Re: Introduce Myself to Group

[Guest guest]

Ronnie .... welcome to our group. You are in the best place you can be as we fight our common disease. There are many here who have transplants and you will get responses from those who are helpful on transplant.

I'm too old and opt out for transplant anyway. Too many other health problems.

There are also MANY here from TX. I lived in Longview and I see you are close by in Shreveport.

I'm so sorry you must now give up your practice. There is a lot of yourself invested there.

I am a counselor and I remember closing the door for the last time as tho' it were last week.

There is always someone here to answer a question or give support.

How are your wife/daughters taking this news? How old are your girls?

Welcome....

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Introduce Myself to Group

Hello,I would like to introduce myself to the group. I am Ronnie Edmiston, 60 years old, married with two daughters. I am a dentist and next week will be my last to work due to progression of my disease. I have to look up the date of my diagnosis. We live in Shreveport, LA and just started evaluation in Dallas for lung transplant. I have been involved in study of new drug, Pirfenidone, and I got the placebo. The study has ended and I now take Pirfenidone daily. I am open to any questions or comments.Ronnie Edmiston

[Guest guest]

Ronnie,

Welcome to Breathe Support. While I'm sorry you had reason to look for a group like this, since you did I'm glad you found us. How long ago were you diagnosed? I'm sorry you have to stop working due to this. Have you noticed any difference now that you know you are taking the Pirfenidone?

Please keep us posted about the transplant evaluation. I hope all goes well and that this group can provide you with some of the support and friendship that we all need.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Saturday, July 18, 2009 11:39:16 AMSubject: Introduce Myself to Group

Hello,I would like to introduce myself to the group. I am Ronnie Edmiston, 60 years old, married with two daughters. I am a dentist and next week will be my last to work due to progression of my disease. I have to look up the date of my diagnosis. We live in Shreveport, LA and just started evaluation in Dallas for lung transplant. I have been involved in study of new drug, Pirfenidone, and I got the placebo. The study has ended and I now take Pirfenidone daily. I am open to any questions or comments.Ronnie Edmiston

[Guest guest]

Hi Ronnie, Welcome to our Air Family. You will understand the full meaning of that before long. This is the best support groupanywhere.. I Know you must be very upset to have to quit working. There are so many of us here that have been in that scary place.What is your Diagnosis ? We are going to have a group get together in Chattanooga Tn. the 30 th of Oct. It is just the best to meet and get to know all the members that can make it. We have had 3 other meetings and trust me I would travel where ever to spend time with this group. Bruce lives outside Dallas and he is coming so maybe you can. I am 66. I was Dx in 2004 with IPF and have done well until these past few months. I have had a really big slow down but am still a happycamper. Life is good, God is Good. Take Care of you and ask any thing you want someone here will answer. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Hello,I would like to introduce myself to the group. I am Ronnie Edmiston, 60 years old, married with two daughters. I am a dentist and next week will be my last to work due to progression of my disease. I have to look up the date of my diagnosis. We live in Shreveport, LA and just started evaluation in Dallas for lung transplant. I have been involved in study of new drug, Pirfenidone, and I got the placebo. The study has ended and I now take Pirfenidone daily. I am open to any questions or comments.Ronnie Edmiston

[Guest guest]

Ronnie, Welcome to the "air Family'.

We've got quite a group here. All ages, all over the world,

differing types of PF, different treatments.

We all share this disease in one of its 200+ forms and that bonds us

instantly...we get it!! No explanations needed.

I also had to retire from teaching due to this miserable disease.

However, I keep very active with my pottery and my2 beautiful little

grand daughters.

I've posted pictures of my girls and my sculpture in the albums here.

We've just celebrated 44 years of

marriage! Mike likes to joke..."the best 22 years of his life!"

Anyway...welcome again...we're always here to help and share.

Hope your week-end is great.

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Ronnie Edmiston wrote:

Hello,

I would like to introduce myself to the group. I am Ronnie Edmiston,

60 years old, married with two daughters. I am a dentist and next week

will be my last to work due to progression of my disease. I have to

look up the date of my diagnosis. We live in Shreveport, LA and just

started evaluation in Dallas for lung transplant. I have been involved

in study of new drug, Pirfenidone, and I got the placebo. The study

has ended and I now take Pirfenidone daily. I am open to any questions

or comments.

Ronnie Edmiston