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In a message dated 9/1/01 9:31:16 AM Pacific Daylight Time,

jhensel@... writes:

> the only problem with this site is I believe it is geared to the RNY patient

> so check and make sure before you purchase them.

>

>

it is...and all the programs include b12 which we dont need extra on...I

asked the guy why they dont design one also for the dS...but...well no one

wants to admit we're here I guess...LOL

~~* AJ *~~

Age 37 5'8''

Post op 7/24/01 Open BPD/DS

self pay - Dr Baltasar -Alcoy Spain

07/24/01 BMI 64 415.1

08/06/01 BMI 59 390.2 -24.9 lbs! -10.75 inches

08/16/01 BMI 58 387.0 -28.1 lbs! -11.25 inches

08/24/01 BMI 58 386.5 -28.6 lbs! -15.5 inches

08/30/01 BMI 58 378.3 -36.8 lbs! -21.25 inches

My personal website: www.WLS4AJ.homestead.com

Check out the Bellingham Support Group at WWW.WLSBellingham.homestead.com

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I

asked the guy why they dont design one also for the dS...but...well no one

wants to admit we're here I guess...LOL>>>

Figures! I guess that means I will have to look into making supplements

for us guys, eh?

Judie

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  • 4 years later...
Guest guest

,

Some of these have illegals. The cod liver oil seems to be okay... although

something (soy or??) may be causing him a problem, it does not appear to be

illegal.

However, the Digestzyme has bifidus (bifid bacterium longum), which is not legal

on SCD. There are legal enzymes listed on the website, www.pecanbread.com .

You can also always go to that website, click on " supplements " and check the

" illegal supplement additives " list against the label of any supplement bottle.

The Cal-Mag-Zinc has sorbitol and xanthan gum... both of which are illegal.

Patti

Supplements

Today my son has 26 days with SCD, he has been improving slowly. The

nutritionist recommended gives him these supplements: CAL-MAG ZINCO LIQUID

(NU-VISTA PROFESSIONAL FORMULAS) VITAMIN B-6 (NU-VISTA), DIGESTZYME

(TRANSFORMATION) AND ARCTIC COD LIVER OIL (NORDIC NATURALS).

I gave him 10ml on Sunday of the Cod liver, but I made a big mistake: I didn't

read the supplement facts before, and one hour (more or less) after he took the

cod liver oil doses he began to have his red chicks and his body temperature was

high, loose energy and has a seizure.

This supplement contain: vit A, D, E, omega-3s (DHA;EPA, other Omega-3s) oleic

Acid, orange oil. NO gluten, yeast, artificial colors or flavors. But It may

contain traces of milk and/or soy derivates.

Two years ago my son had severe reactions to soy, and I don't know if this

small dose was enough to cause this symptoms.

The Digestzyme (Transformation) contains: Amylase, protease, lipase,

cellulose, invertase, malt diastase, lactase, lactobacillus acidophilus and

bifid bacterium longum, other ingredients like vegetarian capsule (cellulose and

water). Antoinette mentioned that Elaine didn't like to use protease contained

in enzymes. One year ago when I tried to stop to give him the enzymes he had

strange symptoms like belly spastics movements without pain just the movements

each time he ate or drink every think. I'm not sure if the lack of enzymes had

caused this problem, but I try twice the same process and the consequences were

the same.

The Cal-Mag zinc liquid (nu-vista) contains: Vit. D-3 as cholecalciferol,

Calcium as tricalcium phosphate, calcium lactate 5H2O, citrate, gluconate,

Magnesium as magnesium hydroxide, magnesium carbonate, phosphorus as tricalcium

phosphate, zinc as zinc citrate and potassium as potassium citrate, chloride,

other ingredients are sornbitol, cerhylose (cellulose suspending agent), natural

vanilla, xanthum gum, methylparaben and propylparaben. Are those substances

legal?

---------------------------------

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Guest guest

,

We reacted to Nordics Natural cod liver oil, we have done much better using

Carlson's Cod liver oil, it has added lemon oil to it for flavor, is much less

rancid than Nordic Naturals, and has no illegals.

Summer

Summer's Family, SCD 08/04 http://health.groups.yahoo.com/group/openblooms/

---------------------------------

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Guest guest

the reaction to the cod liver oil may in fact have been a heightened

immune response from the vit a in the cod liver oil which would imply

viral issues and possibly a brain virus

i don't use cod liver oil cuase i suspect that its not possible to

fliter all the organic toxins out of cod liver oil, whereas straight

fish oil can be successfully filtered

the digestizyme is illegal with the bifidus in

a good range of enzymes are the www.houstonni.com pep, hn-zyme and no

fenol which elaine has approved

i would have more confidence in antionettes judgement on proteases if

she had been prepared to discuss what enzymes she had used and how

she had used them, but since she would not do this i do not have

confidence in her comments

enzymes are very brand dependent, theres the good, the bad and the

ugly and you can't tell what is what unless you try them

the zinc citrate is a yeast feeder in the cal mag liquid zinc is a

yeats feeder

i have written up on all this in

'minerals i take' and 'copper and zinc' in the index of

http://tinyurl.com/2csa3

but let me guess, the incompedent advice of the nutrtionalist is

preferred to doing any reading or thinking yourslef and rather than

thank me for the time i have taken to write this you will be offended.

that zinc has more illegals in than any other supplement i ahve seen

brain viruses are tricky and no way should any more vaccines be given

also read about skin vitamin d in the index

oh well time to see if my hated posts are being checked on moderation

again

*send*

>

> Today my son has 26 days with SCD, he has been improving

slowly. The nutritionist recommended gives him these supplements: CAL-

MAG ZINCO LIQUID (NU-VISTA PROFESSIONAL FORMULAS) VITAMIN B-6 (NU-

VISTA), DIGESTZYME (TRANSFORMATION) AND ARCTIC COD LIVER OIL (NORDIC

NATURALS).

> I gave him 10ml on Sunday of the Cod liver, but I made a big

mistake: I didn't read the supplement facts before, and one hour

(more or less) after he took the cod liver oil doses he began to have

his red chicks and his body temperature was high, loose energy and

has a seizure.

> This supplement contain: vit A, D, E, omega-3s (DHA;EPA, other

Omega-3s) oleic Acid, orange oil. NO gluten, yeast, artificial

colors or flavors. But It may contain traces of milk and/or soy

derivates.

> Two years ago my son had severe reactions to soy, and I don't

know if this small dose was enough to cause this symptoms.

> The Digestzyme (Transformation) contains: Amylase, protease,

lipase, cellulose, invertase, malt diastase, lactase, lactobacillus

acidophilus and bifid bacterium longum, other ingredients like

vegetarian capsule (cellulose and water). Antoinette mentioned that

Elaine didn't like to use protease contained in enzymes. One year ago

when I tried to stop to give him the enzymes he had strange symptoms

like belly spastics movements without pain just the movements each

time he ate or drink every think. I'm not sure if the lack of enzymes

had caused this problem, but I try twice the same process and the

consequences were the same.

> The Cal-Mag zinc liquid (nu-vista) contains: Vit. D-3 as

cholecalciferol, Calcium as tricalcium phosphate, calcium lactate

5H2O, citrate, gluconate, Magnesium as magnesium hydroxide, magnesium

carbonate, phosphorus as tricalcium phosphate, zinc as zinc citrate

and potassium as potassium citrate, chloride, other ingredients are

sornbitol, cerhylose (cellulose suspending agent), natural vanilla,

xanthum gum, methylparaben and propylparaben. Are those substances

legal?

>

>

>

> ---------------------------------

>

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Guest guest

Dear , When I bought supplements I take my printed legal and illegal list

with me. This became maddening, because we where not seeing the success Elaine

promised. So we had decided to keep it simple and do only what Elaine suggests

in her BTVC book, I highlighted it from cover to cover! I ended up returning

over $300.00 in supplements, enzymes and all sorts of crap that where keeping my

daughter and my self form ending the vicious cycle. Thanks to ingesting

illegals and doing things that Elaine feared would keep the vicious cycle going.

With MOSTLY SCD digestible foods, and FREEDA's crushed multi-vitamins, B12, and

a little Nordic Naturals or Carlson's Fish Oil, and tons of goat yogurt.....we

are seeing a miracle. I am glad that this simple is working for us. You may

want to try it too, it is all in the book. Even Elaine realized that most

doctors and dieticians do not understand how SCD works, and they always want to

suggests MORE. But in some cases more is not better, it keeps SCD from working

in toooooooooo many cases out there! This truly upset Elaine and should upset

us.

Please feel free to contact me off serve and I will discuss what happened to us

in more detail.

Hope this helps, Antoinette (celiac), KIki -2 (autistic, celiac, seizures (gone)

and deliriums (gone) SCD TM/by the BTVC book 2/06

Supplements

Today my son has 26 days with SCD, he has been improving slowly. The

nutritionist recommended gives him these supplements: CAL-MAG ZINCO LIQUID

(NU-VISTA PROFESSIONAL FORMULAS) VITAMIN B-6 (NU-VISTA), DIGESTZYME

(TRANSFORMATION) AND ARCTIC COD LIVER OIL (NORDIC NATURALS).

I gave him 10ml on Sunday of the Cod liver, but I made a big mistake: I

didn't read the supplement facts before, and one hour (more or less) after he

took the cod liver oil doses he began to have his red chicks and his body

temperature was high, loose energy and has a seizure.

This supplement contain: vit A, D, E, omega-3s (DHA;EPA, other Omega-3s)

oleic Acid, orange oil. NO gluten, yeast, artificial colors or flavors. But It

may contain traces of milk and/or soy derivates.

Two years ago my son had severe reactions to soy, and I don't know if this

small dose was enough to cause this symptoms.

The Digestzyme (Transformation) contains: Amylase, protease, lipase,

cellulose, invertase, malt diastase, lactase, lactobacillus acidophilus and

bifid bacterium longum, other ingredients like vegetarian capsule (cellulose and

water). Antoinette mentioned that Elaine didn't like to use protease contained

in enzymes. One year ago when I tried to stop to give him the enzymes he had

strange symptoms like belly spastics movements without pain just the movements

each time he ate or drink every think. I'm not sure if the lack of enzymes had

caused this problem, but I try twice the same process and the consequences were

the same.

The Cal-Mag zinc liquid (nu-vista) contains: Vit. D-3 as

cholecalciferol, Calcium as tricalcium phosphate, calcium lactate 5H2O, citrate,

gluconate, Magnesium as magnesium hydroxide, magnesium carbonate, phosphorus as

tricalcium phosphate, zinc as zinc citrate and potassium as potassium citrate,

chloride, other ingredients are sornbitol, cerhylose (cellulose suspending

agent), natural vanilla, xanthum gum, methylparaben and propylparaben. Are

those substances legal?

---------------------------------

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Guest guest

Andew said: i would have more confidence in antionettes judgement

on proteases if she had been prepared to discuss what enzymes she

had used and how she had used them, but since she would not do this

i do not have confidence in her comments....

Dear list mates, the reason to why we do not use protease is because

a dear and close freind to Elaine Gottschall (Lucy R. from Lucy's

Kitchen) told us that this was why our daughter and I where having

significant problems when we where using it. Burning, continued

diarrhea and celiac crises symptoms in the beginning of our journey

with SCD.

When we stopped the protease the problems vnaished. It did not

matter what kind of protease....all of it ELAINE DID NOT TURST, or

like the use of, when a person was known to have damaged

intestines...which could mean most of us on this serve. Elaine

didn't put this in her last edition, yet shared it with outhers

before she died.

I even talked to DEVIN HOUSTON himself (at Houston's enzymes). When

I shared the degree of intestinal damage that our daughter and I

had, he also suggested not using the protease! At the time he did

not know that our duaghter was autistic! He always suggests enzyems

to those who are autistic! I felt this a interesting contradiction.

Please note, that ELAINE felt that MOST AUTISTIC KIDS have DAMAGED

INTESTINES. Just because they are not DIAGNOSED does not mean THAT

THIS DAMAGE DOES NOT EXIST. These kids are truly suffering, just

like my duaghter was. Even Mimi our moderator, trusts that Lucy R.

is a true messanger of Elaine, and does not doubt the validity of

this message I now share with you. Please if you have any doubt go

check this out with Lucy or Mimi. I do not get thrills out of

misguiding people. I only share with this serve, what Elaine

thought works!

God Bless all, Antoinette (advanced celiac/IBS) and mother to Kiki-2

(celiac/colic/GERD/AUTISM) SCD 2/06

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Guest guest

I want to clarify this message.

I agree that Lucy is a very close friend of Elaine and can be trusted.

I agree that some children do not tolerate enzymes. However, other

children do well with them. The best way to get an answer for this

issue is to observe your child very closely.

Mimi

> Even Mimi our moderator, trusts that Lucy R.

> is a true messanger of Elaine, and does not doubt the validity of

> this message I now share with you. Please if you have any doubt go

> check this out with Lucy or Mimi. I do not get thrills out of

> misguiding people. I only share with this serve, what Elaine

> thought works!

>

> God Bless all, Antoinette (advanced celiac/IBS) and mother to Kiki-2

> (celiac/colic/GERD/AUTISM) SCD 2/06

>

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Guest guest

Cindy,

A basic multiple is fine to add.... I don't think there is a set " rule " about

when. You may want to wait until the first few weeks have passed, so you can

judge any reaction to a new vitamin formula. Calcium and magnesium are also

commonly supplemented for those kids who are beginning SCD without the legal

dairy.

Kirkman Labs has numerous supps that are SCD legal. Check out the list on

www.pecanbread.com under " Supplements " for a list of many Kirkman products, as

well as a list of what to look for on other product

ingredient labels. There is no way we could ever list every supplement out there

that is either legal or not... but this gives you a good starting point.

Hope that helps...

Patti

supplements

I have not started the diet yet, I am still reading, researching, and

taking notes. My question is, when do you start summplements and

which ones first? I understand that acidophulis is started around day

five, other than that, I am unsure what else to be giving to my son.

I used to give him a multi, but I recently learned it had corn in it.

Even if corn was legal, there is no way it is for my son.

Thanks for any responses

Cindy (Kasam 4 1/2 ASD)

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

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  • 2 years later...
Guest guest

I have been chelating for 10 months- 38 rounds. I have stayed at the

same dosing schedule throughout - 12.5 DMSA/ALA. I tried raising the

dosage a couple of times, but felt too uncomfortable. I also have taken

the same supplements along with HC & T3 without any changes. Lately, I

am constantly nauseous & feeling pretty ill especially after taking

supplements. I'm to the point of dread when it comes to ingesting my

supplements. Apparently it must be a gut problem which my probiotics &

enzymes aren't solving. I tested negative for gluten/lactose problems.

I haven't seemed to be bothered by sulphur foods in the past, although

I gave up coffee long ago because it seemed to cause nausea. Any ideas

as to why this is happening now?

thanks-

Joy

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Guest guest

Joy , I always link nausea with my liver, or blocked bile ducts.

Are you taking Milk Thistle or something else to support your liver ?

Taurine is good for better bile flow (also good for anxiety, feeling spacy

and for distress)

1-2 capsules with meals.

Just a last thought. I suggest when you want to up your doses, up DMSA first

and keep ALA still 12,5 mg. Until you find you have settled with your new

dose DMSA , then up your ALA. Could that work for you maybe.?

ALA chelates using your liver. Could you use only DMSA for a while for the

liver to " catch up " ?

Hope you find the reason for your nausea soon.

Kai

--------------------------------------------------

Sent: Friday, August 08, 2008 5:28 PM

To: <frequent-dose-chelation >

Subject: supplements

> I have been chelating for 10 months- 38 rounds. I have stayed at the

> same dosing schedule throughout - 12.5 DMSA/ALA. I tried raising the

> dosage a couple of times, but felt too uncomfortable. I also have taken

> the same supplements along with HC & T3 without any changes. Lately, I

> am constantly nauseous & feeling pretty ill especially after taking

> supplements. I'm to the point of dread when it comes to ingesting my

> supplements. Apparently it must be a gut problem which my probiotics &

> enzymes aren't solving. I tested negative for gluten/lactose problems.

> I haven't seemed to be bothered by sulphur foods in the past, although

> I gave up coffee long ago because it seemed to cause nausea. Any ideas

> as to why this is happening now?

> thanks-

> Joy

>

>

> ------------------------------------

>

>

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