, it is just better to take a break and not tax the

adrenals any more than necessary.

Good luck, and baby those adrenals as much as you can ---------Jackie

In frequent-dose-chelation Lou wrote:

I just wanted to say a big thank you to everyone who has posted here

over the past few days with help and suggestions for me. It's a bit

overwhelming, all this info, but I've filed it away to keep and look

at. It's a relief in a way to be told that adrenal balancing should

come before chelation; I will work on that for now and try to get more

stable. When I am ready to chelate again, I will come here for some

advice. Thanks also for the sympathy -- sometimes it's easy to forget

about how many stressors are coming from different directions, and

other people can help put things in perspective.

Thanks again and best wishes for continued healing to you all,

.

[Guest guest]

Jerry,

Welcome! I'm glad you found the group. I'm also glad that you've done so well over the last 4 years. 80 mile bicycle rides...WOW! that's impressive.

How impaired is your lung function? I take it you are not on supplemental oxygen...or are you? I'd love to hear more of your story.

Thanks for joining us!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Saturday, July 4, 2009 6:58:50 AMSubject: Thank You

I was diagnosed with IPF 4 years ago. I am seeing Dr. ph Lasky of Tulane University. Although my lung function is impaired, I was able to bicycle 80 miles twice last year. I am looking forward to sharing and learning from you in this group. Happy 4th of July to all.

JerryWho believes that hard times help us appreciate the good times even more.

[Guest guest]

Thanks Jerry for your story. I'm a newbie and it's good to hear of people living well in spite of this disease. Hope we hear more from you.PJ Thank You

I was diagnosed with IPF 4 years ago. I am seeing Dr. ph Lasky of Tulane University. Although my lung function is impaired, I was able to bicycle 80 miles twice last year. I am looking forward to sharing and learning from you in this group. Happy 4th of July to all.

JerryWho believes that hard times help us appreciate the good times even more.

[Guest guest]

Hi PJ, Just thought I would throw this at ya,. I have GERD and if I get lazy or forgetful and don't take my med for it. I get chest pain and feel very uncomfortable in my chest. Leanne reminded me about this recently when i was whining about it. I have been taking it correctly and that discomfort and pain is gone. WHO KNEW. lol Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Dear Jerry, What a wonderful and inspiring story your life has been since you have been diagnosed with IPF. I love to see what people write, no matter whether it's a good day or bad, it's been so helpful to me.I lost 75 pounds five years ago. I was only recently diagnosed with IPF, but I'm so thankful now. I still count calories, weigh myself, and WATCH MY SALT intake, because I gain water weight so easily.I googled pulmonary rehab and found the Huff and Puff site that was recommended on this site. My doctor never recommended rehab, but I feel even though I'm not on O2 that I slip and do the opposite of what I'm probably supposed to do, which is breathe in through my mouth instead of my nose. I enjoy bike riding too, but have only gone short distance-probably the most was 15 miles. I need to monitor my pulse while doing different kinds of exercise. I know one day while on the treadmill on room air I was in the mid 90's, the next day I dropped into the high 80's.The thing that scares me the most is shortness of breath and the occasional scattered chest pain-that could be anterior or posterior. The doctor said my heart is fine after an EKG and stress test.I don't think it's the arthritis because it's not an ache, it's sharper and more fleeting than that. Or maybe this is just something that is common with this disease. If you or anyone has experienced this let me know. Welcome to the group,PJ from Ohio Thank You I was diagnosed with IPF 4 years ago. I am seeing Dr. ph Lasky of Tulane University. Although my lung function is impaired, I was able to bicycle 80 miles twice last year. I am looking forward to sharing and learning from you in this group. Happy 4th of July to all. JerryWho believes that hard times help us appreciate the good times even more.

[Guest guest]

Jerry...first of all, what is your reason for having an 'empty' tank under the bed?? That sure won't do you any good should you need it sometime.

You scamp you...those hugs are nice aren't they?

You remind me of myself when I was younger; positive, upbeat, go-getter. My motto those years was, "Pick yourself up, dust yourself off and start all over again"...

I'm sure you have posted it but how old are you?

BTW, can you add (through signature) State, age, dx and when, to your name? That way old ladies like me (lol) can remember the details.

Keep on keepin' on Jerry!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Thank You

I was diagnosed with IPF 4 years ago. I am seeing Dr. ph Lasky of Tulane University. Although my lung function is impaired, I was able to bicycle 80 miles twice last year. I am looking forward to sharing and learning from you in this group. Happy 4th of July to all.

JerryWho believes that hard times help us appreciate the good times even more.

[Guest guest]

Sher, I think of this news group as a social outlet. Now Would you tell me a little about yourself? You can leave off the age thing; Mom says that's not polite. You can just say the year you were born ind I'll take it from there. I love to know where people live. I have visited in most of the 48 states and remember things I enjoyed in each one.

Speaking of best friends and socializing, seeing my best friend Flo peeking through the curtains as I was being prepped for my biopsy eased my mind so much. She stayed 24/7 for 2 days. She may think that was a small thing, but not a day goes by that I don't think about that. If she is willing to spend so much of her time taking me to Tulane and having me at their home, then I owe it to them to do all I can to stay as healthy as I can. As you say, friendship and family are so important now.

Hope you are enjoying your day. The weather is hot down here in Mississippi.

JerryWho believes that hard times help us appreciate the good times even more.

From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: Thank YouTo: Breathe-Support@ yahoogroups. comDate: Saturday, July 4, 2009, 5:22 PM

Welcome Jerry...glad to have you with us. You're in the best place you can be as we fight our mutual disease.

I was dx (diagnosed) 3+ years ago and holding fairly stable. Had a bit of progression but nothing drastic.

I'm on O2 w/exertion and always at night.

Tell us in what State you live, age, married, kids, family to support your illness?

Keep coming back, you'll like us.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Thank You

I was diagnosed with IPF 4 years ago. I am seeing Dr. ph Lasky of Tulane University. Although my lung function is impaired, I was able to bicycle 80 miles twice last year. I am looking forward to sharing and learning from you in this group. Happy 4th of July to all.

JerryWho believes that hard times help us appreciate the good times even more.

[Guest guest]

Hi Jerry, I live in Florida. I am 66 years old. I was Dx. 2004 with IPF and just within this past year I have progressed quite a bit. That doesn't mean everyone does that we are all different with this monster. Hopefully I won't progress any further this year. I AM going to Chattanooga in Oct. Hope you can make it. My husband is in Ms today getting his brother from Laurel and bringing him home for a few weeks. Welcome to our group so sorry you need us but trust me this is the place to get support and help. God Bless You.Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Sher, I think of this news group as a social outlet. Now Would you tell me a little about yourself? You can leave off the age thing; Mom says that's not polite. You can just say the year you were born ind I'll take it from there. I love to know where people live. I have visited in most of the 48 states and remember things I enjoyed in each one. Speaking of best friends and socializing, seeing my best friend Flo peeking through the curtains as I was being prepped for my biopsy eased my mind so much. She stayed 24/7 for 2 days. She may think that was a small thing, but not a day goes by that I don't think about that. If she is willing to spend so much of her time taking me to Tulane and having me at their home, then I owe it to them to do all I can to stay as healthy as I can. As you say, friendship and family are so important now. Hope you are enjoying your day. The weather is hot down here in Mississippi. JerryWho believes that hard times help us appreciate the good times even more. From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: Thank YouTo: Breathe-Support@ yahoogroups. comDate: Saturday, July 4, 2009, 5:22 PM Welcome Jerry...glad to have you with us. You're in the best place you can be as we fight our mutual disease. I was dx (diagnosed) 3+ years ago and holding fairly stable. Had a bit of progression but nothing drastic. I'm on O2 w/exertion and always at night. Tell us in what State you live, age, married, kids, family to support your illness? Keep coming back, you'll like us. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Thank You I was diagnosed with IPF 4 years ago. I am seeing Dr. ph Lasky of Tulane University. Although my lung function is impaired, I was able to bicycle 80 miles twice last year. I am looking forward to sharing and learning from you in this group. Happy 4th of July to all. JerryWho believes that hard times help us appreciate the good times even more.

[Guest guest]

Jerry .... I think of our group as a social outlet as well. Just about every topic has crossed the board.

As far as the year I was born, no need...my age; 70, is in my signature...as is my home State, OR.

I love living in OR., the green trees and clear water...in most places. We are about 25 mi south of Portland, and east of I-5 about 6 mi...Canby. A wonderful little town where every visitor wants to live.

A little park in the center of town, even a white gazebo where Sunday concerts are held. It's as great as it sounds.

We live close enough that we hear the concerts from home.

Flo is obviously a great friend!

Or at least curious. lol

I'm married, husband Rich, (previous husband killed by a drunk driver).I personally have 3 kids w/kids of their own. 5 grkids and 2 grt/grkids. All live within 35 miles. Rich's two boys live ,one, in Portland, one in PA.

I used to be a counselor, never retired just had to stop working...health reasons. I'm a freelance writer and don't do much of that anymore either. So what I was I 'aint' and what I'd like to be I 'caint'...hehehe

We are planning on moving in about 30-45 days if all goes well.

Puts us literally 5 min from our daughter, Lysa. Can't get much closer unless we move in! As both our health gets worse we need to be closer to her.

Rich is probably looking at heart surgery in a few months.

Well, there. You asked me what time it is and I told you how to build a watch! lol.

Have a good day today.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Thank You

I was diagnosed with IPF 4 years ago. I am seeing Dr. ph Lasky of Tulane University. Although my lung function is impaired, I was able to bicycle 80 miles twice last year. I am looking forward to sharing and learning from you in this group. Happy 4th of July to all.

JerryWho believes that hard times help us appreciate the good times even more.

[Guest guest]

Sher, I can tell you are very good at counseling. You are still at it, but out of the goodness of your heart.

My niece lives near Portland on an organic farm. We had all hoped that she would come back south, but I can understand why she would want to stay. I keep saying that I will take the train up to Oregon and visit her. is young, yet still old-fashioned enough to write us real letters with all kinds of seeds and herbal teas. Mom and Dad love getting letters from . We had hoped she would make it down here for the 4th.

describes Oregon, and especially Portland, as a unique city where true art is appreciated. And the idea of bicycles being encouraged there really makes me envious. As a young man of 13, I went to Oregon, and I remember so well how green all the vegetation is. speaks of flowers in abundance there.

Your family must be a real source of happiness for you. They want to be there for us, just as we were there for them.

Fortunately Mom and Dad are still living. I did not tell them when I went into the hospital for my biopsy. Mom had suffered a stroke 6 months before, and I just couldn't bring myself to tell them. My friend Flo convinced me to let them know, as they would want nothing more than to be there for me. It was as she said. Had I not had to leave work, I may have never enjoyed the closeness of my family. I was always too busy to visit them on the weekend. My friends hardly saw me after I moved to to the new job.

Flo and Steve will not let me put gas in their vehicles when Flo takes me to New Orleans. I have on occasion house-sat for them. And their little Snouzer Lucy made me feel right at home when I went to stay with them after the biopsy. Even now Lucy thinks I come to spoil her. She has always insisted on sleeping with me. I spoil her rotten. Think I will send you a picture of her. Maybe I am putting too much into it, but she seemed to know that what I needed was lots of love. Flo and I have rescued many animals over our friendship.

I can not understand why some one would drink and drive. I am sorry. Even as a counselor, you would be hardpressed to understand or explain why these unnecessary tragedies occur. I am glad you are remarried and enjoy the love of a wonderful close family.

Yes I am beginning to catch on now to making a signature line that answers the questions the group may have about who we are. Enjoy your day and take care.

Jerry/dx April 05/IPF,Mississippi

From: Sher Bauman <bofus (AT) wbcable (DOT) net>Subject: Re: Thank YouTo: Breathe-Support@ yahoogroups. comDate: Saturday, July 4, 2009, 5:22 PM

Welcome Jerry...glad to have you with us. You're in the best place you can be as we fight our mutual disease.

I was dx (diagnosed) 3+ years ago and holding fairly stable. Had a bit of progression but nothing drastic.

I'm on O2 w/exertion and always at night.

Tell us in what State you live, age, married, kids, family to support your illness?

Keep coming back, you'll like us.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Thank You

I was diagnosed with IPF 4 years ago. I am seeing Dr. ph Lasky of Tulane University. Although my lung function is impaired, I was able to bicycle 80 miles twice last year. I am looking forward to sharing and learning from you in this group. Happy 4th of July to all.

JerryWho believes that hard times help us appreciate the good times even more.

[Guest guest]

Jerry... since our visits seem to be continuing maybe we should go to our private emails. We may be boring the board...no pun intended, hehehe.

Counseling is something that is mostly helping as far as I'm concerned. If my heart feels that 'nudge' I jump right in. lol.

I've caused a few rifts here on the board but those that love me tolerate me.

What is the name of the organic farm? There are so many and it well may be on south end...

Yes, getting letters from would be something to look forward to. The immediate response from people online spoils most for letter writing.

Look how many "letters" we have written to each other already.

Yes, do send pictures of Lucy and you too. Go to Albums on the Home page and you can find pictures of me/Rich and stuff.

I'm convinced our little pets do know our "moods" and illness too.

You're right, I'm hard pressed to understand why people get into a car drinking. Of course they think they are 'OK'...

Not only was he drunk but in a stolen vehicle with no license and no insurance.

Rich and I have been married nearly 16 years now. I think this might work!

My email is bofus@...

send your reply (whenever you want to) and we will free the board.

Your signature looks good.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Thank You

I was diagnosed with IPF 4 years ago. I am seeing Dr. ph Lasky of Tulane University. Although my lung function is impaired, I was able to bicycle 80 miles twice last year. I am looking forward to sharing and learning from you in this group. Happy 4th of July to all.

JerryWho believes that hard times help us appreciate the good times even more.