Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 You know I never felt like Dr. Raghu was going out of the box for me. That 6 min walk was a good one...maybe it was the day. I do have an oximeter. I think he should have been looking at my PAH..and looking closer at my Imuran and Pred meds. Sounds like I'm going to be taken off of the immunity reducing meds because of the PAH.... I've been coughing more - sometimes using oxygen helps to stop it. My vision has been blurry - trying to read is sometimes blurry, even with " reading glasses " . I must remember to ask Dr. Kenaan on momday about this. Joy > > > > > > He took me off because that day I had a " good " 6 minute walk. That > was > > many months ago, I don't remember how many. And, my PFTs had improved > a > > little bit. > > > > I'm also on Imuran - my current pulmo set up an appt for me with Dr. R > > in July after my cath for PAH - depending on those results - he may > have > > to prescribe something different that Imuran. She also put me back on > > the oxygen - and oxygen at night with my CPAP. I have been > experiencing > > dizzy spells, and tingley hands. Dizzy could be related to heart or > > lungs. I had a CT of my lungs a few weeks ago, but she had nothing to > > compare it to - was waiting, and waiting for past CTs from U of W. > > There was some inflammation and fibrosis, of course!! > > > > My cough is back too. I think I should have a blood draw to check out > > the osteopenia, liver, etc. > > > > At this point - " what ever " is my attitude! My cath is next Tuesday. > > > > Joy in Seattle > > > Quote Link to comment Share on other sites More sharing options...
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