Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 Hi Joy, I'm sure a lot of people here can understand the difficulties of sorting out what is what, and trying to balance finances, and trying to decide what to spend money on. I've done about 70 rounds since Dec. 05. I chelated the kids too (NT). We definitely saw improvements, but it has been 3 steps forward and 2 back, and not always clear what was what. We have had to be careful where we spend our money too. After seeing some improvement the first year chelating, I went through some family turmoil which was quite stressful. Soon thereafter, my periods went haywire, I felt run down and fatigued. Ugh. Little by little, I was able to chip away at some problems. Tested thyroid. Went on a trial of Armour. Tested adrenals. Gave up gluten. Did a stool test. Needed a course of anti- fungals and lots of high quality probiotics. Lots of estrogen dominance symptoms. Didn't test due to $$. Took iodine, starting very low and building up, to increase progesterone. Trying to exercise and eat lots more veggies. I felt better, but I also felt something was not right, and sure enough out of the blue I had a nasty flare of arthritis. I'm now on a low dose pulsing protocol of Doxycycline. I swear, the last few years I've felt like a detective. Sometimes when I've felt stuck, I'll get out my copy of AI and thumb through it. Have I checked that? Have I looked into this? There are a lot of ideas for what you can do to feel better. I think you'll see many of the same themes on this board. Adrenals. Thyroid. Sex hormones. Gut health/infections/food intolerances. Diet. Those are good, basic places to check and recheck to see that you're on track. I'll add that looking into stealth infections was a big one for me. On A-M, many of those kids are on immune boosters, and/or antivirals. It wears a body down to fight off all those little buggers, not to mention how hard it is with metal toxicity. Hang in there. This is just my opinion, but I've never felt it has been as easy as " just chelating " . If after a year, you're not seeing noticable improvements, I'd say keep chelating and begin to look hard at what else you might be missing on your journey to wellness. Due to limited finances, we had to sort of chip away at it, but it felt good to have a plan in regards to what we were going to test next, what supplements to order, etc. Although testing isn't necessarily the be-all, end-all, sometimes it can take stress away by being able to see progress on a piece of paper. Oh look, that fungal infection is gone! Y'know? It can wear a person out to be constantly guessing. Again, JMO. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2008 Report Share Posted September 18, 2008 I was able to talk to Dr Teitelbaum personally > this week & ask his opinion. He believes that metal toxicity is only a > piece of the puzzle and wants me to go to a CFS/Fibro clinic for > further investigation. -----I've read his book " From Fatigued to Fantastic " and he has no mention of mercury that I could find. Very odd, I thought. He does have alot of valuable info but no mention of mercury is suspect. From what I've read and my own personal experience, hormone balancing is KEY to feeling better. I think the best money you could spend is on the Canary comprehensive hormone profile --$225 I believe. Also search the web for info on estrogen/progesterone balancing. If this is out of whack it can make you feel awful. Check the adrenals but don't assume you need HC like I did. I was releasing too much cortisol so I need to find ways to suppress that. Pregnenolone has been a wonder pill for me. Its a supplement you can buy for about $8 and it is helping me tremendously. Hormone balancing doesn't have to be so complex - just get the canary test and you'll have a pretty good idea what you'll need. Once you get the hormones supported/straightened out you will feel much better. Andy says as much in his book and experienced it firsthand. Don't give up - but don't accept poor health or that you cannot expect improvements in a year. Something's missing. Try hormone testing and also stealth infection/yeast testing. Good luck, Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 Thank you Val, & for your help & support. I so appreciate this community- don't know where I would be without it. I am on adrenal & thyroid support along with mega supplementation. The only piece that I haven't looked into is the infection part. I did try antibiotics in the past, but what I want to investigate now is the yeast/Candida part. Dr T kind of laughed when I mentioned it like " duh " I think because he downplays the metal toxicity part, I was doubting my focus. He did say that the only reason he would suspect it was if one was a dentist or dental assistant, which I happened to be. It sure doesn't negate the fact that if one has this highly toxic stuff in your mouth that you would be less exposed! Anyway, I will keep trudging on & will hopefully have a good report in the near future. Thanks again to all! Joy > > I have reached my year marker and am evaluating progress or lack > thereof. I realized in the beginning that I would be chelating for a > minimum of 2 years, but believed I would see some improvement after a > year on this protocol. I was able to talk to Dr Teitelbaum personally > this week & ask his opinion. He believes that metal toxicity is only a > piece of the puzzle and wants me to go to a CFS/Fibro clinic for > further investigation. I'm becoming more skeptical all the time with so > many claims that this or that will be the cure. I've been ill for 16+ > years and my hope for ever attaining health is diminishing rapidly. > Unfortunately like most of you, my resources are limited, so I can't > run off to Mayo Clinic (like outsiders are constantly suggesting). I > haven't gone into any details here, but how do I know if I'm on the > right track? Shouldn't I be seeing some progress at this point? > Joy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2008 Report Share Posted September 19, 2008 Joy why not post the treatments/support/diet you are on here for advice from others who know more IMO these drs even the good ones have their god complex and i think have been brainwashed by the ADA and the AMA on mercury..ie it cannot possibly be the problem...its like yea its a problem and not OK for dental assts and dentists who handle this stuff for a few minutes but its OK for it to be leaking 24-7 for 40+ years inches from our brain Their ignorance has no logical basis Personally and i am sure it is different with each of us, I think you have to get your mercury levels down before u do the antibiotics. IO have read taking abx whole being mercury toxic just creates a abd resiatnt bug species, as the mercury cretaes a teflon like shell around cell so abx do not get in or get in on a very limited dosage It would seem that if you are at this lower dosage (sorry i cannot remember how long u have been on); it must be one of your detox pathways not working (gut, adrenal.thyroid, liver/kidneys). I just know that it seems dmps works better for many people and i have seen Andy Cutler suggest it as the preferred chelator over dmsa and i think its the same with ... Also it really took me almost 8 months of chelation to be feeling a little better. I would say I am at 15-20% of my hopefully healthy normal self Keep the faith > > Thank you Val, & for your help & support. I so > appreciate this community- don't know where I would be without it. > I am on adrenal & thyroid support along with mega supplementation. > The only piece that I haven't looked into is the infection part. I > did try antibiotics in the past, but what I want to investigate > now is the yeast/Candida part. Dr T kind of laughed when I > mentioned it like " duh " I think because he downplays the metal > toxicity part, I was doubting my focus. He did say that the only > reason he would suspect it was if one was a dentist or dental > assistant, which I happened to be. It sure doesn't negate the fact > that if one has this highly toxic stuff in your mouth that you > would be less exposed! > Anyway, I will keep trudging on & will hopefully have a good report > in the near future. Thanks again to all! > > Joy Quote Link to comment Share on other sites More sharing options...
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