HC and thyroid medication advise, wasRe: Help needed -- any DMSA experts?

[Guest guest]

>

> It took me over 3 months to sort out the adrenal support. I never

> wanted to take so much and I was worried about it. But lower amounts

> just did not work for me. I had got to over 70mg of HC a day and I

> wasn't getting relief, so I was pretty pleased to find that I could

> take the equivalent of 45mg with medrol. I tried to take less but it

> wasn't enough. Val is good on the other list and she and many others

> have to take more than 20mg of HC.

It is true that some people need to take more than 20 mg HC per day as

a maintenance dose. But, it is impossible for someone over the

internet to diagnose and know exactly how much any individual needs!

There are so many individual factors. Over the internet we are not

privy to most of the factors, and it is certainly difficult for any

individual to remember the details of any case.

I have not spent much time in the group referring to (above), but long

enough that I remember that there was a Val there. There is no doubt

that many people appreciate that group especially considering that the

medical community in general is not giving people proper support with

adrenal insufficiency and hypothyroidism. ***I have had numerous

people complain to me in private email that they were advised, in that

group, to keep increasing their HC and thyroid meds, and that they

ended up in a real mess because of it.***

I don't mean to focus on any individual case. I have been wanting to

give a general cautionary note for some time now. The more people

approach me in private email about this particular topic, the more I

want to give cautionary notes.

This is a cautionary note to people in general. It would be best to

have a doctor helping each individual with dosing any medication that

they need. We all know that those doctors are difficult to find, and

even the ones who are very helpful have limits. I have been following

Addison's support groups long enough to know that even people with

Addison's disease have a very difficult time finding doctors who will

give them adequate support.

The patient is ultimately responsible. We can give away control but

we can't give away responsibility.

To help people to understand how to use physiological HC and thyroid

medications I would refer people to 3 books (that are all linked to in

the links section) - " Safe Uses of Cortisol " by Jefferies, " From

Fatigued to Fantastic " by Teitelbaum, and " Amalgam Illness " by Cutler.

If anyone is aware of other books or papers that are helpful, please

let me know.

I also have several years experience taking HC and thyroid meds. I

encourage discussions of these topics in this group because the topic

is very important to many people who are chelating. I hope that

people understand that over the internet we cannot advise anyone what

doses to take, we can only give general suggestions and support and

encourage people to investigate as much as possible.

J

Some people don't absorb meds very

> well (me included, is my guess, judging from my poor mineral

> absorption), some metabolise them more quickly or a little

> differently. At the end of the day I had to do what worked for me,

> and the future will have to take care of itself for now.

>

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