Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 You better take your Omeprozole every day or I'll come down there and beat you! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Saturday, July 25, 2009 10:09:46 PMSubject: Re: Re: Transplant Evaluation!MB & Ronnie, I was having chest pain upon laying down and bending sometimes just sitting my chest was uncomfortable. My Dr did a Echo because that is a symptom BUT it was the stupid reflux.. I am very careful to take my med everyday. Thats just me. Love and Prayers, Peggy IPF 2004, Florida Worry looks around, Sorry looks back, Faith looks up. Ronnie, One of the ways PH could manifest is a sudden rapid increase in the need for supplemental O2. We've learned that the hard way here with various members. Going from 5 liters to 10 liters in just two days is extremely fast. Since you're being evaluated for transplant this is one of the things they will test for. In the meantime take it easy and rest...don't push yourself! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Ronnie Edmiston <ronnieedmiston@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Saturday, July 25, 2009 9:37:48 PMSubject: Re: Re: Transplant Evaluation! No, I have no new symptoms. How would pulmonary hypertension manifest itself? ronnie From: Bruce Moreland <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Saturday, July 25, 2009 3:59:20 PMSubject: Re: Transplant Evaluation! RonnieGoing from 5 to 10 liters in two days could be normal progression butsure sounds to me like something else going on. Do you have any othernew symptoms? Anyone you can see sooner than Wednesday? Do you have anypulmonary hypertension? The expert in this region on it is Dr. who is at the same location as Dr. Blewett.I've seen Dr. Blewett on my one trip there just to get very preliminaryinformation 18 months or so ago. I'm not likely a transplant candidate.> > >>>>>>>>> > >>>>>>>> Jan,> > >>>>>>>> Congrats - you must be glad this portion is complete. How> long is the> > >>>>>>>> process? This is going to be my next step after I see the> doctor on> > >>>>>>>8/20.> > >>>>>>>>> > >>>>>>>> I didn't realize your insurance would choose the facility> that you> > >>>>>>>have to> > >>>>>>>> go to. Is that because there is not a transplant hospital> near you?> > >>>>>>>>> > >>>>>>>> I will keep you in my prayers for approval by theCommittee.> > >>>>>>>> Dorothy, Fayetteville, GA> > >>>>>>>> UIP 7/05> > >>>>>>>>> > >>>>>>>> _____> > >>>>>>>>> > >>>>>>>> From: Breathe-Support@ yahoogroups. com> > >>>>>>>> [mailto:Breathe- Support@ yahoogroups. com] On Behalf OfJan> > >>>>>>>> Sent: Wednesday, July 15, 2009 11:29 AM> > >>>>>>>> To: Breathe-Support@ yahoogroups. com> > >>>>>>>> Subject: Transplant Evaluation!> > >>>>>>>>> > >>>>>>>>> > >>>>>>>>> > >>>>>>>>> > >>>>>>>>> > >>>>>>>> I have just completed (I think) testing for transplant> > >>>>>>>eligibility. ..it was> > >>>>>>>> very interesting and intense!> > >>>>>>>>> > >>>>>>>> Due to my insurance we have to go to Dallas for anything> related to> > >>>>>>>> Transplant. We are patients of the Heart and LungTransplant> > >>>>>>>department at> > >>>>>>>> UT Southwest. I can't say enough about every singleemployee> at the> > >>>>>>>hospital> > >>>>>>>> and every specialist's office that we have had to visit.They> are all> > >>>>>>>very> > >>>>>>>> concerned about your comfort, that you do not have to wait> for your> > >>>>>>>> appointment and that you always have someone right there to> help you> > >>>>>>>find> > >>>>>>>> whatever you may need ! Even the doctors take their timeand> visit> > >>>>>>>with you> > >>>>>>>> until all your questions are answered. We are veryimpressed.> They are> > >>>>>>>one> > >>>>>>>> of the Centers of Excellence, and we can sure see how they> got there!> > >>>>>>>>> > >>>>>>>> Hopefully, my case will be presented to the Committee on> Friday of> > >>>>>>>this> > >>>>>>>> week...if not then the next week.. It has been> fun...interesting and> > >>>>>>>the> > >>>>>>>> source of greater fatigue, just keeping up with the> schedule...lol. ..> > >>>>>>>>> > >>>>>>>> I hope you all have a great Wednesday today!> > >>>>>>>>> > >>>>>>>> > >>>>>>>> > >>>>>>> > >>>>>> > >>>>>> > >>>>> > >>> >> Quote Link to comment Share on other sites More sharing options...
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