Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 Rudy Joyce i wish i could demonstrate on line how my transplant doc does with his arms about the progression of ipf of course we know that each case is very different some ipfs stay on a straight line for a very long time -------------- some ipfs stay on a slope for a very long time ---- ---- ----- (couldn't figure out how to draw a slope) some ipfs stay on a straight line for a very long time and then do a sudden drop ------------------- ------- -------- there is no way to predict you didn't say how many liters you used while walking, i need continuous 3 or 4 when walking the dog also, you might still be recovering from your surgery, which might slow you down you might need to "take smaller steps" do a 1/4 block today, 1/2 block tomorrow, 3/4 block the next day and so forth (each day may equal a couple of days) in other words, gradually increase the length of your walks i hope this makes sense Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: IPFTo: "Breathe-Support" <Breathe-Support >Date: Sunday, June 14, 2009, 7:56 PM How long does IPF usually stay inactive? Also, I had to walk a block to get to Denny's and it about did me in. Is that normal? I had my oxygen on and it was really hard to walk that block...it was a long block. The doc's said I should use it not on pulse and anywhere from 4 to 6 lpm. If I am using oxygen aren't I supposed to be able to do things like walk with little difficulty? And, if not why not. I am not understanding why if my oxygen is in the 90's I still have such a hard time walking. Joyce Rudy IPF AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 the first time i went back to rehab after being sick, i could barely do 17 minutes on the treadmill (usually i do 22 -25) then i had to sit for a long time, before doing the rest of the machines then when i did the nu-step, i could barely do 2 minutes, (i consider this an easy machine) i found that day interesting because the cardio vascular equipment was difficult, but the strength equipment with weights i was able to do a few days later, i was back into my usual routine, but i have continued to sit and rest after the treadmill Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: IPFTo: "Breathe-Support" <Breathe-Support >Date: Sunday, June 14, 2009, 7:56 PM How long does IPF usually stay inactive? Also, I had to walk a block to get to Denny's and it about did me in. Is that normal? I had my oxygen on and it was really hard to walk that block...it was a long block. The doc's said I should use it not on pulse and anywhere from 4 to 6 lpm. If I am using oxygen aren't I supposed to be able to do things like walk with little difficulty? And, if not why not. I am not understanding why if my oxygen is in the 90's I still have such a hard time walking. Joyce Rudy IPF AZ Quote Link to comment Share on other sites More sharing options...
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