Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 Hi Val, this post kinda got lost in the shuffle, and I just stumbled on it again. More below.-------Jackie In frequent-dose-chelation seashell_555 wrote: > -----------Yes, such a journey. I am going to do some more testing for thyroid and other hormones, so we'll see where that leads. Possibly thyroid support. Not sure if my problem is pituitary, or antibodies, or both or what. I'll keep you guys posted. But I am definitely at the point of needing something beyond adrenal support. Let's keep in touch on this. Thanks-------- --Jackie -------------Just an update, I did get my regular doctor to test for thyroid antibodies again, and also a few other pituitary hormones, to see if they are out of whack too, like my TSH which was almost 0. I don't have the results yet, but I'll keep you guys posted. He wouldn't test all of my hormones, so I'll do some other hormone testing with . The last time we did saliva testing, I still had low hormones, including testosterone, which we have never supplemented yet. So I have the feeling I may need to supplement alot of hormones to feel better.--------Jackie --------------- Jackie, I would definitely look into thyroid support. From all my reading (and I do alot!) thyroid support is essential to symptom relief. Tietelbaum goes so far as to say Fibro patients,if low in thyroid, will not recover without support. The big question is what kind? T3, Armour, 's syndrom?? Yet another labryinth to go through.. -----------I'll try to recap my doctor/thyroid journey briefly. First alt doc did complete thyroid panel and found the antibodies, but was a DC, so couldn't prescribe anything. Never told me I had Hashi's. Quit seeing her because she had bad ideas about chelation, and gave me ALA with my amalgams still in. Next alternative doc said I had Hashi's, and told me to try selenium first, to help with conversion of T4 to T3. Later he did let me try Armour thyroid, but he didn't understand the adrenal part and I was just learning about it, so I tried Armour with no adrenal support, and crashed harder than before. Expensive, arrogant, DAN doctor, who wouldn't discuss Cutler's protocol, and didn't understand adrenals and thyroid, so I nixxed him. Finally tried adrenal support (Isocort) on my own, and was thrilled! Felt much better until appendix ordeal. Finally went to see , and wouldn't you know it, but thyroid numbers were up at that time, which can happen with Hashi's, you fluctuate up and down. So we let it go at that time, because we had so many other things to address. Felt better after seeing her, because we addressed other low hormones and got on HC. Last fall I had my antibodies retested, and they were lower, below the reference range, so was optimistic that maybe thyroid was getting better on its own, or with just supplements. Then I had insurance problems first half of 2008, so didn't do any testing until now (and wanted labs back in Feb). So my current labs has got me back on the thyroid trail, and after I get all my labs back, wants to have a consult, and we'll make a game plan. She's a fan of 's, so I may give that a try. I have been on adrenal support for a long time, so it should be safe for me to do thyroid support now. But like you said, which one? I know has been pleased with 's, likes her SRT3 daily/continuous, and others like Armour. The theory of clearing out the RT3 with 's sounds interesting, so is probably worth trying. I'll let you know what I end up doing.----------Jackie On another note, have you ever been tested for mycoplasma, and all the other nasties out there? A friend of mine has gotten huge relief from antibiotic therapy. She feels like a new person with it and thinks she's been battling some underlying infection for years without knowing it. ---------No, I have not been tested for such things. I had mono as a teen, so have asked about the Epstein Barr virus, with different doctors, but haven't gotten anyone to test anything yet. I don't remember what each doctor told me, I think the testing is expensive, and I believe that is what told me, is that you can spend $$$$$$ testing for these things, when it is cheaper/easier just to do a viral protocol and do chelation. So I do believe that these other things go along with being toxic and they need to be addressed, but haven't been able to get a doctor to test for them. One doctor did test me for lyme, and it was negative. I'm also interested in the theory that these things can hide out with the heavy metals, and they get exposed as you chelate. I think alluded to this also. Because I think this happens with me. I do some chelation, and then I often get sick or feel like I'm fighting a virus or something. And I seem to tolerate and need *alot* of immune boosting stuff. So this may be another reason why chelation is slow for me and taking so long. I have alot to deal with, besides mercury. As far as antibiotics, I don't know. I have had mixed results, when given them for other things. I think sometimes I feel better after having them, so maybe they knock back these other nasties, but then I also had a horrible experience after having Levaquin, which honestly felt like a huge redistribution of mercury, and I really don't know if I have ever been the same since, 2 years ago. So after that, I'm a little leary of them, to say the least. I was more worried about a reaction to antibiotics than I was about having surgery last December. But it was fine. I just tell everyone, no Levaquin for me. So I definitely believe that many of us are dealing with other bugs, besides mercury, and probably because of it, but not sure if antibiotics or other anti-viral protocols are the way to go. If you can get some testing done that is covered by insurance, I'd say go for it.---------Jackie Quote Link to comment Share on other sites More sharing options...
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