Re: Don't really know how to start this........

[Guest guest]

Zena, Bless your heart. Many many warm hugs to you. Know that I am here if you need a shoulder or a prop. Love, hang on tight and fight. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." So I shall dive right in.I have cancer of the vulva.I've only known for a few weeks. I've seen my oncologist today and was hoping for some definite answers, but unfortunately because of all my other conditions it's taking longer for them to decide what my best treatment would be. Originally I thought I was looking at further surgery followed by radiotherapy, but they're thinking of chemo/radiotherapy to either reduce the size of the tumours or possibly to remove them altogether. However the chemotherapy may interract with my current meds.What has been a blow is that I have been suspended from the tx list. They wouldn't normally accept someone on the list for 6 years after cancer treatment, but this isn't written in stone. They may make exceptions, but they are rare.I should know more of what's happening a fortnight today.Whether I have developed this as a direct result of being immune suppressed or whether I would have developed it anyway is of course something that I'll never get an answer to.Love Ze xx

[Guest guest]

Zena

Certainly a horrendous bit of information to have to deal with. However,

I've seen your strength and we amaze even ourselves sometimes as we cope

with today's priority. I easily see you fighting this and enjoying life

and worrying about transplant later. My hopes are certainly with you.

The Princess Warrior continues, just has a different foe to fight first.

PF and transplant and all that just has to take its place in line. Take

care of yourself in every way you can. Hopefully the doctors can

recommend the best approach soon. In some ways as disconcerting as the

delay is, it is reassuring that they're giving adequate consideration to

all issues.

>

>

> So I shall dive right in.

>

> I have cancer of the vulva.

>

> I've only known for a few weeks. I've seen my oncologist today and

was

> hoping for some definite answers, but unfortunately because of all my

> other conditions it's taking longer for them to decide what my best

> treatment would be.

>

> Originally I thought I was looking at further surgery followed by

> radiotherapy, but they're thinking of chemo/radiotherapy to either

> reduce the size of the tumours or possibly to remove them altogether.

> However the chemotherapy may interract with my current meds.

>

> What has been a blow is that I have been suspended from the tx list.

> They wouldn't normally accept someone on the list for 6 years after

> cancer treatment, but this isn't written in stone. They may make

> exceptions, but they are rare.

>

> I should know more of what's happening a fortnight today.

>

> Whether I have developed this as a direct result of being immune

> suppressed or whether I would have developed it anyway is of course

> something that I'll never get an answer to.

>

> Love Ze xx

>

[Guest guest]

Zena, What profoundly sad news!

You are a very strong girl and no matter what is decided

you will beat this latest bump in the road.

I know that you wanted the TX but now,..one step at a time is the

way to go.

I'll have you in my thoughts.

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

bty12827590 wrote:

So I shall dive right

in.

I have cancer of the

vulva.

I've only known for a

few weeks. I've seen my oncologist today and was hoping for some

definite answers, but unfortunately because of all my other conditions

it's taking longer for them to decide what my best treatment would

be.

Originally I thought I

was looking at further surgery followed by radiotherapy, but they're

thinking of chemo/radiotherapy to either reduce the size of the tumours

or possibly to remove them altogether. However the chemotherapy may

interract with my current meds.

What has been a blow is

that I have been suspended from the tx list. They wouldn't normally

accept someone on the list for 6 years after cancer treatment, but this

isn't written in stone. They may make exceptions, but they are rare.

I should know more of

what's happening a fortnight today.

Whether I have

developed this as a direct result of being immune suppressed or whether

I would have developed it anyway is of course something that I'll never

get an answer to.

Love Ze xx

[Guest guest]

>

>

> >From: bty12827590 <zeasman (AT) btinternet (DOT) com>

> >Subject: Don't really know how to start this........

> >To: Breathe-Support@ yahoogroups. com

> >Date: Friday, September 11, 2009, 12:12 PM

> >

> >

> >>

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > >

> >So I shall dive right in.

> >I have cancer of the vulva.

> >I've only known for a few weeks. I've seen my oncologist today and was

hoping for some definite answers, but unfortunately because of all my other

conditions it's taking longer for them to decide what my best treatment would

be.

> >Originally I thought I was looking at further surgery followed by

radiotherapy, but they're thinking of chemo/radiotherapy to either reduce the

size of the tumours or possibly to remove them altogether. However the

chemotherapy may interract with my current meds.

> >What has been a blow is that I have been suspended from the tx list. They

wouldn't normally accept someone on the list for 6 years after cancer treatment,

but this isn't written in stone. They may make exceptions, but they are rare.

> >I should know more of what's happening a fortnight today.

> >Whether I have developed this as a direct result of being immune suppressed

or whether I would have developed it anyway is of course something that I'll

never get an answer to.

> >Love Ze xx

>