Len

[Guest guest]

Len:

I feel the same way. I have one horrible week followed by some great days

and great times. I am feeling well today and went to Venice Beach with my son

and his friend. We rented bicycles and rode the bike trail along the beach.

It was so beautiful. I can't believe I can still do things like this. The

weather was wonderful - in the 70s.

Where do you live?

Have you tried any probiotics for the constipation/diarrhea? If not, I

would recommend you try a good brand that has live beneficial bacteria. I

cannot

say for sure that they work but with everything our bodies are going through

I think we need them. I have a liquid type that I bought at Whole Foods

markets. It is the most expensive I have found but it supposedly contains

multi-strains of live bacteria. I am going downstairs now to find one.

Here's to more and more peachy days.

Hi Pat,

I've had great days and horrible days. I can't seem

to get the constipation/diarrhea thing straighted out

and yesterday was a real horrible day after a night of

diarrhea. Today was just peachy. I think if I just

quit eating I would be fine. Ha ha

I felt so good today I did a long fast walk that I

haven't been able to do in a long time.

Take care.

Len

--- brencolinmom@... wrote:

---------------------------------

Hi Len:

How are you doing? Hope you are feeling better.

Let us know.

In

[Guest guest]

Hi Len,

My husband had a similar condition to yours. He developed

his first lung met one year after his initial colon surgery.

Unfortunately we were told he was cured because he had 24 negative

lymph nodes.

We begged for follow up chemo and the Oncologist refused. Our first

big mistake was not following our gut feeling and get a second

opinion.

Do you actually know if you have mets or lung cancer? That is

really important in the way you receive treatment.

We found a young surgeon that was able to go into the lung with a

endoscope? and pull out one of the tiny nodules. It turned out to

truly be colon cancer of the lung.

opted to have a wedge of his lung removed to try to get rid

of the bigger nodule and maybe free him of his disease.

He was put on Xeloda and Avastin. One year later a scan showed

another nodule or maybe the same one removed with the wedge was

back. He also had a very tiny nodule in the other lung.

We decided this time to try something new. The surgeon that used

the endoscope was starting to do Radio Frequency Ablation to the

lungs. He had the RFA and that was a piece of cake except that the

equipment failed and he had to go back and have it done again. We

thought the procedure was a success but one year later the

same " tumor from hell " was back again.

We had a long talk with our new Oncologist and he suggested giving

SR a try. They were doing the procedure at Cancer Therapy and

Research where he is located.

The SR is a fairly easy procedure to go thru. had to go for

3 treatments in one week. Each actual treatment lasted about 15

minutes.

There was no side effect except for extreme fatigue. This lasted

for about 6 weeks. The procedure was a success.

Len, colon cancer in the lung is a much slower growing cancer than

true lung cancer. That is one thing in your favor.

I might be wrong but I think the tumor can not exceed 5cm for either

procedure. You might want to do some research on these two

options. I don't know if they are a option for you but it is worth

the try.

I lost my best friend () this last April, after a five year

fight. He developed DVT to the leg and multiple blood clots escaped

to his lungs. They put a filter in to catch them but they had his

blood soooo thined out that he hemoraged. He was supposed to come

home the next morning and was looking forward to taking a new

regimin of chemo.

I don't post a lot these days but am always here to help anyone that

may have a problem.

I still feel like this is all just a bad dream. I am getting better

and hope that after Christmas I can do volunteer work at our Cancer

center. I developed a special closness with our Oncologist and his

nurse and still talk with them. I will never give up trying to

learn all I can about colon cancer, mainly because my kids have a

80% chance of getting this disease.

My Son and I just had our colonoscopies two weeks ago. He was clean

but I did have a polyp that was removed and sent for biopsy.

If you need or have any question please do not hesitate to email me.

Joyce

>

> Hi Folks,

>

> I think I mentioned when I first came on that I have

> recurrent collon cancer with mets to the lungs. My

> liver is fine and so far the other organs seem fine.

> The nodules in my lung are too numerous to count but I

> don't remembe how big they were. I think the largest

> was 15 mm.

>

> My tumor in my pelvis is at the outside of the

> original resection. The left kidney is damaged by the

> tumor cutting off the flow down the urator but I have

> a stint in it now.

>

> I have not heard from anybody whose colon cancer has

> metastized to the lungs. The doctor wrote me off

> immediatly. I am takng chemo to make dying easier

> (dotor's words).

>

> Has anybody had this experience or anything like it,

> or heard of anyone who has.

>

> Thanks.

>

> Len McKinleyville,CA

>