Re: Pulmonary rehab evaluation

[Guest guest]

Beth

Sounds great. Makes me think....July, August...unfit to get outdoors

here. Now, I'm wishing there was a program like Duke's....well, maybe

not quite as intensive. But it does sound nice and complete.

>

> This morning I was evaluated for pulmonary rehab at the Duke Center

for Living-Fitness Center. I met with a respiratory therapist who

explained the program and then I had my 6 minute walk. First time ever I

did a 6 minute walk on an indoor track instead of a treadmill. I started

out at 6 liters and after two laps, the RT upped my flow to 8 liters. I

walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats

stayed in the low to mid 90's.

>

> Then I did an exercise tolerence test which seemed to be very similar

to a cardiac stress test but with the added attraction of ABG's both

before and after. The fun just never ends huh? LOL

> I passed everything with flying colors and the next round of rehab

that has spaces available starts 9/9/09.

> The program at Duke runs for 4 weeks, 5 days a week from 12:30 to

4:30. Intense...as a matter of fact it's actually called " Intensive

Pulmonary Rehabilitation " . (The RT's at my old pulmonary rehab program

referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves

walking, stationary bike, weight training, pool walking and educational

lectures. I am actually looking forward to it. I need a kick start in

the exercise dept. I expect it to be both tough and challenging but

nothing ventured, nothing gained right?

>

> We'll see...by the end they'll probably be mopping me up with a

dishtowel. lol

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

[Guest guest]

MB, YEAH you go girl... Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. This morning I was evaluated for pulmonary rehab at the Duke Center for Living-Fitness Center. I met with a respiratory therapist who explained the program and then I had my 6 minute walk. First time ever I did a 6 minute walk on an indoor track instead of a treadmill. I started out at 6 liters and after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's. Then I did an exercise tolerence test which seemed to be very similar to a cardiac stress test but with the added attraction of ABG's both before and after. The fun just never ends huh? LOL I passed everything with flying colors and the next round of rehab that has spaces available starts 9/9/09. The program at Duke runs for 4 weeks, 5 days a week from 12:30 to 4:30. Intense...as a matter of fact it's actually called "Intensive Pulmonary Rehabilitation". (The RT's at my old pulmonary rehab program referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking, stationary bike, weight training, pool walking and educational lectures. I am actually looking forward to it. I need a kick start in the exercise dept. I expect it to be both tough and challenging but nothing ventured, nothing gained right? We'll see...by the end they'll probably be mopping me up with a dishtowel. lol BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

Bruce,

Believe me it's too hot even here to do anything in the way of exercise. My morning and evening strolls outside with the dog are plenty in the hottest months here. And we don't have anything like the heat that you have. My Mom lived in Fort Worth as a child and has vivid memories of the HEAT!

I chatted with the RT today about how widely the quality of pulmonary rehabs can vary across the country. In some places it seems like an afterthought tacked onto the cardiac rehab with no special accomodations for pulmonary patients. My guess would be the best programs are found in centers where lung transplants are done. Although you never know where you'll find a good one. Helen Hospital where I did my first program is excellent and they've been doing it for 17 years. Duke's had their pulmonary rehab program for 24 years I learned today.

There's also an excellent program at Watauga Medical Center up in Boone of all places. So you never know and it's always worth looking into!

How are you feeling these days? Coping with the heat?

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Monday, July 6, 2009 5:10:58 PMSubject: Re: Pulmonary rehab evaluation

BethSounds great. Makes me think....July, August...unfit to get outdoorshere. Now, I'm wishing there was a program like Duke's....well, maybenot quite as intensive. But it does sound nice and complete.>> This morning I was evaluated for pulmonary rehab at the Duke Centerfor Living-Fitness Center. I met with a respiratory therapist whoexplained the program and then I had my 6 minute walk. First time ever Idid a 6 minute walk on an indoor track instead of a treadmill. I startedout at 6 liters and after two laps, the RT upped my flow to 8 liters. Iwalked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My satsstayed in the low to mid 90's.>> Then I did an

exercise tolerence test which seemed to be very similarto a cardiac stress test but with the added attraction of ABG's bothbefore and after. The fun just never ends huh? LOL> I passed everything with flying colors and the next round of rehabthat has spaces available starts 9/9/09.> The program at Duke runs for 4 weeks, 5 days a week from 12:30 to4:30. Intense...as a matter of fact it's actually called "IntensivePulmonary Rehabilitation" . (The RT's at my old pulmonary rehab programreferred to Duke's as the 'boot camp of pulmonary rehab'.) It involveswalking, stationary bike, weight training, pool walking and educationallectures. I am actually looking forward to it. I need a kick start inthe exercise dept. I expect it to be both tough and challenging butnothing ventured, nothing gained right?>> We'll see...by the end they'll probably be mopping me up with adishtowel.

lol>> Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

[Guest guest]

Beth

I'm doing fine. My right heel hurts and thats kept me from exercising as

I need to, but I got out today and ran lots of errands. We just had a

cold front come through so the high today was only around 90 but back to

upper 90's tomorrow and over 100 the rest of the week.

It is interesting looking at the rehab centers. Even those with the

hospitals (non-transplant hospitals) are weak here. I looked at one

today out of curiosity and it makes it very clear its for COPD patients.

Now, wonder if they even have heard of PF. The times I went a couple of

years ago (went three times) were to a non-hospital facility and they

weren't bad. With my knowledge of the disease, most of the centers would

be fine, but it's frightening to think of someone new to the disease

being thrown into one that might fill them with misinformation.

> >

> > This morning I was evaluated for pulmonary rehab at the Duke Center

> for Living-Fitness Center. I met with a respiratory therapist who

> explained the program and then I had my 6 minute walk. First time ever

I

> did a 6 minute walk on an indoor track instead of a treadmill. I

started

> out at 6 liters and after two laps, the RT upped my flow to 8 liters.

I

> walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats

> stayed in the low to mid 90's.

> >

> > Then I did an exercise tolerence test which seemed to be very

similar

> to a cardiac stress test but with the added attraction of ABG's both

> before and after. The fun just never ends huh? LOL

> > I passed everything with flying colors and the next round of rehab

> that has spaces available starts 9/9/09.

> > The program at Duke runs for 4 weeks, 5 days a week from 12:30 to

> 4:30. Intense...as a matter of fact it's actually called " Intensive

> Pulmonary Rehabilitation " . (The RT's at my old pulmonary rehab

program

> referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves

> walking, stationary bike, weight training, pool walking and

educational

> lectures. I am actually looking forward to it. I need a kick start in

> the exercise dept. I expect it to be both tough and challenging but

> nothing ventured, nothing gained right?

> >

> > We'll see...by the end they'll probably be mopping me up with a

> dishtowel. lol

> >

> > Beth

> > Moderator

> > Fibrotic NSIP 06/06 Dermatomyositis 11/08

> >

>

[Guest guest]

Beth -

You are going to love it!! That is one of the things this disease stole from

me. I found out the hard way when I went to the pool and found I could not even

swim one lap, let alone get to the deep end to do my favorite exercise. I used

to be a deep water aerobics person and had been shunning exercise because I had

not been given guidelines on what I could and couldn not do and what the " new

yardstick " should be. When I went to National Jewish they gave me some exercise

goals and guidelines. I am looking forward to getting the land portion down and

hope to be back in the water by next year. I am so out of condition, though

they informed me I have a very strong heart. I suppose that is because I used

to have a personal trainer and was exercising 5-6 times a week before this

shortness of breath came on after my knee replacement. I am currently walking a

quarter mile at very slow pace (1.0) on 2 liters and keeping it around 94%. I

have a plan they drew up for me to increase my time by two minutes each week

until I get up to 45 minutes (a quarter mile is taking me 15 minutes right now

with the warm up and cool down). After I get to 45 minutes, I can start upping

the speed (back at 15 minutes). It is a long hard course, but I know I can do

it because I did before. I have the guidelines to get me there (my sat levels

and exercising with oxygen). They also taught me how to use my hand weights (2

and 5 pound). They told me I can do isometric exercises while sitting or riding

in the car. Walking in water can be good for you because you will have the

water to " catch " you and there are some good exercises you can do in the

shallows. At National Jewish they had a tank at the edge so I could do

everything I used to and still keep my oxygen up. I have to find a pool that

will let me bring in a tank. Some of the pools locally have " senior " hours that

I plan to take advantage of. They also have senior rates (1/3 what I used to

pay for an annual membership and less than $1.00 a day if you go 2 times a

week!!) I can not wait to be in better shape to start water work next year.

Good luck, Beth!!

Stefani

NSIP (cellular) 6/2009, Diabetes II 2/2006, Sleep Apnea 4/2009

>

> This morning I was evaluated for pulmonary rehab at the Duke Center

for Living-Fitness Center. I met with a respiratory therapist who explained the

program and then I had my 6 minute walk. First time ever I did a 6 minute walk

on an indoor track instead of a treadmill. I started out at 6 liters and

after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet

in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's.

>

> Then I did an exercise tolerence test which seemed to be very similar to a

cardiac stress test but with the added attraction of ABG's both before and

after. The fun just never ends huh? LOL

> I passed everything with flying colors and the next round of rehab that has

spaces available starts 9/9/09.

> The program at Duke runs for 4 weeks, 5 days a week from 12:30 to 4:30.

Intense...as a matter of fact it's actually called  " Intensive

Pulmonary Rehabilitation " . (The RT's at my old pulmonary rehab program referred

to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking,

stationary bike, weight training, pool walking and educational lectures. I am

actually looking forward to it. I need a kick start in the exercise dept. I

expect it to be both tough and challenging but nothing ventured, nothing gained

right?

>

> We'll see...by the end they'll probably be mopping me up with a dishtowel. lol

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

[Guest guest]

thanks Bruce

we have an indoor pool in this community

was wondering if i could hook up a longer to tube to my marathon for when i go in the pool

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Pulmonary rehab evaluationTo: Breathe-Support Date: Tuesday, July 7, 2009, 9:57 AM

PinkWhat they say may not always be true. Now for pulse or demand use Ithink longer lengths may be a problem. However, I just did a littleexperiment in my family room. I took a 25 foot tube and connected it tothe top port of my Helios Marathon (the one that puts out the oxygen). Iturned the Marathon on Continuous. I then used a liter miter. I gothigher readings at all levels than were shown on the dial. So at 2, 3 ,4 liters I not only got that level. I got more. I guess testing 50 feetis next. I do know some rehabs using pools do use Companion 1000's withlong tubing.Ok, Just tried 50 feet on the Marathon. I registered equal or more thanthe dial was set on every setting except 6. At 6lpm on the Marathon, myliter meter only registered a little over 5.5.Very interesting little experiment.> >> > This morning I was evaluated for pulmonary rehab at the Duke Centerfor Living-Fitness Center. I met with a respiratory therapist whoexplained the program and then I had my 6 minute walk. First time ever Idid a 6 minute walk on an indoor track instead of a treadmill. I startedout at 6 liters and after two laps, the RT upped my flow to 8 liters. Iwalked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My satsstayed in the low to mid 90's.> >> > Then I did an exercise tolerence test which seemed to be verysimilar to a cardiac stress test but with the added attraction of ABG'sboth before and after. The fun just never ends huh? LOL> > I passed everything with flying colors and the next round of rehabthat has spaces available starts

9/9/09.> > The program at Duke runs for 4 weeks, 5 days a week from 12:30 to4:30. Intense...as a matter of fact it's actually called "IntensivePulmonary Rehabilita tion". (The RT's at my old pulmonary rehab programreferred to Duke's as the 'boot camp of pulmonary rehab'.) It involveswalking, stationary bike, weight training, pool walking and educationallectures. I am actually looking forward to it. I need a kick start inthe exercise dept. I expect it to be both tough and challenging butnothing ventured, nothing gained right?> >> > We'll see...by the end they'll probably be mopping me up with adishtowel. lol> >> > Beth> > Moderator> > Fibrotic NSIP 06/06 Dermatomyositis 11/08>> Wow Beth that is some Pulminary Rehab. My Pulminary Rehab isnothing like that. I go Tues. and Thur. for 2 hours, for 16 weeks. I seea Respritory

Therapist for one hour, 15 min on NuStep and 7 min of handbike, then 15 min on treadmill. Then I see the Physical Therapist forone hour, 8 min. on total gym, then 3 min of stair steps, then armweights. That is all I do.>> Today I had my 6MW test. When I first got there I was told I washaving PFT's. I said no I was there for a 6MW, she said no I wasscheduled for PFT's. I said NO I was there for a 6MW. She finiallycalled the DR. and found out I was supposed to have a 6MW sombody hadmade a mistake and scheduled me for PFT's. She finially did the 6MW. Istarted out a 96 at rest. At 1min I dropped to 90, at 2 min I was at 85,then I dropped every min, at 6min I was at 76. It took 2 min for my satsto come back up to 96. She said I definately qualify for o2.> This afternoon my o2 was delivered. I am on 2lpm with exertion. Theybrought me 7 tanks that each last about 3-3 1/2 hours, they are in

abackpack but the are heavy. I can't imagine being gone for 8 hrs. withthese. They told me later I could switch to something else. I guess thiswill be a learning experience. I can see why some people never goanywhere. Tomorrow I go to Pulminary Rehab, I will see how this goes.More later.>> Jo Ann 53 MI UIP 9/07> >>

[Guest guest]

Dorothy

Emory University has a great program and we have several members who go

there. They are part of the IPF Centers of Excellence too. They do

communicate also and share protocols with Duke so seeing someone there

and taking up from where you are should not be a problem. Dr. is

the doctor I know most about there but others who actually go there will

pop in I'm sure.

> > > >>

> > > >> This morning I was evaluated for pulmonary rehab at the Duke

Center for Living-Fitness Center. I met with a respiratory therapist who

explained the program and then I had my 6 minute walk. First time ever I

did a 6 minute walk on an indoor track instead of a treadmill. I started

out at 6 liters and after two laps, the RT upped my flow to 8 liters. I

walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats

stayed in the low to mid 90's.

> > > >>

> > > >> Then I did an exercise tolerence test which seemed to be very

similar to a cardiac stress test but with the added attraction of ABG's

both before and after. The fun just never ends huh? LOL

> > > >> I passed everything with flying colors and the next round of

rehab that has spaces available starts 9/9/09.

> > > >> The program at Duke runs for 4 weeks, 5 days a week from 12:30

to 4:30. Intense...as a matter of fact it's actually called " Intensive

Pulmonary Rehabilita tion " . (The RT's at my old pulmonary rehab program

referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves

walking, stationary bike, weight training, pool walking and educational

lectures. I am actually looking forward to it. I need a kick start in

the exercise dept. I expect it to be both tough and challenging but

nothing ventured, nothing gained right?

> > > >>

> > > >> We'll see...by the end they'll probably be mopping me up with a

dishtowel. lol

> > > >>

> > > >> Beth

> > > >> Moderator

> > > >> Fibrotic NSIP 06/06 Dermatomyositis 11/08

> > > >

> > > >Wow Beth that is some Pulminary Rehab. My Pulminary Rehab is

nothing like that. I go Tues. and Thur. for 2 hours, for 16 weeks. I see

a Respritory Therapist for one hour, 15 min on NuStep and 7 min of hand

bike, then 15 min on treadmill. Then I see the Physical Therapist for

one hour, 8 min. on total gym, then 3 min of stair steps, then arm

weights. That is all I do.

> > > >

> > > >Today I had my 6MW test. When I first got there I was told I was

having PFT's. I said no I was there for a 6MW, she said no I was

scheduled for PFT's. I said NO I was there for a 6MW. She finially

called the DR. and found out I was supposed to have a 6MW sombody had

made a mistake and scheduled me for PFT's. She finially did the 6MW. I

started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at 85,

then I dropped every min, at 6min I was at 76. It took 2 min for my sats

to come back up to 96. She said I definately qualify for o2.

> > > >This afternoon my o2 was delivered. I am on 2lpm with exertion.

They brought me 7 tanks that each last about 3-3 1/2 hours, they are in

a backpack but the are heavy. I can't imagine being gone for 8 hrs. with

these. They told me later I could switch to something else. I guess this

will be a learning experience. I can see why some people never go

anywhere. Tomorrow I go to Pulminary Rehab, I will see how this goes.

More later.

> > > >

> > > >Jo Ann 53 MI UIP 9/07

> > > >>

> > > >

> > > >

> > >

> >

>

[Guest guest]

Joyce

I thought that was where you were headed and to me it appears possible

even though most would say its not. I would think worth a try. Now at

continuous flow you obviously will have limited capacity but for an hour

swim or so I'd think it would work. A concentrator might be easier but

might not. What flow would you need do you think? Answering your

question sure got me thinking about possibilities and I honestly didn't

know how it would work until I sat here and tried it.

> > >

> > > This morning I was evaluated for pulmonary rehab at the Duke

Center

> for Living-Fitness Center. I met with a respiratory therapist who

> explained the program and then I had my 6 minute walk. First time ever

I

> did a 6 minute walk on an indoor track instead of a treadmill. I

started

> out at 6 liters and after two laps, the RT upped my flow to 8 liters.

I

> walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats

> stayed in the low to mid 90's.

> > >

> > > Then I did an exercise tolerence test which seemed to be very

> similar to a cardiac stress test but with the added attraction of

ABG's

> both before and after. The fun just never ends huh? LOL

> > > I passed everything with flying colors and the next round of rehab

> that has spaces available starts 9/9/09.

> > > The program at Duke runs for 4 weeks, 5 days a week from 12:30 to

> 4:30. Intense...as a matter of fact it's actually called " Intensive

> Pulmonary Rehabilita tion " . (The RT's at my old pulmonary rehab

program

> referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves

> walking, stationary bike, weight training, pool walking and

educational

> lectures. I am actually looking forward to it. I need a kick start in

> the exercise dept. I expect it to be both tough and challenging but

> nothing ventured, nothing gained right?

> > >

> > > We'll see...by the end they'll probably be mopping me up with a

> dishtowel. lol

> > >

> > > Beth

> > > Moderator

> > > Fibrotic NSIP 06/06 Dermatomyositis 11/08

> >

> > Wow Beth that is some Pulminary Rehab. My Pulminary Rehab is

> nothing like that. I go Tues. and Thur. for 2 hours, for 16 weeks. I

see

> a Respritory Therapist for one hour, 15 min on NuStep and 7 min of

hand

> bike, then 15 min on treadmill. Then I see the Physical Therapist for

> one hour, 8 min. on total gym, then 3 min of stair steps, then arm

> weights. That is all I do.

> >

> > Today I had my 6MW test. When I first got there I was told I was

> having PFT's. I said no I was there for a 6MW, she said no I was

> scheduled for PFT's. I said NO I was there for a 6MW. She finially

> called the DR. and found out I was supposed to have a 6MW sombody had

> made a mistake and scheduled me for PFT's. She finially did the 6MW. I

> started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at

85,

> then I dropped every min, at 6min I was at 76. It took 2 min for my

sats

> to come back up to 96. She said I definately qualify for o2.

> > This afternoon my o2 was delivered. I am on 2lpm with exertion. They

> brought me 7 tanks that each last about 3-3 1/2 hours, they are in a

> backpack but the are heavy. I can't imagine being gone for 8 hrs. with

> these. They told me later I could switch to something else. I guess

this

> will be a learning experience. I can see why some people never go

> anywhere. Tomorrow I go to Pulminary Rehab, I will see how this goes.

> More later.

> >

> > Jo Ann 53 MI UIP 9/07

> > >

> >

>

[Guest guest]

Pink

To do what you're talking about you'd use a regular hose and cannula,

not the double that comes with the Marathon. You'd connect it to the top

barb, the one that oxygen comes out of. And, you'd use it on continuous.

> > > >

> > > > This morning I was evaluated for pulmonary rehab at the Duke

> Center

> > for Living-Fitness Center. I met with a respiratory therapist who

> > explained the program and then I had my 6 minute walk. First time

ever

> I

> > did a 6 minute walk on an indoor track instead of a treadmill. I

> started

> > out at 6 liters and after two laps, the RT upped my flow to 8

liters.

> I

> > walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My

sats

> > stayed in the low to mid 90's.

> > > >

> > > > Then I did an exercise tolerence test which seemed to be very

> > similar to a cardiac stress test but with the added attraction of

> ABG's

> > both before and after. The fun just never ends huh? LOL

> > > > I passed everything with flying colors and the next round of

rehab

> > that has spaces available starts 9/9/09.

> > > > The program at Duke runs for 4 weeks, 5 days a week from 12:30

to

> > 4:30. Intense...as a matter of fact it's actually called " Intensive

> > Pulmonary Rehabilita tion " . (The RT's at my old pulmonary rehab

> program

> > referred to Duke's as the 'boot camp of pulmonary rehab'.) It

involves

> > walking, stationary bike, weight training, pool walking and

> educational

> > lectures. I am actually looking forward to it. I need a kick start

in

> > the exercise dept. I expect it to be both tough and challenging but

> > nothing ventured, nothing gained right?

> > > >

> > > > We'll see...by the end they'll probably be mopping me up with a

> > dishtowel. lol

> > > >

> > > > Beth

> > > > Moderator

> > > > Fibrotic NSIP 06/06 Dermatomyositis 11/08

> > >

> > > Wow Beth that is some Pulminary Rehab. My Pulminary Rehab is

> > nothing like that. I go Tues. and Thur. for 2 hours, for 16 weeks. I

> see

> > a Respritory Therapist for one hour, 15 min on NuStep and 7 min of

> hand

> > bike, then 15 min on treadmill. Then I see the Physical Therapist

for

> > one hour, 8 min. on total gym, then 3 min of stair steps, then arm

> > weights. That is all I do.

> > >

> > > Today I had my 6MW test. When I first got there I was told I was

> > having PFT's. I said no I was there for a 6MW, she said no I was

> > scheduled for PFT's. I said NO I was there for a 6MW. She finially

> > called the DR. and found out I was supposed to have a 6MW sombody

had

> > made a mistake and scheduled me for PFT's. She finially did the 6MW.

I

> > started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at

> 85,

> > then I dropped every min, at 6min I was at 76. It took 2 min for my

> sats

> > to come back up to 96. She said I definately qualify for o2.

> > > This afternoon my o2 was delivered. I am on 2lpm with exertion.

They

> > brought me 7 tanks that each last about 3-3 1/2 hours, they are in a

> > backpack but the are heavy. I can't imagine being gone for 8 hrs.

with

> > these. They told me later I could switch to something else. I guess

> this

> > will be a learning experience. I can see why some people never go

> > anywhere. Tomorrow I go to Pulminary Rehab, I will see how this

goes.

> > More later.

> > >

> > > Jo Ann 53 MI UIP 9/07

> > > >

> > >

> >

>

[Guest guest]

Hi Beth,

Congratulations that your sats stayed up and allowed you to do so much. I'm

smiling I'm so happy for you. I know how it feels to exert and test the O2 and

see it right up there. I had to run on a treadmill at National Jewish back in

the fall of 2007 with an art line in my arm which they pulled samples out at

various intervals before and with O2 as the original Allergy/Immunology doctor

wanted to make sure the O2 saturation device really was correct when my sats

went to 82% while running on the treadmill. It isn't fun to have an art line

put in but there is a peace of mind that comes with knowing through another test

that the O2 really is what the little device says it is. Enjoy your body and

movement in your classes!

Peggy E.

>

> This morning I was evaluated for pulmonary rehab at the Duke Center

for Living-Fitness Center. I met with a respiratory therapist who explained the

program and then I had my 6 minute walk. First time ever I did a 6 minute walk

on an indoor track instead of a treadmill. I started out at 6 liters and

after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet

in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's.

>

> Then I did an exercise tolerence test which seemed to be very similar to a

cardiac stress test but with the added attraction of ABG's both before and

after. The fun just never ends huh? LOL

> I passed everything with flying colors and the next round of rehab that has

spaces available starts 9/9/09.

> The program at Duke runs for 4 weeks, 5 days a week from 12:30 to 4:30.

Intense...as a matter of fact it's actually called  " Intensive

Pulmonary Rehabilitation " . (The RT's at my old pulmonary rehab program referred

to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking,

stationary bike, weight training, pool walking and educational lectures. I am

actually looking forward to it. I need a kick start in the exercise dept. I

expect it to be both tough and challenging but nothing ventured, nothing gained

right?

>

> We'll see...by the end they'll probably be mopping me up with a dishtowel. lol

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

[Guest guest]

Hi Pink

When I go swimming, I use my POC with some extra tubing. I love it that I can go swimming.

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

P.S. My POC is an Evergo by Respironics> > >> > > This morning I was evaluated for pulmonary rehab at the Duke Center> for Living-Fitness Center. I met with a respiratory therapist who> explained the program and then I had my 6 minute walk. First time ever I> did a 6 minute walk on an indoor track instead of a treadmill. I started> out at 6 liters and after two laps, the RT upped my flow to 8 liters. I> walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats> stayed in the low to mid 90's.> > >> > > Then I did an exercise tolerence test which seemed to be very> similar to a cardiac stress test but with the added attraction of ABG's> both before and after. The fun just never ends huh? LOL> > > I passed everything with flying colors and the next round of rehab> that has spaces available starts 9/9/09.> > > The program at Duke runs for 4 weeks, 5 days a week from 12:30 to> 4:30. Intense...as a matter of fact it's actually called "Intensive> Pulmonary Rehabilita tion". (The RT's at my old pulmonary rehab program> referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves> walking, stationary bike, weight training, pool walking and educational> lectures. I am actually looking forward to it. I need a kick start in> the exercise dept. I expect it to be both tough and challenging but> nothing ventured, nothing gained right?> > >> > > We'll see...by the end they'll probably be mopping me up with a> dishtowel. lol> > >> > > Beth> > > Moderator> > > Fibrotic NSIP 06/06 Dermatomyositis 11/08> >> > Wow Beth that is some Pulminary Rehab. My Pulminary Rehab is> nothing like that. I go Tues. and Thur. for 2 hours, for 16 weeks. I see> a Respritory Therapist for one hour, 15 min on NuStep and 7 min of hand> bike, then 15 min on treadmill. Then I see the Physical Therapist for> one hour, 8 min. on total gym, then 3 min of stair steps, then arm> weights. That is all I do.> >> > Today I had my 6MW test. When I first got there I was told I was> having PFT's. I said no I was there for a 6MW, she said no I was> scheduled for PFT's. I said NO I was there for a 6MW. She finially> called the DR. and found out I was supposed to have a 6MW sombody had> made a mistake and scheduled me for PFT's. She finially did the 6MW. I> started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at 85,> then I dropped every min, at 6min I was at 76. It took 2 min for my sats> to come back up to 96. She said I definately qualify for o2.> > This afternoon my o2 was delivered. I am on 2lpm with exertion. They> brought me 7 tanks that each last about 3-3 1/2 hours, they are in a> backpack but the are heavy. I can't imagine being gone for 8 hrs. with> these. They told me later I could switch to something else. I guess this> will be a learning experience. I can see why some people never go> anywhere. Tomorrow I go to Pulminary Rehab, I will see how this goes.> More later.> >> > Jo Ann 53 MI UIP 9/07> > >> >>