Re: need direction- after doc appt

[Guest guest]

Hi Joy,

Many of us are in the same boat -- expecting progress and now

questioning the basic diagnosis when progress doesn't come according

to our schedule.

It's right and prudent to question, of course, because it would be

unfortunate -- the understatement of the day -- to bark up the wrong

tree for 3-4 years only to find out something else was going on.

That said, if you're like me and and many others who have spent

countless years feeling ill, not knowing why, visiting 25+ doctors (I

think and I are about tied at this point), and trying countless

treatments to no effect, it's only natural to think that " this "

(mercury toxicity) is just another one of those possible diagnoses and

treatment paths that will just fall by the wayside, another dead end.

I sure hope for myself and many of us that it isn't.

But at this point, since I have seen so many doctors, explored so many

tests/diagnoses, and tried so many therapies, the fact that it takes

many months or even several years to fully detox and heal (instead of

a quick turnaround by simply popping some kind of new pill or

supplement) makes it actually MORE believable to me that something so

insidious, so deeply buried under the surface like heavy metal

toxicity, really is at the root of my mysterious health decline.

The other thing keeping me going is my hair test results. I almost

didn't have this test run earlier this year, since I was so convinced

already that mercury toxicity was my problem. But this group

convinced me to run it, and sure enough, it showed significant

deranged mineral transport. After six months of chelation, I ran the

test again, and it still shows significant DMT. No wonder I still

feel like crap (and then some, though stopping DMPS a few days ago has

settled things down a bit).

I believe you said that you were hesitant to have a hair test run,

because you think it would be meaningless since you've been

supplementing so much. I don't think that's true. Yes, supplementing

can make a hair test look better than it really would be otherwise,

but I think in many cases it will still show DMT. For my first hair

test, I had been doing some supplementation, and it showed severely

DMT. I was doing a ton of Cutler-based supplementation before my

second test, which also showed DMT.

I suggest having the hair test done. All considering, it's a fairly

inexpensive way to get a potentially very useful data point. And it

sounds like you need some more data since you're trying to decide what

direction to head.

Of course, no test is perfect, and even a hair test that does not show

DMT does not rule out mercury toxicity. In fact, I just learned on

this forum that the hair test only reflects " body mercury " , as opposed

to brain/organ mercury. So a " negative hair test " may just mean that

the only mercury left is very deeply stored, which may be the case for

you since your exposure was so long ago.

Darren

chelation , " joyhealth08 " wrote:

>

> I had a 2-hr visit with my ND yesterday & am now feeling more lost

> than ever. Basically none of my existing treatments are working so

> she thinks I should quit chelation & thyroid support (at least to see

> how I react) In scanning AI again, I was reading about " old exposure " -

> pg 64. I don't know if this presents different problems than someone

> with amalagam illness, but I was a dental assistant many years ago so

> maybe my disease is unrelated or different somehow and maybe I should

> be looking elsewhere for other treatment options? If no real progress

> is made with chelation is it possible that mercury isn't my problem?

> I initially had the challenge test & had primarily a severe brain

> reaction (crying, suicidal, tremendous head pressure)

>

> It would take a book to write about my 16+ years of illness and all

> that I have tried, but the frustrating part is that I really haven't

> found any relief to date. Further testing would not be informative

> because of the volume of supplements I am already on. My adrenal test

> was conclusive, although everything I'm doing (HC, ACE, rest etc) is

> not effective. I have very hypothyroid symptoms yet Armour & ST3 has

> not helped so I'm wondering if it is primarily the adrenals instead

> of thyroid? If so, what more can I do? I can detail everything I'm on

> or have tried if need be - I do read the posts & try many things.

>

> I understand the individuality of our illnesses and know that this

> group is on the chelation path to wellness so there may be biases in

> that direction. I was so sure that this was finally " it " in the

> beginning, but now have some doubt for myself. Opinions as to whether

> I should just hang in there just because of the possibility or accept

> poor health as my path in life?

>

> Joy

>

>

>

> >

> > I have reached my year marker and am evaluating progress or lack

> > thereof. I realized in the beginning that I would be chelating for

> a

> > minimum of 2 years, but believed I would see some improvement after

> a

> > year on this protocol. I was able to talk to Dr Teitelbaum

> personally

> > this week & ask his opinion. He believes that metal toxicity is

> only a

> > piece of the puzzle and wants me to go to a CFS/Fibro clinic for

> > further investigation. I'm becoming more skeptical all the time

> with so

> > many claims that this or that will be the cure. I've been ill for

> 16+

> > years and my hope for ever attaining health is diminishing rapidly.

> > Unfortunately like most of you, my resources are limited, so I

> can't

> > run off to Mayo Clinic (like outsiders are constantly suggesting).

> I

> > haven't gone into any details here, but how do I know if I'm on the

> > right track? Shouldn't I be seeing some progress at this point?

> > Joy

> >

>