Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 Oh , that's shocking. BIG HUGS. Make sure you rest as much as you should, but if it won't stress you too much you could try drafting your official complaint letter while DH is still looking after the boys and the house... Perhaps your and Beverly's DHs could form a gynae ops husband support group? (I know, feeble humour) Anneliese and Toddler Tim > ________________________________________________________________________ > > Message: 4 > Date: Sun, 21 Oct 2001 23:22:04 +0100 > > Subject: bad week ( long therapeutic moan) > > On Wednesday I went into the local hospital (first mistake - noone in > their right minds voluntarily goes there) for an elective daycase > laparotomy (ie general anaesthetic, in for 4 hours, out by 5pm with a > gassy tum and a stitch). first thing I knew was coming round in recovery > 30 mins after I should have been back home to be told, oh there's been a > big problem, we had to cut you open and you have to stay in, and the > theatre sister walked off. 11/2 hours later ( which I spent in a semi > drugged state wondering if I had cancer - I had a precancerous teratoma > removed 15 years ago) the registrar wondered up from theatre to tell me > that she had managed to shove a large metal implement through my uterine > wall and cause a rupture, that I was stitched up in layers, and have a > large caesarean type wound. So I spent a few days languishing in the > hospital from h*** with 4 little boys at home, one of whom breastfeeds > all night so daddy was having a rough time ( he's been a star btw - the > daddy that is) having told the boys I would be back by teatime the same > night. I now can't drive ( so that's all our half term trips up the > river), can't lift (eg Phil into high chair, hay for horses), can't swim > (risk of infection) for what seems like weeks, am very sore hobbling > about like I'm 90+ and VERY grumpy and hacked off. And I have 2 > birthdays this week and am missing 6 replies to the 8 year old's party > as wasn't around at school at the end of the week to chase replies - > ggrr. > Curran > Mum to 4 lovely boys. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2001 Report Share Posted October 22, 2001 > Perhaps your and Beverly's DHs could form a gynae ops husband support group? ) > >can't swim > > (risk of infection) for what seems like weeks, > > Mum to 4 lovely boys. you have all my heartfelt sympathy - how absolutely awful for you. The only tip I can give is to be careful with yourself, take care, do not over do it and above all DO NOT LIFT. I know how you feel and how low you must be. Things will soon be better - and then you gave them hell. Beverly PS Any other help/assistance/guidance I might be able to give do not hesitate to contact me off-list Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2002 Report Share Posted January 26, 2002 --- Ted Staniec wrote: > WEll, I upped my pred another 5 mg today, now up to > 40 & 40. Went up to 35 & 35 last Sat because of the > eyelid & throat swelling. My left ear turned warm, > red & sore yesterday, the left eye is bothering me > (hope it's not iritis again) & the right ear is > sore. The tip of my nose is also sore. My throat > was swollen again this morning. My feet and ankles > are also swollen. They haven't been this bad since > I had toxemia when I was pregnant 22 years ago. > Doesn't matter if I put them up, they're even > swollen in the morning. I hate to play with the > meds but I don't know what else to do. I go to the > rheumy on Monday & hopefully will start the Imuran. > > > This is getting old real fast. I have spent the > week crying because I am so depressed. Have been > referred to a neurologist about the dizzy spells & > falling since my PCP says the RP sometimes attacks > the brain. I had an echocardiogram in July which > was fineI & an MRI of the brain per the > ophthalmologist which showed some ischemic changes > caused by my high blood pressure so that has been > ruled out for the dizzy spells. I have only felt > well for about 3 weeks in October & November. > Resting doesn't seem to help. I have been so good > about that since it helped in October. > > I don't know what to do. I am so frustrated & no > one can help because they don't know that much about > the RP. I don't know what I did to deserve this. > > I know it seems like all I do is complain when I go > on the board, but I just need someone to talk to > that understands. I'm not handling this very well. > I don't lilke being sick. Has anyone else been sick > for so long with this. I've been on 60 of pred > since Thanksgiving, went to 70 last week & am now at > 80. > > Thanks for your shoulders, > > Susiecue > Oh, Susie, I feel so bad for you, vent all you like. We understand as we have been there. When I got like that my rheumy put me on an antidepressant, which I have to admit, helps me a lot. (I am still taking it!) Try and believe things will improve, although I know that is awfully hard to do when you feel so grim. Try not to think long term, take one day at a time, try and concentrate on little things like take a five minute walk if you can, even if you don't feel like it. This makes me feel morally better - you know, I have done something positive! Pray if you feel so inclined, that helps. Listen to music that you like, I find this sort of thing helps me. And remember that we are praying for you too. Feel better, love Liz __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2002 Report Share Posted January 26, 2002 In a message dated 1/26/02 6:55:23 PM Pacific Standard Time, mmjw3@... writes: << Hang in there, keep posting, the good and the bad, and know that it matters. and Susiecue, Yes you should both keep posting, good and bad... It is never thought of as complaining here. That is why we are all here for each other. We do feel so helpless when we can't just make one another feel better. You two are going through a really rough time right now and I hate to see it. Just know that we need to hear from you as much as you need us. All of us at some time were where you are now. It is a miserable place to be. I remember being so depressed that I wouldn't even want to get out of bed. Didn't want another dr appt because it would be useless. Then when I saw a dr I'd make a fool of myself and boo hoo through the whole visit. We must keep trying and NEVER give up hope. Things do change. Glenda is right, the pred really messes up the emotions. I am trying to come down off of it now and boy it is really doing emotional things. Thought it was just the change, til I really thought about it. LOL Keep posting, posting, posting. Let it all out and then go to the shower and have a good long cry. You will feel much better. AND remember you have about 400 shoulders to cry or lean on here. Remember we all love ya bunches and it's too late now.........You ARE part of the family and we won't let you go. hugs Quote Link to comment Share on other sites More sharing options...
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