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My other house is still on the market...18

months and counting!!!!!

I even looked into getting and burying a St ph's statue...and I'm

Jewish!!!

I'll try anything not to have two houses in the same town..

Talk about stressful!!!!!We only live 5 minutes from the old house!!!

We were fortunate to be able to handle both houses...the other one had

no mortgage

and we didn't need one for this none....but double taxes, utilities,

lawn care!!!!!

We had to move..I needed one floor living and Mike's knee surgery was

so much easier without

the steps!!!

Anyway...have a great week-end where ever you are, stay cool, and

relax!!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/P

And

“mild” PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Beth wrote:

Peggy,

I think you're thinking of Beverly Joy. She is the one who is

having difficulty getting her house sold.

Thanks anyway! :)

Beth

Moderator

Fibrotic

NSIP 06/06 Dermatomyositis 11/08

From:

Peggy Ellis <artquilterpeg (AT) yahoo (DOT) com>

To: Breathe-Support

Sent: Friday, June 12,

2009 4:31:29 PM

Subject: Re:

The importance of hope

Hi ,

I hope I can be one of those people you speak so highly of. There are

days when I think I won't be and will only be a whining pile of crap

and days when I envision myself with the highest of 'examples of how to

persevere' - I'll probably end up somewhere in the middle I imagine.

Let me know if you'd like some suggestions on the house sale thing.

Our realtor in Denver always said that 'even in slow markets or slow

times of years there are houses selling' so that was always my

inspiration. You just have to make yours more appealing than others

and what might be appealing to you may not be the most appealing to the

'maximum' number of people so sometimes 'less is more' when it comes to

selling the house.

I survived the tests - results next week and I'll post some info about

my experiences through that.

Enjoy the beautiful long days,

Peggy

From: Beth <mbmurtha (AT) yahoo (DOT) com>

Subject: The importance of hope

To: Breathe-Support@ yahoogroups. com

Date: Thursday, June 11, 2009, 6:16 AM

Peggy,

I so agree with what you wrote in this message about

hope. It is downright cruel to take someones hope away. We all need

reasons to get up in the morning and keep fighting. No one has the

right to take that away from anyone.

We had a member of this board who has since passed away.

Joyce Dalton fought long and fought hard to LIVE. She always said she

wasn't ready to die because, "I'm just so curious about what will

happen next". She was and still is my hero. She had pulmonary

fibrosis, pulmonary hypertension and multiple auto immune diseases and

yet she got up every single morning and fought the battle. She and her

husband traveled to one of our get togethers by car when she was on

oxygen at the rate of 8 liters continuously. She was one of the most

determined women I've ever had the privilege of knowing.

There are people like her on our board now who just keep

getting up every day and LIVING THEIR LIVES in spite of the crap that

keeps getting thrown at us. We draw strength from each other. I'm so

thankful for every person here.

Beth

Moderator

Fibrotic

NSIP 06/06 Dermatomyositis 11/08

From:

artquilterpeg <artquilterpeg@ yahoo.com>

To:

Breathe-Support@ yahoogroups. com

Sent:

Thursday, June 11, 2009 1:28:10 AM

Subject:

Re: introduction

Hi Beverly,

I don't think you'd like walking in the Bellevue Mall unless you like

expensive stores. It is pretty crowded with self absorbed people and

walking there would be tough for exercise. I know of another place that

is unique and fun and you can play chess for exercise. It has a huge

chess board where you move the pieces physically from one spot to

another (they are light weight). It's very diverse and has a great

reasonable priced food court - maybe we can go there once you get this

way.

I sold two homes in down markets. If you want to e-mail me at my e-mail

address I can send you my phone # and we can chat about my approach to

it. Both sold within 45 days and the price was good on both too.

Obviously you can't sell above market but there are things that help a

home show nicer than others in the same price range. I'd love to chat

about that next week if you want. I have nation wide long distance and

can call you or I can e-mail you my # and you can call me if you feel

more comfortable with that.

I think you should show your doctor that he is wrong. I don't know

where doctors get off telling people things like that. At any point you

could stabilize right? Maybe next week they'll come up with a cure. We

all need hope and to take someone's hope away is a crime if you ask me.

I think all human beings know when it is time and they are not willing

to fight any longer. For my Dad who died of emphysema (self induced

huge smoker - not me though) he was totally ready and had enough of it

by the end. He enjoyed the last days and still had everyone laughing

and lived to be 83 inspite of 40 years of smoking 4 packs a day.

E-mail me at artquilterpeg@

yahoo.com if you want to talk. I've thought about starting a

business to do this but will give you my secrets for free because I

want to help others who are helping me with their support.

Love,

Peggy Ellis (wife, mother, quilter, tennis player, amateur comedienne

and ILD 2007, 53 yo) I want to be defined by more than my disease and

age! :)

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> > > Hi Everyone. I was diagnosed with ILD a year ago but

basically thought the doctor was wrong so I stayed in denial until

recently. I might still be in denial on some level. I am seeing a great

pulmonologist at University of Washington in Seattle who is researching

GERD and ILD. I had a series of unusual events that occurred that led

him to think my ILD might be exacerbated by GERD or maybe caused? He

won't be specific. I get the impression that they don't really know if

GERD can cause ILD or not. So, this week I am undergoing a host of

tests for my lungs, heart and GERD. For the most part I am doing really

well and the only medication I am on is omraprazole for the GERD and my

hormone replacements. I am able to play tennis but if I run for a few

balls in a row my heart rate jumps up really high. It comes back down

again quickly so I have decided for now to only play with people who

have an understanding of how important it is for me to take my time

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tennis. I am suspecting that I should probably switch to another form

of exercise that is less 'fast start'. Every thing I read about this

disease is pretty depressing. I'd love to talk to someone else out

there who is doing well who and is stable. I wonder how long I can stay

stable and also if anyone has had any success getting their ILD

arrested in development by managing their GERD.

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