Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 In a message dated 15/10/01 14:35:27 GMT Daylight Time, nct-coffee writes: << you tell everyone what's wrong with you and explain that it's not infectious (it's genetic). But at its height, last time, I had people shooing their children away from me, taking wide detours round me, and even, at the supermarket, had people " ewwww " ing >> Huge sympathies - my DS1 suffers from psoriasis in various forms and we have had to endure reactions like this, too. When he was 7-ish it was particularly bad, with his scalp and feet the worst affected although I had to wrap his whole body in tar bandages and cling-film every night. His feet would be bleeding so badly by lunchtime that he couldn't walk and you could literally lift his hairline away from his scalp because it was one big scab. His saving grace was when his father (DH1) was made redundant and was able to afford the time and money to take him to the Dead Sea for treatment there. Quite honestly has never looked back although he does have flare-ups now and again (and I have been warned that with his GCSEs this summer he may well have a massive flare-up) and still suffers from psoriac arthritis (sp?) in his toes... means he needs to pop an anti-inflamitory before he plays rugby Does bathing in dead sea salt help the itching? says it does but depends on the water temp being just right. ann SAHM to (15/1/86), Kirsty (5/6//87) and Ben (11/7/98) DS3 due March 2002. Editor Cambridge newsletter Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Ann wrote: > Huge sympathies - my DS1 suffers from psoriasis in various forms and we have > had to endure reactions like this, too. <snip> (and I have been warned that with his GCSEs this summer he may well > have a massive flare-up) <snip> My friend with Psoriasis that suffers with it on her nipples also had it when she did her GCSE's (actually that is when it first started) then again after the birth of each of her children. So she thinks it is stress related. Trisha SAHM to 3 boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Salt bathing does help with the itching, provided there aren't too many open sores at the time DH talked about sending me to the Dead Sea last time, as it was pretty bloody, but we really couldn't afford it. TBH now I've had the diagnosis confirmed, and have a referral to the derm. under way I'm not so bothered: there are worse things! And it's early days yet, so may not affect much more than it's already on (where it's still nice and faint!) I get arthritis in my big toes and one little finger - painful stuff, but I'm putting off the treatments until I think I really need the big guns. There are some really good drugs now, and if your DS1 feels a need for support and information, the National Psoriasis Foundation (http://www.npf.com, I think) - an American group needless to say - is brilliant!! And take heart: it's not necessarily the case that stress causes flare-ups - it does for some, but not for others! The only thing that makes mine go completely is pregnancy!! Vicki >Does bathing in dead sea salt help the itching? says it does but >depends on the water temp being just right. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 15, 2001 Report Share Posted October 15, 2001 Oh bad luck Vicki - I do hope it doesn't get any worse and does get better... Just a thought, have just noticed DS's ezcema has returned in little patches and I was rather hoping he'd grown out of it having been pretty clear all summer - I'm really really wondering whether central heating has made the ezcema reerupt. Could there be any correlation with the psoriasis? Or does it not have much to do with dryness? <<<hugs>>> Caro Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 I don't know - Joshi's eczema does seem to get worse with the central heating. TBH, though, I slather so much axle grease over myself on a permanent basis, I don't think my skin knows much about the seasons ) Vicki I'm really really wondering whether central >heating has made the ezcema reerupt. Could there be any correlation >with the psoriasis? Or does it not have much to do with dryness? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 > I'm really really wondering whether central > >heating has made the ezcema reerupt. Could there be any correlation > >with the psoriasis? Or does it not have much to do with dryness? >>>>>>>>>>> Is it the heating or the fact that the air is not getting to the relevant parts of the body? My elbows always play up in winter but I am not sure if that is because I have long sleeves on or because of the heating. I am sure that the sunshine helps. Trisha SAHM to 3 boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 I think it is a bit of both. Fran has very bad eczema on elbows - inside and out across her shoulders and tops of ears - her legs have cleared up. It is getting much better but flares when her immune system is under attack or if she is stressed and tired. It is worse in winter so she wears short sleeved shirts at school and a skirt - not a dress and sits away from windows and radiators. She has stopped her homeopathic treatment and we seem to be managing it ok. Her dirty protest had helped it so she only baths and washes her hair once a week. Caroline Jersey > > > I'm really really wondering whether central > > >heating has made the ezcema reerupt. Could there be any > correlation > > >with the psoriasis? Or does it not have much to do with dryness? > >>>>>>>>>>> > > > Is it the heating or the fact that the air is not getting to the > relevant parts of the body? > Trisha > SAHM to 3 boys Germain Jersey British Channel Islands 49º11'30 " N 02º06'12 " W WGS84 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2001 Report Share Posted October 16, 2001 Trisha you could test this by putting four or five t-shirts on at a time to keep warm ... but with arms exposed ? and report back! Caro ;-)) - > My elbows always play up in winter but I am not sure if that is > because I have long sleeves on or because of the heating. I am sure > that the sunshine helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Caro wrote: > Trisha you could test this by putting four or five t-shirts on at a > time to keep warm ... but with arms exposed ? and report back! > Caro > ;-)) >>>>>>>>>>>>>>> How do I say this Caroline - in one word - NO! my arms are always freezing in winter and I would not be seen dead with no sleeves or socks! At the moment I do have a t-shirt on (and I would not go outside liek this I need my fleece on as well) but it is lovely and sunny today (and the heating is on) but I still have my socks on and a pair of sheepskin slippers! and anyway the 10lbs I have put on are really showing and I need thin clothes not layers! Trisha SAHM to 3 boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2001 Report Share Posted October 17, 2001 Anyway, everybody's psoriasis is different - mine is better in humid sunshine than dry sunshine, and even exposed to the air in this weather will likely continue to deteriorate because it's so dry. Other people do better in dry than humid I've been involved in a research group at one of the local hospitals, where the dermatology team are doing lots of psoriasis research - I keep hoping to get a drug trial, but so far no luck But psoriasis is a bizarre condition because it can't be replicated on animals - even primates don't get it - so the only way to study it is on humans. So far this year, I've given 5 skin biopsies to a study looking at the cell differences between psoriatic and normal skin. Side discovery of this is that psoriasis won't grow on a deep wound which has actually damaged nerves below the skin, but it does (in me) grow on spots/scratches/grazes. So, if you're going to cut me, make it serious please I've also been injected with stress hormones to see if that makes me worse (it didn't make my skin worse, but made living with me difficult, apparently!) And answered several questionnaires about how it affects the daily quality of my life (hardly at all except insofar as it strongly influences what I wear - few short sleeves and no mini skirts). The human genome project has, apparently, come up with 8 genes which produce psoriasis in different combinations. And there's a vaccination under development in Oz which will need testers over here shortly, which is supposed to be brilliant (which is why I keep letting them have my skin!!) Vicki > > My elbows always play up in winter but I am not sure if that is > > because I have long sleeves on or because of the heating. I am sure > > that the sunshine helps. Quote Link to comment Share on other sites More sharing options...
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