VATS Biopsy results

[Guest guest]

I went to my pulmo-dude today and got the biopsy results. Kind of curious.

National Jewish " diagnosed " cellular NSIP. according to review here in Salt

Lake, the biopsies indicated UIP-type nonidopathic. The reviewer went on to

state that there was variable fibrosis, somewhat mild in nature with a tendency

towards peripheral localization, along with peripheral honeycombing. My doctor

sounded almost perplexed. As am I. Sounds like I do, but don't have

anything... Wierd. My pulmo-dude is sending the slides along with a cover

letter to National Jewish for them to review... because the knowledge and

experience with PF is just not that strong here in Salt Lake City. I have sent

an email to my National Jewish Health Center doctor (Dr. Fernandez), giving him

a heads up. I also asked him to let me know if he needs insurance information

for billing purposes.

Also met with local group. I ended up being a " featured speaker " because of

what I am doing for PF Awareness week. I bought wrist bands from the pulmonary

fibrosis foundation for family and friends with instructions on how to answer

questions during awareness week. I am also having them ask their friends to

call the congressional representatives to get HR 1079 approved. I shared the

blue shirt Friday idea with them as well. Several people expressed interest in

the online support group so I told them they would have to be " approved " but to

go online and apply.

These people are primarily IPF, Ideopathic Pulmonary Fibrosis, patients. I am

told that these people are typically over 60 and that it isn't the same as UIP

or NSIP. I didn't argue... it is still PF, right!! Maybe I need enlightening,

but I thought IPF was like saying we have Interstitial Lung Disease (a catch all

phrase).

Stefani 61, Utah

ILD 2/2006, NSIP (cellular) 6/2009, Diabetes II 2/2006, Sleep Apnea 4/2009