Guest guest Posted June 14, 2009 Report Share Posted June 14, 2009 THANK YOU I WILL ASK FOR IT TOMORROW To: Breathe-Support Sent: Sunday, June 14, 2009 10:22:39 PMSubject: Elba Hi Elba One of the test that everyone should get is a Hypersensitivity pneumonitis antibody panels. It is a simple blood test that could show things that you are allergic to that could cause fibrosishttp://www.nlm. nih.gov/medlinep lus/ency/ article/000109. htmhttp://www.medicine net.com/hypersen sitivity_ pneumonitis/ article.htmhttp://www.merck. com/mmpe/ sec05/ch055/ ch055e.htmlOne of our member took the test and found out her problem was her pet bird. P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 10 LPM 8/04, PH 3/06, ILL yo 61REMEMBER : All of you on Prednisone'stressed' spelled backwards is 'desserts'P.-----pray U.----until S.----something H.----happens From: Elba <babynita86 (AT) yahoo (DOT) com>Subject: Re: HI TO ALLTo: Breathe-Support@ yahoogroups. comDate: Sunday, June 14, 2009, 12:15 PM i live in nyc i been on o2 since i 06 my family realy does not get me you know they think it like a cold that would go away with a pill thanks for taking in to this family i no longer feel alone i just 19 when i was getting sick and no dr had an ansewer for my and my hubby thank all for your support From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Sunday, June 14, 2009 2:42:19 PMSubject: Re: HI TO ALL Tanairi.... I'm so sorry to read you are already 3 years into PF at 23!! You are in the best place you can be now as we fight our common disease. There is always someone here to answer a question or give extra support. Tell us in what State you live and do you have family to support you? Are you on o2 yet? Welcome! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! HI TO ALL THANK TO ALL FOR LETTING ME BE PART OF THIS GROUP I HAVE BEEN LIVING WITH PF FOR 3 YEARS NOWIT GREAT TO HAVE PEOPLE TO RELATE TO I AM 23 I HAVE AND AND JUST PARY TO GOD I CAN LIVE TO SEE HIM GROW UP Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 Hi Elba, I was first diagnosed with PF when I was in my late 20's. I've developed it as a result of an autoimmune disease, dermatomyosits. I'm now 39 (40 next month eeeeeeeek) and have just got on the transplant list. I have only needed supplemental Oxygen in the last couple of years. My daughter is 6 and we have tried to keep her life as 'normal' as possible. I feel (and this is MY feelings, it's not necessarily right for you) that if anything was to happen to me, then it would be easier for her. She knows that she is loved and that mummy can't do as much as other mummys, but people rally round Sending you much love and strength Love Ze xx > > > From: Elba babynita86 (AT) yahoo (DOT) com>> Subject: Re: HI TO ALL> To: Breathe-Support@ yahoogroups. com> Date: Sunday, June 14, 2009, 12:15 PM> > > > > > > i live in nyc i been on o2 since i 06 my family realy does not get me you know they think it like a cold that would go away with a pill thanks for taking in to this family i no longer feel alone i just 19 when i was getting sick and no dr had an ansewer for my and my hubby thank all for your support > > > > > From: Sher Bauman bofus (AT) wbcable (DOT) net>> To: Breathe-Support@ yahoogroups. com> Sent: Sunday, June 14, 2009 2:42:19 PM> Subject: Re: HI TO ALL> > > > > Tanairi.... I'm so sorry to read you are already 3 years into PF at 23!!> You are in the best place you can be now as we fight our common disease.> There is always someone here to answer a question or give extra support.> Tell us in what State you live and do you have family to support you?> Are you on o2 yet?> Welcome!> MamaSher; 70, IPF 3-06, OR. > Nasturtiums> Don't fret about tomorrow, God is already there!> > > HI TO ALL> > > > THANK TO ALL FOR LETTING ME BE PART OF THIS GROUP I HAVE BEEN LIVING WITH PF FOR 3 YEARS NOWIT GREAT TO HAVE PEOPLE TO RELATE TO I AM 23 I HAVE AND AND JUST PARY TO GOD I CAN LIVE TO SEE HIM GROW UP> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 glad to see you posting i commented in an earlier post today, that i haven't seen you post in a while and here you are Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: ElbaTo: Breathe-Support Date: Sunday, June 14, 2009, 10:22 PM Hi Elba One of the test that everyone should get is a Hypersensitivity pneumonitis antibody panels. It is a simple blood test that could show things that you are allergic to that could cause fibrosishttp://www.nlm. nih.gov/medlinep lus/ency/ article/000109. htmhttp://www.medicine net.com/hypersen sitivity_ pneumonitis/ article.htmhttp://www.merck. com/mmpe/ sec05/ch055/ ch055e.htmlOne of our member took the test and found out her problem was her pet bird. P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 10 LPM 8/04, PH 3/06, ILL yo 61REMEMBER : All of you on Prednisone'stressed' spelled backwards is 'desserts' P.-----pray U.----until S.----something H.----happens From: Elba <babynita86 (AT) yahoo (DOT) com>Subject: Re: HI TO ALLTo: Breathe-Support@ yahoogroups. comDate: Sunday, June 14, 2009, 12:15 PM i live in nyc i been on o2 since i 06 my family realy does not get me you know they think it like a cold that would go away with a pill thanks for taking in to this family i no longer feel alone i just 19 when i was getting sick and no dr had an ansewer for my and my hubby thank all for your support From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Sunday, June 14, 2009 2:42:19 PMSubject: Re: HI TO ALL Tanairi.... I'm so sorry to read you are already 3 years into PF at 23!! You are in the best place you can be now as we fight our common disease. There is always someone here to answer a question or give extra support. Tell us in what State you live and do you have family to support you? Are you on o2 yet? Welcome! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! HI TO ALL THANK TO ALL FOR LETTING ME BE PART OF THIS GROUP I HAVE BEEN LIVING WITH PF FOR 3 YEARS NOWIT GREAT TO HAVE PEOPLE TO RELATE TO I AM 23 I HAVE AND AND JUST PARY TO GOD I CAN LIVE TO SEE HIM GROW UP Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.