Guest guest Posted October 24, 2001 Report Share Posted October 24, 2001 I know this reply is a bit late but thought I would say hi. Are there any NCT groups in Pock? I have three older brothers by the way and loved it as the only girl and the youngest. I think I will stick with one though!! > > Had Zack (8lb 6oz) on 9th September. > > > I'm quite tired and am feeling a bit overwhelmed but Zack is only 3 > > weeks old so I am not too surprised. I am going to my first NCT > > meeting here in York tomorrow and am really looking forward to it. > >>>>>>>>. > > Hello Viv, Congratulations and welcome to the list. > > I am not too far from you down the road in Pocklington. > > Trisha > SAHM to 3 boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2001 Report Share Posted October 25, 2001 Viv wrote: > I know this reply is a bit late but thought I would say hi. Are > there any NCT groups in Pock? > >>>>>>>>>>> Yes there is one and it is flurishing at the moment. I will email you off list with the phone number. Meetings are every Friday. Trisha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 In a message dated 9/16/2003 4:00:28 PM Central Daylight Time, thearthurs3@... writes: > I don't know if this will work or not. I have put a picture in this email. > I am new to this kind of stuff. Hopefully it will work. > Rhonda > Check out my new online business!! They are AWESOME! > ***Photo Magnets*** http://www.heavenstreasurechest.com I don't think you can put attachments on here but you can put pictures on the yahoo photo. Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Hi Rhonda, welcome to our group. Whatever questions you might have there are many many people here that can help. Tina W., mother of , 17yoa wcf Intro Hi.. My name is Rhonda and my little boy is going through testing for CF. He just turned 20 months on the 6th. I am looking for people that have experience with this that I can ask questions to. I live in Kentucky and have been married for 14 years this past August. Jordan is our miracle baby because we tried the entire 14 years to conceive him. If any of you can help me out please email me at thearthurs3@... Thanks! Rhonda Check out my new online business!! They are AWESOME! ***Photo Magnets*** http://www.heavenstreasurechest.com <http://www.heavenstreasurechest.com> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Welcome to our lists they are now YOURS . Let us know how the testing is going. We wish he doesn't have CF , but if that is so , you are among many friends in the same place. We all learn together & share much here. Caring is a big thing here. LOVE & HUGS, grandmomBEV Intro Hi.. My name is Rhonda and my little boy is going through testing for CF. He just turned 20 months on the 6th. I am looking for people that have experience with this that I can ask questions to. I live in Kentucky and have been married for 14 years this past August. Jordan is our miracle baby because we tried the entire 14 years to conceive him. If any of you can help me out please email me at thearthurs3@... Thanks! Rhonda Check out my new online business!! They are AWESOME! ***Photo Magnets*** http://www.heavenstreasurechest.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 well he has had a sweat test done(Friday) and when I called to check on the results they told me his # was 80 and that he was borderline high. From research ive done it would put him over: A weight of at least 100 mg of sweat is required. A sodium and chloride value of >60 mmol/l is considered positive, between 40 and 60 equivocal and less than 40 negative. So I am TOTALLY lost here. I have no clue what this all means. I tried for 14 years to have a baby and Jordan is my only one. I am so worried and dont know anything at all about this. Ive never known anyone that has it or know anything at all about it. ANY help would be greatly appreciated as I am at a loss. Rhonda Check out my new online business!! They are AWESOME! ***Photo Magnets*** http://www.heavenstreasurechest.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Dear Rhonda, If you would send me your mailing address I would be happy to send you information that isn't Drs DOOM & GLOOM about our world. We all will share with you our stories & information . When my granddaughter was born(19+ yrs ago), they then said # 60 was for sure CF... We got info from different places on that ## too. But she also had a blockage in her bowls & intestines, which clinched the CF verdict .WE KNEW NOTHING about cystic fibrosis,.in fact, I had NEVER even heard of CF. Sooooooooo we set out to KNOW it ALL> I will be happy to send you update info . ERIN is away at college in her second year Is 6 ft. tall . A straight " a " student & a cross country runner .was 1st in state in high school . Soooooo, NO , they all wont do that .some do better , some do worse. BUT Everyday , it gets more & more info out there & scientist are working around the clock . We WILL beat this CF DISEASE--together. LOVE & HUGS, GrandmomBEV Re: Intro well he has had a sweat test done(Friday) and when I called to check on the results they told me his # was 80 and that he was borderline high. From research ive done it would put him over: A weight of at least 100 mg of sweat is required. A sodium and chloride value of >60 mmol/l is considered positive, between 40 and 60 equivocal and less than 40 negative. So I am TOTALLY lost here. I have no clue what this all means. I tried for 14 years to have a baby and Jordan is my only one. I am so worried and dont know anything at all about this. Ive never known anyone that has it or know anything at all about it. ANY help would be greatly appreciated as I am at a loss. Rhonda Check out my new online business!! They are AWESOME! ***Photo Magnets*** http://www.heavenstreasurechest.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 my address is Rhonda J. Arthur 6902 St Rt 168 Catlettsburg, KY 41129 If he is borderline...what does that mean? Does he have it? Does he not have it? Will he get it? He looks extremely healthy. He weighs 28 lbs and is the picture of health. I just don't understand it. I am worried to death. You can all look at his pictures at www.picturetrail.com/heavensent831 if you want. He is my pride and joy(as Im sure your kids are to you) and I don't know how to handle this. Rhonda Check out my new online business!! They are AWESOME! ***Photo Magnets*** http://www.heavenstreasurechest.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Thanks Rhonda, I got the address. I will send items out tomorrow. First thing you need to do is to stop worrying, that isn't going to change anything except you will be very tired. & he will feel your tenseness. . Children are very sensitive to your moods. CF is a yes or no . There is no little bit or maybe he will catch it or grow out of it.,IT is a generic disease & inherited from BOTH sided evenly. IT MUST BE A CF SPERM & A CF EGG.>>>TAINT OTHER WAY " just like you cant be a little bit pregnant... Sooooo, We are living with it, as are our children . PLEASE call me -toll free 1- . There are so very many on this list & the other larger CF lists that are in their 50's, 60, & a few in 70's. Soooooooooooo take care of yourself so you will be around when he is in college & getting ready to do big things in this world.. So many friends on the internet who have CF themselves, have children with CF or relatives who have CF. There are quite a few moms who not only have CF themselves but have children AND some with children who have CF too. They are making it & doing quite well. I have a friend down here who is a surgeon . He has CF. . MANY , OODLES, Who are professionals ....college folks & career folks .Lots are in the medical field & many in the education field. you name it, we're in it .with & with out CF.........Believe me . I am not trying to paint a rosy picture...there can be hard times. BUT all are NOT hard. Some more so than others . BUT ,together we make it . So, give me a call 1- toll free & I will get the " stuff " in the mail in the morning.. Much love & hugs, grandmomBEV (to 10 grdkids-one with CF) & 5 children w/spouses of my own. I also have the CF Pharmacy, Inc.in FL. Re: Intro my address is Rhonda J. Arthur 6902 St Rt 168 Catlettsburg, KY 41129 If he is borderline...what does that mean? Does he have it? Does he not have it? Will he get it? He looks extremely healthy. He weighs 28 lbs and is the picture of health. I just don't understand it. I am worried to death. You can all look at his pictures at www.picturetrail.com/heavensent831 if you want. He is my pride and joy(as Im sure your kids are to you) and I don't know how to handle this. Rhonda Check out my new online business!! They are AWESOME! ***Photo Magnets*** http://www.heavenstreasurechest.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 These pictures are wonderful You did such a beautiful job in the layouts too thanks for sharing Where are you in pics with your son?? LOVE & HUGS, GrandmomBEV Re: Intro my address is Rhonda J. Arthur 6902 St Rt 168 Catlettsburg, KY 41129 If he is borderline...what does that mean? Does he have it? Does he not have it? Will he get it? He looks extremely healthy. He weighs 28 lbs and is the picture of health. I just don't understand it. I am worried to death. You can all look at his pictures at www.picturetrail.com/heavensent831 if you want. He is my pride and joy(as Im sure your kids are to you) and I don't know how to handle this. Rhonda Check out my new online business!! They are AWESOME! ***Photo Magnets*** http://www.heavenstreasurechest.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 lol mommy is not presentable so I dont take alot of pictures with him. I should I know but I just cant stand to look at myself in pictures. Ill attach one for you but I warn you it's not very pretty. I took this picture to get extra points in my Biology class I just started. I just went back to school in Aug(before all this happened) to study nursing. Rhonda Check out my new online business!! They are AWESOME! ***Photo Magnets*** http://www.heavenstreasurechest.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 I went to the site again & you weren't there:):) you NEED to be in pictures with your precious son. He is a doll !!! I am sure Mommy is a sweetie too. LOVE & HUGS, grandmoMBEV Re: Intro lol mommy is not presentable so I dont take alot of pictures with him. I should I know but I just cant stand to look at myself in pictures. Ill attach one for you but I warn you it's not very pretty. I took this picture to get extra points in my Biology class I just started. I just went back to school in Aug(before all this happened) to study nursing. Rhonda Check out my new online business!! They are AWESOME! ***Photo Magnets*** http://www.heavenstreasurechest.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Welcome Rhonda. What testing have they done on your son so far? It took us 9 years to have Pattimae (2.5 wcf). In the meantime we adopted a sibling group of three. It took even two years after we got them before we conceived Patti, so I can understand some of the stuff your going through. Dawn mom of 4, 7 and under, the youngest wcf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 I don't know if this will work or not. I have put a picture in this email. I am new to this kind of stuff. Hopefully it will work. Rhonda Check out my new online business!! They are AWESOME! ***Photo Magnets*** http://www.heavenstreasurechest.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Love to Rhonda and her loved ones, and to Ashauna and Maxwel and Colgan; Ashauna said it all--again! I am just the echo! Love to you, n Rojas, wcf, mom of 3 adults, youngest with cf also Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Rhonda, Hello my sons very first sweat test was 85 and there was no question that it was positive. Did you have the test done in a CF center. Many times this really makes a difference in results as well as the responce being correct from you doctor. I to never knew anyone or had even heard of CF for that matter. I hope that it is negative but if not just know that we are all here to help you through all the rough and even the really good times. There are many of those really good times despite the bad news. Love to you and your little one CONGRADULATIONS after such a long try you finally have your baby. Ashauna mom of Maxwel and Colgan wcf. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 no it was at our local hospital. See I am so confused as to why they are calling his borderline high. ARGH anyone have any idea? Rhonda Check out my new online business!! They are AWESOME! ***Photo Magnets*** http://www.heavenstreasurechest.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2003 Report Share Posted September 16, 2003 Rhonda, There is no boarderline. It is either positive or negative at that number I would say positive however I am not a doctor I only know what we have been told and research that we have one. Anything above 60 is poositive in CF clinic and you will find that a clinic offers much more state of the art testing than a hospital or your peds. clinic. I wish you luck I know that you hate this Limbo mode that you and your husband are in. I am in it with my son Maxwel he is 5 and has had two negative sweat tests but as you will come to learn there are always exceptions. Love to you Ashauna Quote Link to comment Share on other sites More sharing options...
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