Peggy

[Guest guest]

Peggy,

I'm glad you got that over with. It sounds like it was an exceptionally long day. I'm also glad you are going to have an echo. Let's see if any of your sob is due to pulmonary hypertension. Maybe there is something they can do for some of it.

The plans that UF have for an ILD dept are very exciting and good for all of us really. When patients have access to specialists and more research and education gets done all of us benefit!

Today you should do nothing but rest, rest, rest and I know you will. I have my sister and the kids around this week We are having alot of fun but by Saturday morning I know I will be whooped!

Hugs,

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Wednesday, August 26, 2009 10:20:16 PMSubject:

Hi group, I got back from my Dr. around 7PM sure a long day. I was unable to do the PFT's. I knew I didn't have that kind of air anymore.. The DLCO was just impossible. I have coughed today until I am aching like crazy. But

I did it. I am to have an echo ASAP. they will call me with the appointment. You know I am not looking forward to that with my fiber-cystic problem.. Anyhow I am not doing anymore PFT's. YEAHHHH I think.

My lungs have all sorts of noises going on. I will get more info when I have the echo.

If you want to do some interesting searching google UF Pulmonary Dept. My Drs pic is there ( not a very good one ) lol but they are building the web site. There is a Dr. Ibrahim Faruqi, M.D., MPH. He is starting a IPF clinic at UF. Dr Antony is very excited about it . He is already working on it. They will have a full clinic

with support group and every kind of a Dr. IPF patients may need. Sounds amazing.

I am to tired to think straight right now so if I think of anything else---later.

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.