Re: Pulmonary Rehab Eval

[Guest guest]

Dorothy,

Hi! I have been going to the pulmonary dept. at Emory. I have liked

the care that I received. I found out this week that the top two

doctors, who specialize in ILD, are leaving Emory. Dr. Roman is already

gone to Kentucky and Dr. is leaving in September. I have been

seeing Dr. and I truly adore him. My heart is broken. Both Dr.

Roman and Dr. , along with Tamra, Dr. 's wife, who is a nurse,

are going to start an ILD specialty in Louisville, KY, I think at the

University of Louisville or the University of Kentucky, not sure which

one.

Joe Lamenskie, who is on this board, saw a new doctor at the Emory

Clinic a week or two ago and I haven't heard his reaction.

There is a support group meeting on August 20th at the Emory Clinic on

the 5th floor of the A Bldg. from 11:00 am - 12:30 pm. I want to invite

you to come. Valet parking is available. I intend to attend this

meeting as I don't know what is going on with the ILD.

Hope this helps and I am glad that you have joined all of us!

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

> > > > > >>

> > > > > >> This morning I was evaluated for pulmonary rehab at the

Duke Center for Living-Fitness Center. I met with a respiratory

therapist who explained the program and then I had my 6 minute walk.

First time ever I did a 6 minute walk on an indoor track instead of a

treadmill. I started out at 6 liters and after two laps, the RT upped my

flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughly a

1/4 mile. My sats stayed in the low to mid 90's.

> > > > > >>

> > > > > >> Then I did an exercise tolerence test which seemed to be

very similar to a cardiac stress test but with the added attraction of

ABG's both before and after. The fun just never ends huh? LOL

> > > > > >> I passed everything with flying colors and the next round

of rehab that has spaces available starts 9/9/09.

> > > > > >> The program at Duke runs for 4 weeks, 5 days a week from

12:30 to 4:30. Intense...as a matter of fact it's actually called

" Intensive Pulmonary Rehabilita tion " . (The RT's at my old pulmonary

rehab program referred to Duke's as the 'boot camp of pulmonary rehab'.)

It involves walking, stationary bike, weight training, pool walking and

educational lectures. I am actually looking forward to it. I need a kick

start in the exercise dept. I expect it to be both tough and challenging

but nothing ventured, nothing gained right?

> > > > > >>

> > > > > >> We'll see...by the end they'll probably be mopping me up

with a dishtowel. lol

> > > > > >>

> > > > > >> Beth

> > > > > >> Moderator

> > > > > >> Fibrotic NSIP 06/06 Dermatomyositis 11/08

> > > > > >

> > > > > >Wow Beth that is some Pulminary Rehab. My Pulminary

Rehab is nothing like that. I go Tues. and Thur. for 2 hours, for 16

weeks. I see a Respritory Therapist for one hour, 15 min on NuStep and 7

min of hand bike, then 15 min on treadmill. Then I see the Physical

Therapist for one hour, 8 min. on total gym, then 3 min of stair steps,

then arm weights. That is all I do.

> > > > > >

> > > > > >Today I had my 6MW test. When I first got there I was told I

was having PFT's. I said no I was there for a 6MW, she said no I was

scheduled for PFT's. I said NO I was there for a 6MW. She finially

called the DR. and found out I was supposed to have a 6MW sombody had

made a mistake and scheduled me for PFT's. She finially did the 6MW. I

started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at 85,

then I dropped every min, at 6min I was at 76. It took 2 min for my sats

to come back up to 96. She said I definately qualify for o2.

> > > > > >This afternoon my o2 was delivered. I am on 2lpm with

exertion. They brought me 7 tanks that each last about 3-3 1/2 hours,

they are in a backpack but the are heavy. I can't imagine being gone for

8 hrs. with these. They told me later I could switch to something else.

I guess this will be a learning experience. I can see why some people

never go anywhere. Tomorrow I go to Pulminary Rehab, I will see how this

goes. More later.

> > > > > >

> > > > > >Jo Ann 53 MI UIP 9/07

> > > > > >>

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Jane,

Thanks so much for the info on Emory - when I was looking in 2005 I think these

doctors were just getting things going. I will be anxious to hear how things

progress and if you are happy with their replacements.

I have an appt. with Dr. Noble at Duke on Aug. 20. What timing, I would

certainly have come to the meeting, but hopefully there will be another one. So

glad to hear from you and that you are close by.

Dorothy - Fayetteville, GA

UIP-7/05

> > > > > > >>

> > > > > > >> This morning I was evaluated for pulmonary rehab at the

> Duke Center for Living-Fitness Center. I met with a respiratory

> therapist who explained the program and then I had my 6 minute walk.

> First time ever I did a 6 minute walk on an indoor track instead of a

> treadmill. I started out at 6 liters and after two laps, the RT upped my

> flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughly a

> 1/4 mile. My sats stayed in the low to mid 90's.

> > > > > > >>

> > > > > > >> Then I did an exercise tolerence test which seemed to be

> very similar to a cardiac stress test but with the added attraction of

> ABG's both before and after. The fun just never ends huh? LOL

> > > > > > >> I passed everything with flying colors and the next round

> of rehab that has spaces available starts 9/9/09.

> > > > > > >> The program at Duke runs for 4 weeks, 5 days a week from

> 12:30 to 4:30. Intense...as a matter of fact it's actually called

> " Intensive Pulmonary Rehabilita tion " . (The RT's at my old pulmonary

> rehab program referred to Duke's as the 'boot camp of pulmonary rehab'.)

> It involves walking, stationary bike, weight training, pool walking and

> educational lectures. I am actually looking forward to it. I need a kick

> start in the exercise dept. I expect it to be both tough and challenging

> but nothing ventured, nothing gained right?

> > > > > > >>

> > > > > > >> We'll see...by the end they'll probably be mopping me up

> with a dishtowel. lol

> > > > > > >>

> > > > > > >> Beth

> > > > > > >> Moderator

> > > > > > >> Fibrotic NSIP 06/06 Dermatomyositis 11/08

> > > > > > >

> > > > > > >Wow Beth that is some Pulminary Rehab. My Pulminary

> Rehab is nothing like that. I go Tues. and Thur. for 2 hours, for 16

> weeks. I see a Respritory Therapist for one hour, 15 min on NuStep and 7

> min of hand bike, then 15 min on treadmill. Then I see the Physical

> Therapist for one hour, 8 min. on total gym, then 3 min of stair steps,

> then arm weights. That is all I do.

> > > > > > >

> > > > > > >Today I had my 6MW test. When I first got there I was told I

> was having PFT's. I said no I was there for a 6MW, she said no I was

> scheduled for PFT's. I said NO I was there for a 6MW. She finially

> called the DR. and found out I was supposed to have a 6MW sombody had

> made a mistake and scheduled me for PFT's. She finially did the 6MW. I

> started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at 85,

> then I dropped every min, at 6min I was at 76. It took 2 min for my sats

> to come back up to 96. She said I definately qualify for o2.

> > > > > > >This afternoon my o2 was delivered. I am on 2lpm with

> exertion. They brought me 7 tanks that each last about 3-3 1/2 hours,

> they are in a backpack but the are heavy. I can't imagine being gone for

> 8 hrs. with these. They told me later I could switch to something else.

> I guess this will be a learning experience. I can see why some people

> never go anywhere. Tomorrow I go to Pulminary Rehab, I will see how this

> goes. More later.

> > > > > > >

> > > > > > >Jo Ann 53 MI UIP 9/07

> > > > > > >>

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